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International Hyperhidrosis Society

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Nonprofit Overview

Causes: Health

Mission: It is our mission to promote hyperhidrosis research, educate physicians in optimal diagnosis and care, raise awareness about the condition's emotional and economic impacts, and advocate for patient access to effective treatments. As part of our mission, we continuously build programs that connect those who suffer from hyperhidrosis with those who provide care, while increasing public understanding of this debilitating medical condition.

Results: Educated hundreds of medical professionals in hyperhidrosis diagnosis and care; Provided bi-monthly e-newsletter to over 50,000 subscribers; Supported research and development of improved treatments; Millions of media impressions; Millions of visitors to our continuously-updated site: www.SweatHelp.org.

Target demographics: kids, adults, families suffering with excessive, uncontrollable sweating

Geographic areas served: Global.

Programs: physician education, research support, advocacy for sufferers, and public awareness.

Community Stories

31 Stories from Volunteers, Donors & Supporters

12 ltguy11

Volunteer

Rating: 5

I've been volunteering at IHHS ever since I was in high school and Lisa and the staff always treated me with care and respect. They go to great lengths to get the word out about hyperhidrosis and raise awareness about this disorder. I've known this organization almost since the beginning and seen them grow and do great things. Thanks to the work that is done, HH treatment and insurance coverage for it has come a long way. They're always in the know about upcoming treatments and work hard to facilitate progress in the field by interacting with scientists and companies that develop treatments for hyperhidrosis. There really is no other organization like this in the world.

1

General Member of the Public

Rating: 4

Can someone please help me I've just been to granddaughters christening I had to leave my hair was dripping wet sweat running down my face so embarrassing

3

General Member of the Public

Rating: 5

I been sweating for a good many years now. I am to the point I can not stand it anymore Whenever I move around my whole body gets soaked. I change my clothing 3x a day. When I sit on a chair you can see a wet spot where I sat. It"s bad.My hair gets soaking wet and drjps. I take alot of medicine, Fentanyl patches, Vicodin, Lyrica, blood pressure.Maybe some of this is causing it but why is it only when I move around? Can you help?

1

General Member of the Public

Rating: 4

I had been looking everywhere trying to find an answer for Hyperhidrosis but no luck with anything in Australia. I just kept getting a diagnosis of the sweating but no clue to finding a solution to the problem. Kept searching and came across the International Hyperhidrosis Society's site.
I have to congratulate them on giving more answers than I had been able to find with all my other searching I had done. I found this to be a thorough, friendly and helpful place to look for answers. I was sent the latest information regarding this condition with names of professionals to contact here in Australia.
I hope this Society gets all the support they deserve to continue their excellent work. Thanks from a very grateful Aussie.

2 Evan11

General Member of the Public

Rating: 5

Christine was very helpful with all my questions. I appreciated her thorough e-mail.

1

General Member of the Public

Rating: 5

Wow! What an amazing organization that truly cares about people! What a great source of support and information. Everyone that I have come in contact with at the organization is professional and has such compassion! Thank you IHHS for the work you do to help those who have hyperhidrosis!

General Member of the Public

Rating: 5

I just recently learned about hyperhidrosis and I'm surprised at the number of people suffering from this condition . I have been totally impressed by the dedication and endless hours that has been but into IHHS by Lisa and her staff. They have a true passion for helping everyone effected , in such a loving and caring way I feel privileged to have been able to learn from them this past week.

1

General Member of the Public

Rating: 5

The International Hyperhidrosis Society was created to help people who suffer with this condition in the most loving and compassionate way possible. Everyone involved deeply cares about those with Hyperhidrosis. A combination of research, education and outreach is helping people who may otherwise have nowhere to turn. I am very impressed with both the mission and the people of the International Hyperhidrosis Society.

1

General Member of the Public

Rating: 5

I have just recently learned about this wonderful organization. They are kind, caring and have such a passion for helping people with Hyperhidrosis. It truly is an honor to work with them.

1

General Member of the Public

Rating: 5

I was surprised as a registered nurse that I had never heard of the disease HH. I was saddened to learn about the many people who are suffering in silence. The IHHS is truly an amazing organization! They are bringing awareness to the general public about this condition (and the medical community as well). They are connecting patients with physicians who are knowledgeable about HH and it’s treatment options. IHHS is also promoting cutting edge research for new treatments. All of this is being done with so much compassion for the people who are suffering from this disease. What a wonderful organization!

1

General Member of the Public

Rating: 5

I recently became involved with IHHS, and am amazed by the dedication the organization has to improving the lives of those suffering from Hyperhidrosis. The organization has tackled a large array of issues in a relatively short amount of time-- from research to support to education to treatment--all in an extremely compassionate manner. The organization, its work, and especially its well-organized and updated website serve as a place where someone suffering from this condition can truly "one-stop shop" for all the information they need to learn about living with excessive sweat, understanding that they are NOT alone, and options for potentially improving their struggle with this condition. Many thanks to everyone at IHHS who works tirelessly to improve the lives of those living with Hyperhidrosis!

4

General Member of the Public

Rating: 5

This is the ONLY organization that understands WE are out here and need their help. They continue researching and always share any help they can to hyperhydrosis sufferers. I've had this condition since I was a teenager... now 38 and I've tried everything over the counter and many prescriptions. Over the counter products do not work and most prescription solutions have nasty side effects. There are medical solutions out there but many are temporary and not covered by insurance. Without the International Hyperhydrosis Society - we wouldn't be getting anywhere and the information wouldn't be out there in the world letting everyone know - THIS IS A REAL CONDITION and those who are suffering ... you are NOT ALONE.

3

General Member of the Public

Rating: 5

Really the only place I have found ( and I rigorously have been searching)that is aggressively trying to help and address relief from this ignored and debilitating condition.
http://www.Sweathelp.org
www.Sweathelp.org

3 Irene13

General Member of the Public

Rating: 5

being in a stressful situation waking up perspiring before my brain was awake I went to the doctor and luckily a rep had just left and the doctor caught up with him and took one of his samples and gave it to me it was driclor it was wonderful it helped my stress levels and was effective from the start irene

7

General Member of the Public

Rating: 5

I have been suffering with hyperhidrosis for the past few years. It just came out of nowhere for me. I don't know if it was because i got older or because of my hypothyroidism. I, of course, at first didn't know anything about this problem or that anyone else suffered from it, like me. When I went to my primary doctor I don't think he knew that much about it either. He referred me to a dermatologist and they gave me this prescription spray that burned my underarms and made them worse. I went back and told them of the burning and they told me to keep using it but also prescribed a hydrocortisone cream. The hydrocortisone cream worked to take away the rash that came from the burning but the spray kept burning my skin. I finally stopped using the spray and went out on my own to find something that works. Through a google search I found the hyperhidrosis Society website and got some samples. I also got something called pit paste and tried out and am still using a number of things just to make it through the day at work so people won't smell me and I won't feel uncomfortable wet. On the Hyperhidrosis website Christine Fleckenstein got in touch with me and kept in touch with me to link me with different websites and tell me about the Botox seminar coming up. Unfortunately, the seminar has been cancelled but I felt like I gained a friend in hyperhidrosid through Christine.

9 Chelsea W.

General Member of the Public

Rating: 5

I've been begging physicians for help with severe hyperhidrosis since I was 8 yrs old...50 years of my life begging for help only to be unheard and dismissed as having a psychosomatic issue. Talk about defeat. The International Hyperhidrosis Society webpage is the first of it's kind to recognize that the problem is real, reaching out to those of us who silently suffer, with current information about who, how, what and where we might find help.
Praying that this godsend of a nonprofit will continue to forge a path of discovery in finding new treatments and practitioners to help.

6 Jake T.

General Member of the Public

Rating: 5

I have nothing else but good things to say about this organization. They are very supportive with people suffering from HH and they continue to strive day in and day out to find THE CURE! Thank you so much for everything!

4

General Member of the Public

Rating: 5

I'm from Germany and I'm really suffering from distinctive excessive sweating all over my body, no matter which part - you name it, I sweat it.
Therefore I'm deeply grateful that there is such a great nonprofit organisation which is engaged with this topic!
Hope to hear more and more good news in the future and maybe someday, there will be a cure even for myself.
Thanks a lot!

2

General Member of the Public

Rating: 5

I have friends and acquaintances who suffer with Hyperhidrosis. I tell all my friends about SweatHelp.org. It is very helpful and informative for those with the disease. I appreciate all the help this gives those with the condition.

3

General Member of the Public

Rating: 5

The transparent Mission of the IHHS is a refreshing motivating tool for all of us to become more attentive and active in the advancement of the quality of life for people of all ages; both women and men.
As an Engineer, I appreciate the informative and enjoyable format of the IHHS Newsletter.
It always sets forth a logical, well prepared message that clearly defines their Mission to help others.

3

General Member of the Public

Rating: 5

This nonprofit is superb. Both Lisa Pieretti and Christine Fleckenstein epitomize the utmost professionalism, care and diligence in assisting both public as well as private individuals on combating hyperhidrosis. I'm GRATEFUL the IHHS serves as an effective, professional liaison and I have zero qualms recommending them. Thank you everyone!