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International Hyperhidrosis Society

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Nonprofit Overview

Causes: Health

Mission: It is our mission to promote hyperhidrosis research, educate physicians in optimal diagnosis and care, raise awareness about the condition's emotional and economic impacts, and advocate for patient access to effective treatments. As part of our mission, we continuously build programs that connect those who suffer from hyperhidrosis with those who provide care, while increasing public understanding of this debilitating medical condition.

Results: Educated hundreds of medical professionals in hyperhidrosis diagnosis and care; Provided bi-monthly e-newsletter to over 50,000 subscribers; Supported research and development of improved treatments; Millions of media impressions; Millions of visitors to our continuously-updated site: www.SweatHelp.org.

Target demographics: kids, adults, families suffering with excessive, uncontrollable sweating

Geographic areas served: Global.

Programs: physician education, research support, advocacy for sufferers, and public awareness.

Community Stories

19 Stories from Volunteers, Donors & Supporters

12 ltguy11

Volunteer

Rating: 5

I've been volunteering at IHHS ever since I was in high school and Lisa and the staff always treated me with care and respect. They go to great lengths to get the word out about hyperhidrosis and raise awareness about this disorder. I've known this organization almost since the beginning and seen them grow and do great things. Thanks to the work that is done, HH treatment and insurance coverage for it has come a long way. They're always in the know about upcoming treatments and work hard to facilitate progress in the field by interacting with scientists and companies that develop treatments for hyperhidrosis. There really is no other organization like this in the world.

2

Volunteer

Rating: 5

Hello,
I have been blessed with the opportunity to volunteer with this organization. My severe Hyperhidrosis has led me to seek countless remedies. This organization provided support resources and education on how to cope with this condition. I have worked closely with the team and I cannot wait to the success of this organization.
THANK YOU!

Previous Stories
2

Volunteer

Rating: 5

The International Hyperhidrosis changed my life. I have been suffering from this condition all my life, it wasn't until now that i decided to do something about it. After reading the stories and information on the website i decided to contact them. I was able to receive free treatment as well as the chance to be a part of this community. I have met some great individuals who continue to inspire me. Some of them include Sophia wastler and Lisa Pieretti. I am now an active volunteer for the organization and continue to raise awareness by educating schools about the condition. I am honored to be part of this organization and will continue to do my part as long as i can.

1 Deb_65

Volunteer

Rating: 5

I volunteer for this organization and they are well-organized and really care about their patients. They go out of their way to make sure that sufferers are made aware of the disease and any upcoming treatments and studies. I have volunteered for many organization and they are a top-notch non-profit!

8

Volunteer

Rating: 5

I was extremely happy to be part of the Seattle event. Thanks a lot for conducting such a great event and helping the people like me. I got Botox injections and I spent whole summer without sweaty palms. I still remember how much I struggled every summer here in US and every day when I was in India. There, I used to get sweating (palms and feet) all around the year, due to hot weather. I never be able to go out with normal slippers. I felt so much shy if I have to walk on a clean marble floor when I went outside. I still remember the tough times I faced while writing exams, writing notes and condition of my text books after my use. I still remember the jokes played on me by the classmates and friends.

I really appreciate your efforts on helping us and fighting to change our fate. You will be next to the god in our opinion. Hoping soon you will be able to find simple and permanent solution for this annoying sweating problem.

6 Yasmin K.

Volunteer

Rating: 5

I truly feel blessed. The botox treatment that I received in Seattle through International Hyperhidrosis Society really works. I just had to give one week to kick in. I am enjoying living without sweaty palms. I recently visited Florida with my family and was feeling truly blessed to enjoy without sweating. I have never visited that hot countries in my life. I was always worried how would I enjoy sweating continuously. I look forward to participate as patient volunteer again for their master class conference in order for me to receive this treatment. Once again I would like to thank to the organizers, donors, physicians, the society for providing us the opportunity of this treatment. I can openly tell people I do suffer from hyperhidrosis and your society is there to make a difference in our lives. Thank you Lisa from bottom of my heart.

Previous Stories
6

Volunteer

Rating: 5

I would like to thank International Hyperhidrosis Society and all the organizers and donors who made it possible to give us an opportunity to try out a free treatment and attend a workshop as volunteer patients. Receiving a botox treatment was amazing experience. I never thought something like botox would stop my sweating for few months. Having been suffering all my years with type 4 excessive sweating on my palms and feet and learning about the research scientist and the organization are doing was an amazing experience. I look forward to attend again given an opportunity once again. It was a dream come true being free from suffering. I hope there is more and more research on this. People like us suffer silently. No one can know our suffering unless you are in that situation. I truly hope and pray that there will be cure that is available for all the people suffering. Thank you once again for changing our lives even though it's for short time of period.

5 Suzanna3

Volunteer

Rating: 5

IHHS has given me a life that I thought I would never be able to live. I thought I would have sweaty palms, hand and feet forever. How I came upon this organization was one day I was fed up so I googled sweaty palms, hands and feet and their organization was one of the links. I never knew there was a name for it. I just called it what it really was. So I reached out and
gave them my stories and my concerns because at that te I was a performer who used microphones and other electrical objects in my hand. I was worried with the way my hands sweated that I would get electrocuted. I was so self conscious about every thing. From the type of shoes to wear because of sweaty feet, they type of clothes to wear because of sweaty underarms, and whose hand I couldn't shake due to sweaty palms. My life was restricted until I came across this organization. They educated me and helped me with treatment. For that I am so grateful. With the help of their information I was able to go to my dermatologist and she diagnosed me with hyperhidrosis and treated me for it. It's been 6 years and I've been sweat free. Thank you so much. I am now more confident than I ever was and I can wear what I want.

8

Volunteer

Rating: 5

This organization has been a life saver for me. They are truly an AMAZING and dedicated group of people! Not only are these medical professionals "models" for the rest of their profession, but they were also clearly dedicated to compassionate and QUALITY PATIENT CARE!
I was honestly blown away this past weekend at the Hyperhydrosis Master Class in Seattle, WA. I was a patient volunteer on Saturday 7/25/15, who flew across the country from Raleigh, NC to be able to take advantage of the generous treatments from all of these wonderful people. After I left the event that day, I honestly COULDN'T get over how authentic and transparent this non-profit truly is. Their zealous advocation of patient care/treatment for all the people who suffer from this (and get denied necessary treatments by their insurance companies) is a rare, but wonderful needle in a haystack of medical "resources" that exist today.
The organization really lives by it's mission statement: "It is our mission to promote hyperhidrosis research, educate physicians in optimal diagnosis and care, raise awareness about the condition's emotional and economic impacts, and advocate for patient access to effective treatments. As part of our mission, we continuously build programs that connect those who suffer from hyperhidrosis with those who provide care, while increasing public understanding of this debilitating medical condition." (www.sweathelp.org)
....And I am beyond thankful that I was able to take part in this event opportunity that was full of teaching and treatment. I would fly across the country over and over each year, if it meant that I could receive such life changing help.

THANK YOU IHS!! My quality of life will be so much better and more manageable for the next 8-10 months as a result of the Botox injections you all helped provide for me at this master class in Seattle.
I want to be a part of this forever!!!

7 Adrian7

Volunteer

Rating: 5

This was my first time participating in an event by IHS and it was outstanding! I was part of the Seattle event and met some fantastic people at our table that REALLY made a difference in discussing the interesting challenges that only someone with this condition can understand.....truly understand.

The stories, the challenges, the real life strategy you have to take each day to hide, minimize, avoid, talk your way out of that will cause your condition to be exposed to others was truly awesome to talk to others about for a few hours. To live with something like this is such a tricky strategy to work into your life that to imagine what it's like to have dry hands(or other areas) seems like a dream after doing for your whole life. I was really impressed at the situations people have to deal with and how they do it every day. The discussion at our table for me was inspiring to overcome this challenge! As they say there is always someone that has it worse than you and I learned that today in a personal way.

The staff that administered the treatments today were top notch and it was nice to know that they were getting first hand education of this condition from a group of people that deal with it and were not trying to down play the impact it has on our life. Lisa was a fantastic facilitator and made us all feel comfortable and has a contagious smile creating an energy of hope for a possible solution to one day be able to proactively reach my hand out and introduce myself with a firm full grip hand shake and not get that face or reaction that we're all familiar with when that human contact factor is inevitable:)

Thanks to the awesome people at our table today- your stories were inspiring to learn there's a possible solution that can help us change the course of our life by being able to- shake hands, wear slippers in public, present in front of a group confidently, wear clothing without sweat consideration, and engage with others in the way we always imagined it would be like not having to hide from hyperhydrosis! Thank you for what you're doing!

Adrian
Vancouver, WA, USA

3

Volunteer

Rating: 4

From being so young and sweating all the time I never really paid it no mind because I was just young and thought whatever, but as I got older and people started to make fun of me I knew I was different from everyone else in my school and at home. I feel so blessed to have been able to participate in this experience and really hope their will be a cure for it soon anyone that has this problem its not fun and its just a good thing to know it is certain things you can do to deal with sweating .. thank you to emory and everyone else that was apart such wonderful and amazing people

2 LaDonna F.

Volunteer

Rating: 5

I am not sweating! I just can not believe it! Every time I do things that I normally would sweat from, I'm sure to point out that I'm not sweating to everyone that knows me.

IHS is an amazing organization working on research and medical solutions for a very little known medical condition. I am so glad that I have got connected with IHS. They are continually providing information on the condition and helping us find ways to deal with it.

I will stay involved with IHS for the rest of my life!

1

Volunteer

Rating: 5

I have suffered from hyperhidrosis for over 20years. I now know that I am not alone. Being a member of this society has changed my life. I am now and will for ever be an advocate for those who are affected by hyperhidrosis.

1

Volunteer

Rating: 4

Christine's response to my request was both swift and kind. Thank you for your help; children who are entering adolescence certainly need all the support we can give, and yours is appreciated.
With gratitude,
Gail Shapira

1

Volunteer

Rating: 5

I have volunteered a few times with this organization at their annual seminars and found the experience to be very rewarding. I saw first-hand how much work is put into organizing and holding these seminars and the appreciation that those with hyperhidrosis have for the Society for the opportunity to receive life-changing treatment. I would be more than happy to volunteer for this organization again.

1 Bill40

Volunteer

Rating: 5

As a volunteer, as an "outsider" witnessing firsthand the countless lives that have been truly changed for the better, mere words can not express the importance and transformative work performed by the International Hyperhidrosis Society. To those not personally affected by hyperhidrosis or not in direct contact with someone who is, it is impossible to understand its immensely debilitating effects. But through the dedication and professional perseverance of the International Hyperhidrosis Society, individuals are not only being given real and effective treatments -- they are being given long-lost self confidence, normalcy and the chance to be the mothers, fathers, husbands, wives, life-loving teenagers and accepted members of society that they so deserve to be.

2 Tri D.

Volunteer

Rating: 5

Though I have been a treament before knowing International Hyperhidrosis Society's site, I see that it really contains plenty of very helpful information about hyperhidrosis treament. I introduced the site to Vietnamese sufferer group on facebook. I hope many people can apply some of treaments and have great results. I also expect IHS organization expands to many areas all around the world for the treatment can come to all sufferers

2

Volunteer

Rating: 5

The International Hyperhidrosis Society is the only resource of its kind for people with excessive sweating. Because excessive sweating is still widely under-diagnosed and misunderstood, even among healthcare providers, the information and resources that they provide are critical to so many people. The information on their website can be life-changing for people who have hyperhidrosis.

3

Volunteer

Rating: 5

I feel blessed to have the chance to work with such a caring group of individuals, who all work so hard to bring to light awareness of hyperhidrosis (excessive sweating) as a true medical condition. Among its many programs aimed at education and advocacy, the Society holds seminars to educate physicians about this condition so that they, in turn, can help patients who are affected by this debilitating condition. Patients can even volunteer to receive free treatment at these seminars and also get the opportunity to meet others who also suffer with this condition. We frequently hear from patients that the treatment that these seminars provide is life-changing. This validation makes the work and effort put into organizing/holding these seminars totally worth it! What a rewarding way to spend time!