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2017 Top-Rated Nonprofit

ICAN, International Cancer Advocacy Network

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Nonprofit Overview

Causes: Cancer, Health, Philanthropy, Private Independent Foundations, Technology

Mission: ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services, to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers. ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, molecular profiling services, and palliative care program services. ICAN has been profiled in Newsweek based on the still enduring complete remission of one of its breast cancer patients and in Pharmaceutical Executive Magazine (where ICAN was viewed as the exemplar of cancer patient advocacy--out of 5000 organizations to choose from). ICAN has also been featured in the Robert A. Nagourney, M.D.'s pivotal book "Outliving Cancer" and is featured in the upcoming biography of anticancer drug discoverer G. Robert Pettit, PhD (published in June 2015).

Results: When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 20 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues. On the metric of "Was there a stone left unturned in the patient's journey with cancer?", our ICAN patients and their families resoundingly answer "No."

Target demographics: All ages, all socioeconomic backgrounds.

Direct beneficiaries per year: more than 1000 patient/spouse advocate/care partner/public inquiry cases at ICAN.

Geographic areas served: While we are headquartered in Phoenix, we work throughout Arizona; across the U.S. and all U.S. territories; 54 countries worldwide

Programs: Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org

Community Stories

65 Stories from Volunteers, Donors & Supporters

judy

General Member of the Public

Rating: 5

I moved to Phoenix in 2007 after being diagnosed with breat cancer & treated in New York back in 2005. In 2010 the cancer returned and not knowing many physicians here I turned to family for referrals. I was told to contact ICAN & spoke with a wonderful person who guided me with a plan of attack with many different doctors. If it were not for the generous help of great people I could not get through this.I am grateful to ICAN for all their assistance.

Previous Stories

Client Served

Rating: 5

When I was diagnosed with breast cancer for the second time I did not know where to turn for advice and referrals. I am new to the state of Arizona and was told about ICAN through a relative. I contacted Marcia Horn & she took hours on the phone & follow up e-mails helpiing me.
I am from New York and did not have the good fortune of having such a great service as ICAN; of course there were avenues to explore through the hospitals and breast cancer centers. It was left up to the individual to find good doctors.
What we need is a better recognition of ICAN nationwide to enhance the tools needed for helping people diagnosed with cancer.

Client Served

Rating: 5

My experience with ICAN has kept me sane about a diagnosis that can send one spinning down a black hole because you are totally ignorant when you are first given such diagnosis. You do not think of breast cancer as coming to live with you and when it happens, it is a 24 hour nightmare from which you cannot wake up. Thanks to ICAN I was able to focus on what had to be done. The kind tone of an understanding voice that had answer after answer for me and my family has made the breast cancer diagnosis be what it is. We have faced it, we are working through it, and thanks to ICAN and its guidence, we have our lives back under control. Thank you, Marcia.

Client Served

Rating: 5

ICAN advocates do great work for breast cancer patients! Helpful in all fields, caring, encouraging and information.

Client Served

Rating: 5

I was diagnosed with Malignant Melanoma in January 2011 and underwent a full node removal under the arm in February. During the recovery period I was faced with many options regarding which clinical trial I could partake in, this is where I was introduced to the ICAN service. From the moment I contacted them I knew I was speaking to a team of people that really did understand what I was going through and the many decisions I was faced with. ICAN provided me with the most up to date research and analysis and we discussed many different options. Their guidance was 1st class and gave me the reassurance that I was so much in need of.

I wouldnt hesitate to recommend the services of ICAN, they really do put the client/patient first with the care an attention that is so greatly needed when dealing with Cancer.

Lynn L.

Client Served

Rating: 5

I found the “The International Cancer Advocacy Network (ICAN)” when I was first diagnosed with Stage 4 Melanoma. My doctors gave me 6-9 months to live and offered me palliative treatment. No one even mentioned clinical trials. In my desperation I searched for my own treatments and found Marcia at ICAN. Together ICAN assisted me in connecting to trials, and on some occasions even telephoning them to find out why it was taking so long to get back to me. ICAN knows time is precious and we don't have time to waste waiting....
ICAN also assisted me in researching and finding the most recent immunotherapy/drugs available, researched types of surgeries and pushed me to move forward in times I faltered. I needed support and they provided that, as professionals and as friends I could rely on in my times of distress. I am currently diagnosed as stage 4 melanoma and NED (No Evidence of Disease). I have been NED for 15 months. In June 2009 I was told I would be dead in 6-9 months...ICAN helped me make the life altering decisions that I can honestly say gave me life! I'm still standing and I am still here!!

Client Served

Rating: 5

I was diagnosed with two cases of Cancer simultaneously: Melanoma & Esophageal.

ICAN connected me with a MOHS (I never before even heard of MOHS) surgeon who removed the Melanoma. Now, unless I point it out, no one even sees the scar on the middle of my forehead.

ICAN connected me with a Medical Oncologist and a Radiation Oncologist.

Now, quarterly PET/CAT & Endoscopy find no evidence of Cancer in my esophagus!

Client Served

Rating: 5

Marcia & ICAN were extremely instrumental in assisting my sister who had stage four lung cancer. Marcia is considered to be a hero to our family! She gave my sister direction & hope during her final year of life. Words cannot express the gratitude we feel for ICAN & Marcia. My sister was so happy to be involved with such a great organization.

Client Served

Rating: 5

When my Dad was diagnosed with amyloidosis, we didn't know where to go for information because it is so rare. We were referred to Marcia,
who was wonderful about providing insight into the technical aspects of
the disease and confirmation that we were proceeding with the proper treatment.

Client Served

Rating: 5

I DON'T KNOW WHAT WE WOULD HAVE DONE WITH THE HELP AND COMPASSION WE RECEIVED FROM MARCIA HORN AND ICAN!!! WE WERE IN CRISIS MODE WHEN WE RECEIVED OUR DIAGNOSIS AND MARCIA WAS AMAZING...SHE WAS ABLE TO INFORM US AND GET INFORMATION TO OUR FAMILY THAT HELPED US GET THROUGH A VERY DIFFICULT AND EMOTIONAL TIME....ICAN NEEDS TO BE RECOGNIZED FOR ALL THE GOOD THEY DO FOR FOLKS LIKE US. HOPEFULLY THEY WILL RECEIVE THE DONATIONS THEY NEED TO REACH EVEN MORE FOLKS IN NEED OF THEIR SERVICES!

Client Served

Rating: 5

It is comforting to have an independent viewpoint and a resource to get questions answered. This organization does this with such compassion. Amazing. Thank you for all that you do. You touch the lives of so many people. We are so very grateful.

Client Served

Rating: 5

Ican and Marcia Horn are a unknown blessing that more people should know about when it comes to health needs. We have turned to Marcia Horn two different times for help. She will bend over backwards to help you 24/7, whether at work or at home. She has a knowledge of the best professionals and doctors in the Phoenix area for all health situations.
Our two particular situations were MRSA and Drug INTERACTION, she was there for us on both cases and very helpful. Sondburgs

Client Served

Rating: 5

I am an unusual reviewer for any nonprofit because I have worn virtually every hat that one can wear in any nonprofit organization.
I started out as a volunteer for ICAN (its former name was IFADD) in 1996 and volunteered at all of the special events that ICAN has held since.
My wife and I became vendors and donors of ICAN and sold art at various ICAN events.
I have also served on the staff and in senior positions on the IFADD/ICAN boards. I never dreamed that I would be an actual patient
of the organization's, but I became a patient in 2006 when I was diagnosed with pancreatic cancer. ICAN was the only member of my team
that predicted I would have pancreatic cancer based on their review of the biopsy findings which had been inconclusive to everyone except ICAN which understood right away the significance of some of the findings. Everyone else thought there might be a structural problem but no cancer. So ICAN, by urging me to get surgery as soon as possible, saved my life. They saved my life again when I recurred with thoracic metastases and counseled surgery.
I remain disease-free thanks to ICAN's constant advocacy services, life-saving information, and moral support throughout.
I have been a pancreatic cancer survivor for six years as of next month.
At every step on my journey, at every turning point, I have been able to rely on the no-holds-barred advocacy services of ICAN.
I have seen up close how this organization wastes nothing and operates on a shoestring yet produces more work than organizations with tens of millions of dollars in the bank. I have seen how ICAN staff with total devotion concentrate on Patient Services, morning, noon, and night, with a work ethic
and a level of productivity that would astound any observer and which leave all other nonprofit organizations frankly in the dust.
If you support any cancer organization, and if you support the strongest possible War on Cancer, I urge you, on behalf of patients like myself, to support this Great Nonprofit. If there is any organization that can help get the majority of cancer patients into stable disease or partial or complete remission, it is ICAN, and they can also help you achieve the highest possible quality of life. I have seen ICAN from every possible vantage point: from the Patient side, the Board Governance side, the Staff side, the Volunteer side, the Vendor/Donor/Supplier side, and this is a nonprofit that operates with the highest integrity and the highest possible productivity and results-oriented and highly energized work environment. This is a very exciting cancer organization to support and to see grow to the next level of accomplishment. Please join me by generously donating what you can and by remaining a donor year after year.

Client Served

Rating: 5

Wow! Talk about being available, compassionate, informative, and a ray of sunshine during a dark hour! Thank you for the blessing of your thoughts, ideas, and resources for my family and me.
Nancy Adam

Client Served

Rating: 5

ICAN WAS EXTREMELY HELPFUL TO ME AND MY FAMILY DURING OUR DIFFICULT TIME WITH CANCER. THE GREATEST ACCOLADE I CAN GIVE IS THAT ICAN IS ALWAYS AVAILABLE TO HELP.

Client Served

Rating: 5

ICAN 's willingness and ability to assist cancer patients who are in dire situations is absolutely amazing. Marcia Horn , the head of ICAN, has provided extensive support to two of my dear friends, one of whom has mutiple myeloma, and another with head and neck cancer. In both cases, she has used her research expertise and vast knowledge of medical facilities and physicians who are top-notch innovators in their fields to provide my friends with detailed, relevant, and urgently needed information on seeking the best treatment for their cancer. In addition, she has been an advocate when they needed an assertive, knowlegable ally in order to receive prompt, appropriate care. Marcia Horn and ICAN are priceless! They have prolonged the lives of these patients while allowing them to maintain a quality of life that has permitted each of them to achieve a few more of their life goals and fulfill dreams they had believed were impossible after the diagnosis of cancer.

Client Served

Rating: 5

I am absolutely amazed with Marcia Horn and ICAN. My husband is in a late stage of Melanoma skin cancer and is currently going through treatment. We could not have felt more comfortable with the treatment options given to us if it wasn't for Marcia and her team. She is so quick to respond to questions and concerns we have and immediately makes us feel more comfortable about navigating through this deadly disease. I highly recommend ICAN to all cancer patients.

Client Served

Rating: 5

Five years ago I was diagnosed with breast cancer and as often occurs encountered a number of difficulties. I was not sure what direction to take but knew it is important to learn and take initiative as said in Sun Tzu.
"In difficult ground, press on.
In encircled ground, devise stratagems.
In death ground, fight."

I am happy to say that with ICAN, an amazing organization, and with the great resources and assistance from Marcia Horn, the cancer has not returned! Marcia Horn was my expert in defining an amazing oncologist and other areas of direction. I offer my appreciation to her and ICAN and hope that we will never lose their support and direction.

Client Served

Rating: 5

Dear all, I have contacted ICAN and Marcia Horn a few months ago when we found that my mother has lung cancer. The next day Marcia wrote me an email with many usefull information I could use about the treatment options, analysis, doctors etc. Ever since, I know I can contact Marcia and Ican for any questions I might have and receive a few hours later the answers I needed. Their activity is really amazing and a real help for us.
Thank you so much for everything you do for the patients and their family!

Client Served

Rating: 5

My husband Don was diagnosed with Stage IV lung cancer when he went in for hip replacement. It was devastating news. Then we heard about ICAN and connected with Marcia Horn. She helped us navigate the reports, kept us apprised of new developments, held our hands and acted as our cheer leader at all times of the day and night. Eighteen months later Don is still going strong and ICAN's positive "you can do it" attitude has made all the difference in this fight.

Shari B.

Client Served

Rating: 5

I was at work when I got the news - my breast cancer had returned to my spine and I was now Stage IV. The Doctors did not give much hope and told me only 16% survive past five years. My girlfriend volunteered at a Jewel of the Ball fundraising event ICAN was holding in 2006 and she decided to volunteer. Little did she know it would change my life.
ICAN called me the very next day at work and reassured me we were going to fight this and it was not gloom and doom. They immediately went into action and referred me to a doctor who helped save my life. I am now in remission over six years and although they won/'t use the word cure, I know I wouldn't be here today if it wasn't for this organization. They truly are the remission coaches of the cancer world and have my support and trust forever.