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2009 Top-Rated Nonprofit

Living Beyond Breast Cancer

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Nonprofit Overview

Causes: Breast Cancer, Cancer, Cancer Research, Health, Health (General & Financing)

Mission: Our mission is to empower all women affected by breast cancer to live as long as possible with the best quality of life.

Results: 1,200+ attendees annually to our conferences 8,000 listeners to our teleconferences 600+ callers to our Survivors' Helpline 110,000 unique visitors to lbbc.org 70,000 educational brochures distributed

Target demographics: We assist women at all stages of diagnosis, treatment and recovery with information, connection and support. LBBC's programs address medical, psychosocial, emotional, legal and financial concerns. In addition to our extensive resources for all women affected by breast cancer, we offer special programs for women who are newly diagnosed; women with metastatic breast cancer; African-American and Latina women; young women; and women at high risk for developing breast cancer.

Direct beneficiaries per year: 43,000

Geographic areas served: International

Programs: National conferences - national events providing information in large sessions and interactive workshops led by breast cancer experts to help women and caregivers make informed decisions. Webinars - monthly education seminars, accessible by phone or online, highlighting specific topics related to breast cancer. Community meetings - small, regional gatherings bringing experts, women and families together for information and interaction on subjects of interest.

young women's initiative - living beyond breast cancer's young women's initiative provides education and support programs tailored to the unique needs of women diagnosed with breast cancer before age 45. The initiative, which began in november 2011, is funded by a five year cooperative agreement with centers for disease control and prevention. To date, we have expanded web content for young women, trained 29 young women to be cancer advocates within their communities, developed five online videos about health topics relevant to young women, held four webinars for healthcare providers, and trained 22 young women to serve on our breast cancer helpline.

publications:"guides to understanding breast cancer and metastatic breast cancer series" - booklets addressing needs of the just diagnosed, in treatment, years beyond diagnosis or living with metastatic disease. "insight" - quarterly newsletter containing profiles of women affected by breast cancer and articles on important medical and quality of life topics.

other program services include lbbc. Org, breast cancer helpline and outreach programs.

Community Stories

16 Stories from Volunteers, Donors & Supporters

DHPortner

Client Served

Rating: 5

I am a survivor and a former board member who has seen the pivotal role LBBC makes in the lives of people affected by breast cancer. Whether I was in the throes of chemotherapy or had a hard decision to make about surgical options, LBBC was there with information and support to give me confidence. In the years since my treatment, LBBC remains a go-to for updates on new hormonal therapies, healthy lifestyle recommendations, ways to talk with children, and other issues that arise.
Having served on the board, I know how well managed LBBC is as an organization, with longstanding and respected professionals led by CEO Jean Sachs. Having earned 4 stars from Charity Navigator since 2005 and served by a medical advisory board of experts from the nation's top cancer centers, LBBC's guides, webinars, and other materials serve its constituents well.
These photos are from Reach & Raise: Yoga for a Reason, LBBC's annual fundraiser on the steps of the Philadelphia Museum of Art (and held in other cities). It's just one of the high-touch ways LBBC makes its constituents feel supported as part of a community. LBBC reaches 500,000 people a year through its programs and materials and a volunteer-staffed Helpline. Whenever I hear that someone has been diagnosed with breast cancer, I connect them to LBBC.ORG. I know then, that they won't feel alone or uninformed.

2 Sue_12

Client Served

Rating: 5

I am both an RN and a survivor. I use Living Beyond Breast Cancer both to support myself and my clients. They provide a wonderful resource. I only wish I had found their website when I was diagnosed in 2004, instead of a couple of years later. They produce both an exceptional website and handouts that are superb.

Review from CharityNavigator

1

Client Served

Rating: 5

I have stage iv breast cancer and really appreciate the information that LBBC provides. It is wide ranging, thoughtful and comes with a lot of heart.

Sharon G.

Client Served

Rating: 5

I have used the info from LLBC so many times! I download the teleconferences for education, enjoy the newsletter, and I actually got to go to the Conference for Young Survivors last year thanks to LLBC and a travel grant. I learned so much at that conference and was able to pass on treatment changing, and life saving info to the other girls when I got home. I am still talking about all I learned at that conference a year and a half later! I use the LLBC online community as well. The Advanced Breast Cancer Support Community also has given me so much information and support. I don't think I would have been able to manage my journey so well or with so much positive energy without the posts of those women. I think LLBC is THE most helpful organization there is for breast cancer survivors.

Client Served

Rating: 5

Excellent organization, the go-to place for information on breast cancer, plus guides to other forms of cancer too. Their teleconferences have been very helpful to me. None of my doctors took much time with me, or they didnt have many answers.

Client Served

Rating: 5

Being diagnosed with Breast and Bone Cancer is really scary. During the year of my metastic diagnosis, i knew noone else like me. Through the metastic conference calls that the LBBC provided, I found that I was not alone. Through these calls I learned of new coping strategies, treatments options and a whole lotta hope was provided.

I often refer other survivors to the LBBC volunteers. They seem to match up well and can always find someone close to another's situation.

The summary of the ASCO findings are put in 'laymans' terms. These new therapies are instrumental in the survivorship of many. LBBC does a great job at getting the word out from successful trials. I fully support this wonderful organization.

Kathi H.

Client Served

Rating: 5

My main connection with Living Beyond Breast Cancer is through their helpful, up-to-date, thorough, yet understandable brochures and their website.

I found Living Beyond Breast Cancer online when I was diagnosed with breast cancer in 2003 and found the information invaluable when I was making treatment decisions.

Since 2005 I have been a volunteer for other cancer-related organizations and frequently refer clients to LBBC's website. I use their brochures and newsletter as references when counseling women with breast cancer and I share their brochures with others. The booklets are SO helpful, especially the one about metastatic disease, fear of recurrence, bone health and hormonal therapy.

17

Client Served

Rating: 5

I am 54 and a 3 year survivor. I connected with LBBC when I was first diagnosed and I still find them to be a great support and a fountain of valuable information. The website provides the latest in breast cancer news, current medical research reported from the annual meetings of the American Society of Clinical Oncology, as well as forums for women to connect with others who are in a similar situation - i.e. newly diagnosed, living with metastatic disease, women of color, etc. My favorite LBBC feature is the monthly teleconferences when a doctor or doctors discuss a particular topic (the topic for this month is hormonal therapy). The doctors provide up-to-date information in easy-to-understand language for the lay person. The listening audience then has the opportunity to ask the doctor questions - no other forum provides this unique service! If you miss the teleconference, replays and downloads are available on the website. LBBC is one of the best organizations for reliable information and support for breast cancer patients and survivors.

16

Client Served

Rating: 5

When I was diagnosed with metastatic breast cancer three years ago, it was very hard to find any information on advanced breast cancer. LBBC is a valuable resource for anyone with breast cancer but especially for those of us with advanced breast cancer. LBBC always have informative speakers for their teleconferences, their website is very "user friendly" and their newsletters are great. They cover the entire spectrum of topics not just about the disease itself, but on topics like family and the workplace. They are a lifeline for anyone looking for the most current and reliable information.

17

Client Served

Rating: 5

I look forward to getting regular emails from LBBC. There is always information that I have been wondering about or worrying over and LBBC provides just the right answers for me. Keep up the great work!

7

Client Served

Rating: 5

I love Living Beyond Breast Cancer. They have informative teleconferences on various topics addressing issues concerning breast cancer survivors. They include the newest therapies, returning to work issues, how to cope with side effects, etc. They also send free bochures on topics including lymphodema, understanding pathology reports, etc. It is a valuable resource for anyone just being diagnosed with or surviving breast cancer.

18

Client Served

Rating: 5

Living Beyond Breast Cancer has given me the Support Group that I desperately needed. They have supplied me with information that I would not have gotten any where else. I am improved and informed by their choice of on-line speakers and publications. GREAT JOB LBBC!!

7

Client Served

Rating: 5

There are not enough stars to rate this organization. I am 3rd generation woman affected by cancer. Both my mom and my sister have passed. Because of the impact this disease has had on my family I have decided to fight it with all I have. Because of that I am more than a survivor; and I will live and thrive inspite of it. LBBC is responsible for helping me stay informed, positive, and connected. And I dont even live in PA! Your teleconferences are great, and I can listen to them again and again. Your annual conferences in Philly are the best. I'm still living and feeding off the last one! Thank you, thank you for all that you do!

3

Client Served

Rating: 5

LBBC has been the most helpful educational program I have found in the 11 years of fighting cancer. It keeps me in the real world of the living while being up to date factual about my medical condition. It allows me to choose the specific aspects of the disease that I am dealing with at the moment and empowers me with the knowledge that I need without overwhelming me.It is truly a great backup to my medical treatment,and I recommend the program to all friends who face the terrifying CA diagnosis.

3

Client Served

Rating: 5

I was diagnosed in 1991. Later I found LBBC. It is the ONLY cancer charity I have ever donated to. This is because it has, without question, helped me more than any other cancer charity I am aware of.

5

Client Served

Rating: 5

I was diagnosed in the fall of '01, turned to LBBC first, and felt like I had found my guardian angels. Eight years later LBBC is still my main resource for education, information and support. The LBBC staff is incredibly caring, compassionate, and helpful. Their approach to women is so personal...you feel as if you're their only client, and as if your issues and concerns are the most important ones. How they do this is a mystery to me, given the size of this organization! All of LBBC's events and materials are framed hopefully and positively (e.g., annual conferences, Helpline, teleconferences,and publications). They are incredibly attuned to a philosophy of hope. (At one of the early conferences I attended, one of the speakers posted a chart with outcomes in percentages attached to specific diagnoses...not my idea of positive and hopeful. When I gave my feedback about this to the staff, they had already noted this and were already planning to give feedback to the speaker.) Whenever I felt most hopeless I just reached out to LBBC and left feeling like I could conquer this disease, or at least be around for a lot longer than I was fearing. Their Helpline volunteers and staff helped me sort through decisions about surgeries and treatments, and did this with incredible empathy, honesty and compassion. I obviously can't say enough about LBBC. I was lucky to know about them at the time of my diagnosis, and it's been my great fortune to have them in my life ever since.