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2009 Top-Rated Nonprofit

Living Beyond Breast Cancer

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Nonprofit Overview

Causes: Breast Cancer, Cancer, Cancer Research, Health, Health (General & Financing)

Mission: Our mission is to empower all women affected by breast cancer to live as long as possible with the best quality of life.

Results: 1,200+ attendees annually to our conferences 8,000 listeners to our teleconferences 600+ callers to our Survivors' Helpline 110,000 unique visitors to lbbc.org 70,000 educational brochures distributed

Target demographics: We assist women at all stages of diagnosis, treatment and recovery with information, connection and support. LBBC's programs address medical, psychosocial, emotional, legal and financial concerns. In addition to our extensive resources for all women affected by breast cancer, we offer special programs for women who are newly diagnosed; women with metastatic breast cancer; African-American and Latina women; young women; and women at high risk for developing breast cancer.

Direct beneficiaries per year: 43,000

Geographic areas served: International

Programs: National conferences - national events providing information in large sessions and interactive workshops led by breast cancer experts to help women and caregivers make informed decisions. Webinars - monthly education seminars, accessible by phone or online, highlighting specific topics related to breast cancer. Community meetings - small, regional gatherings bringing experts, women and families together for information and interaction on subjects of interest.

young women's initiative - living beyond breast cancer's young women's initiative provides education and support programs tailored to the unique needs of women diagnosed with breast cancer before age 45. The initiative, which began in november 2011, is funded by a five year cooperative agreement with centers for disease control and prevention. To date, we have expanded web content for young women, trained 29 young women to be cancer advocates within their communities, developed five online videos about health topics relevant to young women, held four webinars for healthcare providers, and trained 22 young women to serve on our breast cancer helpline.

publications:"guides to understanding breast cancer and metastatic breast cancer series" - booklets addressing needs of the just diagnosed, in treatment, years beyond diagnosis or living with metastatic disease. "insight" - quarterly newsletter containing profiles of women affected by breast cancer and articles on important medical and quality of life topics.

other program services include lbbc. Org, breast cancer helpline and outreach programs.

Community Stories

4 Stories from Volunteers, Donors & Supporters

General Member of the Public

Rating: 5

LBBC was a lifeline for me as I was drowning in the news that after 10 years I had had a recurrence of breast cancer. My original surgeon had retired and as I was wondering where to go next ( this was in 1994), an article appeared prominently in the Phila Inquirer about a young radiation oncologist starting an organization to help women cope with a breast cancer diagnosis. I immediately dialed the number printed in the newspaper and, of all things, Dr. Marisa Weiss herself answered the phone. I think she was in her kitchen at home - lots of background noise. She calmly listened to my story and helped me focus on moving forward toward treatment second time around, assuring me that the three surgeons I had selected all had good reputations in the area. We must have spent 1/2 hour on the phone. I will never forget how helpful, calming and reassuring she was to me - a perfect stranger! After treatment I immediately signed on for the first Survivor Helpline training class and worked the phones for many years before retiring. LBBC is one of the best run organizations I have encountered and I feel privileged to have been a part of it.


General Member of the Public

Rating: 5

This organization provides incredible, free brochures on many cancer topics. Their brochure on understanding pathology reports gave me the information I needed to catch a critical error in my own pathology report. This changed my course of treatment and was a potential lifesaver.


General Member of the Public

Rating: 5

Was diagnosed in April,'o9 w/ stage IV bc & just discovered LBBC on Facebook. Looks like a great, helping site and I plan to take advantage of its offerings once I learn more.


General Member of the Public

Rating: 5

I was diagnose with breast cancer in 2007 and 2008 with stage IV. LBBC has helped me so much. They have educated me, supported me emotionally and beyond. I use them on a regular basis. I participate on their teleconference which are amazing and have participated to a conference as well which was recommended by my Doctor. This conference was a great experience and was way beyond my expectations. I met many ladies in the same situation as me and shared our experiences. I made many new contacts and learned so much on this conference. LBBC's information, support and service is absolutely great. LBBC has helped me immensely through my breast cancer journey which I really appreciate. I highly recommend LBBC without a doubt. Try it, you will love it!