I have two Masters Degrees and am successful in life. Great wife, job, kids. . . I have it all. I however have been controlled by one specific anxiety my whole life. This group helps and is doing very important work with very meaningful consequences for millions of people like me. In my situation, drug testing, which is required, is my worse nightmare even though I have never done any drugs in my life. anyway, this is a great nonprofit.
Great organization. It helped me deal with my persona situation and learn how to recover from it. If you suffer from Paruresis, I highly recommended contacting IPA and attending a workshop.
Great group. Dr. Steve Soifer has put together something not available anywhere in the world!
I first met Dr. Steven Soifer in 1997 when he was the President of the National Paruresis Association, which now is the International Paruresis Association. I sought Dr. Soifer out after my then-boyfriend revealed to me he had paruresis. As a writer, my initial intent in requesting a meeting with Dr. Soifer was to interview him for an article. By the time I left his office, his passion and dedication to the education about, and treatment of, paruresis was so persuasive that I accepted his invitation to be a Board Member of the association on the spot. I then served as the Secretary and Advisory Board Member of the organization for many years, and was invited to co-author the definitive book on the subject, "Shy Bladder Syndrome: Your Step-By-Step Guide To Overcoming Paruresis." I can personally state that for more than twenty years, Dr. Soifer has earnestly and successfully navigated, along with a team of dedicated staff and volunteers, the International Paruresis Association with time, ethic, integrity, and unparalleled commitment. To take on a topic that is not publicly appealing (no one likes to openly talk about embarrassing bathroom phobias) and to persevere in difficult economic times, is nothing short of heroic. The International Paruresis Association is fiscally responsible and socially impactful. It is an amazing organization that serves a hidden suffering population. I enthusiastically endorse this non-profit.
IPA literally changes people's lives. Paruresis is a social phobia that affects all aspects of one's day-to-day experience from going out to accepting that next big promotion that requires travelling. IPA workshops help people experience live to its fullest and I'm honored to support this great organization.
Proud to be a part of the group that advocates on behalf of 7% of American population who can't urinate in public. This disability makes one's life miserable: people can't travel, date, go to concerts, get promoted if the job is related to flying, pass a drug test...thankfully, there is a treatment that IPA uses in its workshops all around the world. It has helped thousands of people and is continuing to do so by raising awareness of this problem and treating sufferers. I've been supporting them for 5 years and will stay a loyal member for more years to come.
This is a great site and organization it's a go to site full of resources for all people with paruresis.
This group helped me a great deal with shy bladder and advocates on behalf of people with shy bladder in the workplace
As a person who deals with paruresis I find this organization very supportive. I felt relief in finding this company and information they provided in helping people like me deal with this condition. I very much appreciate all that this company does for eveyone who seeks help for our condition. They do make a difference.
I suffered for years not know what was wrong with me. I thought I was the only person who had the problem. Once I discovered the IPA, I finally realized that I was not alone and I now had a term for my condition. I had been to doctors in the past and none of them did anything for me. They did not even know why I could not go while someone was in the bathroom with me. Once I discovered that I had Paruresis, I began educating the doctors in my town on this condition. I am and always will be glad for the International Paruresis Associaton.
I am 42 years old and have suffered with Paruresis since I was a child. I am not sure was caused this problem. For years I suffered thinking I was the only person in the world with this problem. I even went to a local doctor, to see if he could help me. He could not help me or advise what was causing this condition. It was not till about ten years ago that I read an article in a national news paper did I realize what the condition was caused and that there was an organazion. I immediately went online to the Paruresis Association website. I finally had a name for my condition and I discovered for the first time that I was not the only person in the world who had this condition.
Having suffered for paruresis for over 30 years, finding that an organization like the IPA existed was a life-changer. For the first time, I realized I was not alone. The IPA is the only organization I'm aware of that exists to tackle this condition, which has a moderate to severe impact on a small but significant minority of the population. By providing resources such as books and workshops, spreading awareness and hosting an online discussion forum, IPA has greatly improved the lives of many who suffer from paruresis.
This organization helps with promoting workshops around the country. I attended one and it made a big difference in my life.
I would like to take a moment and say how much IPA has helped me. I have struggled with a shy bladder for 90% of my young adulthood life, from the age of 17 until well into my 40s. It was tremendous relief to find the support on IPA users forum bulletin board. The term Paruresis has a more precise definition for this condition. Before there were broad ranging categories that only talked of generalized feelings which could range from lack of self esteem to social anxiety. There was no possible way to describe what I was going through.
I felt alienated from what other people were able to do. Until I found the support group at IPA. I had my library transfer their recovery book to my branch and started reading it from cover to cover. Little by little I was able to grasp the understanding recovery is a gradual process. It is very good to relate with other people who are suffering as well. The most benefit I found was that I could give other people encouragement. I am still having to suppress my anxious feelings. Basically my main concern is will there be any privacy. I have a feeling I am with a bigger majority of people who are thinking the same way. I can say it definitely helps to write things out. To get a better understanding of the problem, is to get it out from the inside and look it in front of myself. I now know not hide the embarrassment and to get the problem out “on the table” to say what is the problem from the very beginning, so others will know what I’m talking about if I seem a little nervous.
I have dealt with Shy Bladder syndrome since as far back as I can remember. It was then considered a problem that only a child has trouble understanding. When we turn 18 we are considered adults. The problem just doesn't go away like a flick of a switch. At 18 I seriously started becoming more concerned and more pre-occupied with this every isolating problem. In my 30's I discovered a website called IPA for International Paruesis Association. From then on, I finally started to identify the problem. Shy Bladder actually has a technical name, Parursis. I became aware that I was not alone. There are many men and women out there of all ages who suffer. The benefits that I received from being able to share my experiences and offer my support to a bulletin board clearly out weigh any costs. In a nut shell, the most important lesson I've learned is to be up front and say what the problem is. I can't thank enough the people who run this site for providing an opportunity to share with and support the many who have lived with Shy Bladder Syndrome everyday of our lives.
Ever since I was ~ 10 years old I have had Shy Bladder. I thought I was the only one on Earth with this problem. It ruled my life. Then I found IPA.
Wow!!!! What a support system. I felt bad for those that had the same problem I had of course at different levels, but knowing there was help out there like IPA was Heaven Sent. Oh yea, I am 52yrs old now and lived with Shy Bladder till I was ~50. This organization is a life changing group. Imagine holing urine for 12hrs and not being able to be social with friend till now.
After suffering from paruresis for my entire cognitive life (over 30 years!!) and more importantly, at the brink of failing a UA random test for employment due to 'not producing a sample' I started doing some research online and stumbled into the IPA website. I spent the better part of a day reviewing the information they had on thier website. I followed thier advice and went to an urologist who 'diagnosed' me with paruresis and wrote a nice letter explaining this to my HR department. I also wrote a cover letter for them as outlined by the IPA information. To make a long story short it was succesful and they have since found other means to establish I am not using illegal substances. The days of sweating bullets over the stupid UA's was over. I immediately went back to the IPA's website and made a donation. The inforation and research they do is invaluable to people like me that have this pauresis condition. Although I have not attended any of thier workshopd, I have read the archives and have used many of thier techniques succesfully. The IPA is doing great work and I commend them for all thier time and involvment. Thank you IPA!!!