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2017 Top-Rated Nonprofit

ICAN, International Cancer Advocacy Network

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Nonprofit Overview

Causes: Cancer, Health, Philanthropy, Private Independent Foundations, Technology

Mission: ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services, to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers. ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, molecular profiling services, and palliative care program services. ICAN has been profiled in Newsweek based on the still enduring complete remission of one of its breast cancer patients and in Pharmaceutical Executive Magazine (where ICAN was viewed as the exemplar of cancer patient advocacy--out of 5000 organizations to choose from). ICAN has also been featured in the Robert A. Nagourney, M.D.'s pivotal book "Outliving Cancer" and is featured in the upcoming biography of anticancer drug discoverer G. Robert Pettit, PhD (published in June 2015).

Results: When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 20 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues. On the metric of "Was there a stone left unturned in the patient's journey with cancer?", our ICAN patients and their families resoundingly answer "No."

Target demographics: All ages, all socioeconomic backgrounds.

Direct beneficiaries per year: more than 1000 patient/spouse advocate/care partner/public inquiry cases at ICAN.

Geographic areas served: While we are headquartered in Phoenix, we work throughout Arizona; across the U.S. and all U.S. territories; 54 countries worldwide

Programs: Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org

Community Stories

28 Stories from Volunteers, Donors & Supporters

Professional with expertise in this field

Rating: 5

For patients and families seeking in-depth and detailed information on advanced (Stage 4) cancer, in all its forms, Marcia Horn, President of ICAN (International Cancer Advocacy Network) is truly an indispensable resource. Marcia and her colleagues at ICAN work on a 24/7 basis to acquire and deliver the most pertinent, intelligent and useful information, guiding patients toward the most promising treatment protocols, whether they are FDA-approved or accessible only through clinical trials.

All questions, from scientifically basic to medically sophisticated, are welcomed and thoroughly answered at a level of complexity that precisely matches the patient or family member. Having collaborated closely with Marcia, I can attest to the fact that the quality of ICAN’s services and information is up-to-the-minute fresh, relevant and actionable. In short, for information and advocacy on advanced cancer, Marcia Horn is at the top of my list.

I am enjoying being involved in the EXON 20 GROUP, co-founded by Kevin Hanlon and Robert Hanlon.

Carey Gold, The Health Advisory.com

Professional with expertise in this field

Rating: 5

I have volunteered at several organizations but ICAN is the best organization I have volunteered at. They are so very helpful and supportive. Marcia Horn is the best supportive person I have ever met -online-. I do recommend ICAN for the cancer patients and also Med students.

Professional with expertise in this field

Rating: 5

I had the privilege to work at ICAN as a research volunteer to search for the cutting edge research related to all types of cancer. I had a great opportunity to get to know Marcia Horn as I wanted to do more volunteering work at ICAN. She and Regina was so supportive to help me out and to choose what I can do. I very much believe in ICAN and its amazing leadership. I am not enough thanking ICAN for all the great help to the cancer patients. I am giving them the best possible review, because simply they deserve it.

Professional with expertise in this field

Rating: 5

ICAN is a wonderful organization in helping so many cancer patients with referral to the best oncologist across the US. ICAN has a lot of volunteers who searches the databases to find the most recent updates on the drugs or the clinical trials. Marcia Horn, the CEO and President is the best person I have ever known who help and support me as a volunteer in this amazing organization. I strongly support ICAN and Marcia Horn and give them the best of the best 5-stars review.

Professional with expertise in this field

Rating: 5

Participation in Liberty Mutual Invitational is the best!!!! Great organization that serves the under and unserved as well as all in need. Needs more funding to support more patients!!!

Professional with expertise in this field

Rating: 5

ICAN is an incredible organization because of the extensive and great work they are doing for the cancer patients. My experience with ICAN is a life changing experience. It's wonderful to see how they are very helpful and supportive to the patients and also the research volunteers. I have no words to express my gratitude to ICAN and Marcia Horn.

1 Ahmed E.

Professional with expertise in this field

Rating: 5

I love ICAN. My friend referred me to ICAN to be a volunteer to gain new experience and to help the cancer patients. I am enjoying my experience with ICAN. I have worked on several projects with them and it's very good to work with different team leaders to gain different experiences.

Professional with expertise in this field

Rating: 5

ICAN is a great organization and I love what they are doing with helping the patients. I am very supportive to ICAN. I am a volunteer at ICAN and they are very helpful and supportive to their volunteers.

Professional with expertise in this field

Rating: 5

I have been volunteering at ICAN for almost a year and I really enjoying my experience with ICAN. They have a fantastic board who are working really hard to help the cancer patients. I very much support ICAN.

Professional with expertise in this field

Rating: 5

I work with ICAN as a volunteer. Its of great experience , lots of help to many patients. Recommended as highly professional organization.

1 Abdelghany

Professional with expertise in this field

Rating: 5

I am studying medicine in Egypt and also I had a great opportunity to be a volunteer at ICAN. So I would like to say it is a wonderful experience and I'm most grateful and thankful to ICAN amazing team and Marcia Horn, the CEO and President. I'm still enjoying my volunteering time with ICAN. ICAN is one of the most greatest non-profit organizations I have ever seen in helping the cancer patients. ICAN has an amazing board who are working 24/7. I am and will be always be supportive to ICAN.

1

Professional with expertise in this field

Rating: 5

I am doing volunteering work with ICAN. It is a great organization and is helping so many cancer patients. They are working around the clock to help as many patients as they can. I love what they are doing and I so much admire what Marcia Horn is doing for the patients. I am a doctor from Egypt. The ALL deserve the best.

Professional with expertise in this field

Rating: 5

Marcia Horn and ICAN have helped so many patients navigate the oncology world by providing resources and time to get the best care in the country. They are able to get access to almost any provider and drug available if that is what it takes to help a patient. ICAN doesn't take No for an answer and provides hope for families that often feel they have no other help or resources by helping them empower themselves through the complicated world of oncology. They need as much funding as possible because it means more patients can stay alive and beat cancer.

Behnam R.

Professional with expertise in this field

Rating: 5

ICAN needs more funding to be able to work for more patients!

Professional with expertise in this field

Rating: 5

ICAN is a fantastic resource for patients and a topnotch advocacy organization. I have referred patients to ICAN and they go above and beyond to assist patients in need of resources as they struggle with a cancer diagnosis regardless of the location of the patient. They are well versed in the latest research and clinical trials. They have resources far and wide around the country through their strong relationships with patient volunteers as well as medical and academic contacts. I will continue to refer patients in need to ICAN.

Professional with expertise in this field

Rating: 5

Amazing organization. I referred friend who had Stage 3 lung cancer. This is precision medicine as it was intended to be.

Professional with expertise in this field

Rating: 5

The staff is dedicated, patient centered, and continuously provides "above and beyond" individualized service.

Professional with expertise in this field

Rating: 5

I have been aware of ICAN for only the past few months, but I have been truly amazed by the quality and extent of the services this organization provides to cancer patients and their care givers/families. Marcia Horn is a tireless patient advocate who goes far beyond the extra yard to ensure that the patients who contact ICAN get not only the best information regarding treatment options for their particular cancer, but also assist them getting access to the best physicans to treat them. ICAN also is working hard on various legislative fronts to ensure patient safety by ensuring that patients and their physicians will know what medication they are receiving as new biosimilar medications begin arriving on the market in the future for the treament of various cancers. ICAN is also working to obtain further governmental funding for research on rare cancers such as sarcomas. I am glad that my wife introduced me to ICAN and look forward to supporting and working with this organization in the future.

Professional with expertise in this field

Rating: 5

My association with ICAN started five years ago when I joined as Web Research Intern, transitioned to Research Team Leader and now working as member of International Physicians Council. During my time at ICAN, I've been extremely impressed by the program's commitment towards health care and cancer research excellence. Personally, I feel so blessed and grateful to have known and worked with such fantastic team without whose dedication and commitment, the gargantuan task of cancer projects can't be completed.

Not only have I enjoy working with Regina (Director Research Services), I learnt the dynamics of effective team management. She has always stood by me and my team whenever we need her and smoothed many hitches by her unconditional hand of cooperation at all times. Her strong work ethic, uplifting spirit, and wonderful attitude makes her an asset for ICAN.

Another person whom I've really enjoy working is Michèle . She is a brilliant Citation Editor who painstakingly corrects every assignment that is sent her way . She has a remarkable ability to oversee a large project without losing sight of the little things.

Last but not the least, The dynamic and passionate leadership of Marcia makes this Non Profit stand out amongst others. I feel that Marcia is an exceptional leader and a genuinely good person. Not only she brings a keen intellect to all quarters of ICAN, she enhances the ICAN community with her worldliness and humanism.

Because though I have branched out higher, the roots have grown a bit more deeper .
As they say " Even the smallest act of caring for another person is like a drop of water -it will make ripples throughout the entire pond...”
I sincerely hope that our ICAN family ripples reach far and wide and make difference in lives of those in need.

Previous Stories

Professional with expertise in this field

Rating: 5

ICAN has been a wonderful organization to work with. It truly celebrates diversity by bringing together people of different cultures, backgrounds and professions at crux of passion : of helping others. My journey with has been amazing as well as rewarding for ICAN helped me grow as a professional as well as person. Being a Research Team Leader,I had an opportunity to work closely with CEO, Marcia K Horn and Director Research Services, Regina Marie Klopfer. Found them thoroughly professional and always there to smooth the glitches for the team members. ICAN's deep commitment towards empowering late stage cancer patients with latest treatments and approaches speaks volumes for the kind of inspiring organization it is. Outstanding Patient care, high volunteer satisfaction and high professionalism makes ICAN a class apart

I strongly recommend and urge to support ICAN in any way you can. It definitely needs more funding so that even more patients can be helped!

Professional with expertise in this field

Rating: 5

I have been fortunate to work with so many dedicated volunteers over the last two years as part of ICAN’s Research Administration team. I think the most important attribute of ICAN is our quest to always have the timeliest up to date knowledge for doctors, medicines and procedures / trials matched to the patients and families we serve. Most all virtual volunteers rapidly adapt to their assignments from the instructional information we provide and become productive contributors within days of coming on board. The information collected from volunteers goes through a multi-tier process to ensure accuracy and relevance before ever reaching final output for dissemination.