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2017 Top-Rated Nonprofit

ICAN, International Cancer Advocacy Network

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Nonprofit Overview

Causes: Cancer, Health, Philanthropy, Private Independent Foundations, Technology

Mission: ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services, to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers. ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, molecular profiling services, and palliative care program services. ICAN has been profiled in Newsweek based on the still enduring complete remission of one of its breast cancer patients and in Pharmaceutical Executive Magazine (where ICAN was viewed as the exemplar of cancer patient advocacy--out of 5000 organizations to choose from). ICAN has also been featured in the Robert A. Nagourney, M.D.'s pivotal book "Outliving Cancer" and is featured in the upcoming biography of anticancer drug discoverer G. Robert Pettit, PhD (published in June 2015).

Results: When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 20 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues. On the metric of "Was there a stone left unturned in the patient's journey with cancer?", our ICAN patients and their families resoundingly answer "No."

Target demographics: All ages, all socioeconomic backgrounds.

Direct beneficiaries per year: more than 1000 patient/spouse advocate/care partner/public inquiry cases at ICAN.

Geographic areas served: While we are headquartered in Phoenix, we work throughout Arizona; across the U.S. and all U.S. territories; 54 countries worldwide

Programs: Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org

Community Stories

65 Stories from Volunteers, Donors & Supporters

Dean H.

Client Served

Rating: 5

When our mother was stricken with ovarian cancer our family did not know where to turn. We heard about ICAN and Marcia Horn. When we contacted Marcia she was more then happy to meet with my family and help guild us through what was happening and what to expect along with some options. Even being over 3000 miles away it was nice to know there was someone great in our corner. I can't thank Marcia & ICAN enough for all her help and leadership.

absolute_abs

Client Served

Rating: 5

There are angels on this earth!!!


I landed on the ICAN website by way of a recommendation from a friend and I had a mortal angel fly in and land on my doorstep. Her name is Marcia Horn of ICAN and she turned our world from Black and White to Technicolor! From out first meeting she went out of her way to make some great suggestions and recommend state of the art ways of dealing with my mom (Pearl) Ovarian Cancer. She helped us line up some good doctors and was always around to help our family to answer any questions we had on the labyrinth of cancer therapies.

ICAN is a great resource and I recommend it to anyone who must face a cancer therapy and is unsure where to turn, to consult with ICAN.

Client Served

Rating: 5

When I received my diagnosis of Ovarian Cancer, I was completely stunned and had no idea of what to do next. Luckily a dear friend told me about Marcia Horn and ICAN and at 9pm on a Friday night I received a call from Marcia. After spending an hour on the phone with me she told me the top three Gynecologic Oncologists and exactly the steps I needed to take. I had an appointment with the number one doctor within a week and was in surgery in less than 2 weeks. Marcia reviewed the pathology reports with me and has been invaluable in my care. Marcia Horn and ICAN are beacons of light at the darkest time in a cancer patients life.

rtl7

General Member of the Public

Rating: 5

Marcia Horn, and ICAN, have been, probably my number one crutch in helping my wife and I make decisions while fighting this horrible disease. My wife was diagnosed in July of 2013 with a breast malignancy, and Marcia has always been there for me, as the care taker. Even after office hours she has always answered my emails and been so amazing with her information and help. Especially in the beginning she was so informative at a time when we were scared to death, not that we aren't still, but I was so lucky finding her and ICAN.

Previous Stories

Client Served

Rating: 5

What a refreshing and helpful organization ICAN has turned out to be for me as care giver to my wife who was diagnosed with a malignancy in her breast this summer. Without knowing anything about this horrific disease, my wife and I didn't have a choice but to set out on a journey to fight and try to win each day in order to get her health back on track. ICAN has been like a beacon in the wilderness providing information, direction, and most of all positive energy to help us and give us hope as we
are now into the third month of what has been successful treatments. They came at a time when we needed friendship as well as knowledge about what we were facing.

Client Served

Rating: 5

Marcia Horn and ICAN were invaluable in helping me find the right health care provider for my case. To have someone advocate for you - especially with stage IV cases - is so heartening and validating. Thank you ICAN for all you do to help those of us on this often confusing journey to find some light at the end of the tunnel!

Client Served

Rating: 5

I am living in the United States, and after learning about them, ICAN helped a friend of mine who is located in Shanghai, China. He has a recurrence of abdominal cancer that has challenged his oncologists in Shanghai. The support that ICAN has provided is so much more than I expected. They arranged to review my friend's case. Because the documents for his medical history were in Chinese, they had an expert here in the United States go over the documents and translate them. After going through his documents and learning about his cancer and previous history, ICAN suggested that my friend have molecular profiling done. They arranged for my friend to discuss this with a Chinese expert who was visiting Shanghai from the United States. My friend understands much better what questions to discuss with his oncologists in Shanghai and how to talk to them about molecular profiling. We hope that he will recover from his cancer. The support that Ms. Horn and ICAN give to my friend and his family is priceless we are so fortunate to have found them.

Client Served

Rating: 5

ICAN's adeptness, discernment, knowledge, time, expertise, integrity, care, and ability to truly support with sincerity, adeptness, and unwavering, and inexhaustible dedication, selfless service, and pure hearted spirit to advocate for the most vulnerable, is valued beyond words as a patient. There are not enough positive words to express appreciation for International Cancer Advocacy Network (ICAN)

Client Served

Rating: 5

My dear friend Valorie, did research for me on recurrance colorectal cancer and found ICAN and Marcia Horn. My spirit was lifted to great heights after speaking with Ms. Horn about ICAN and my particular cancer. She actually was on the phone with V and myself for almost a half and hour, explaining in great detail, the various companies (such as Caris) that can assist in helping find the correct chemotherapies for colorrectal cancer, especially recurrance. She helped me have Caris compare my 2004 cancer cells with that of my current case. Caris stated I was getting the exact chemo that I needed from Memorial Sloan Cancer Center in NY. What a relief. I am truly in debted to Marcia Horn and ICAN >>> I will never forget her words to me... We will never leave you alone, we will be with you all the way. How wonderful is that? I am forever greatful. Cathy Larsen

Client Served

Rating: 5

ICAN Phoenix, AZ is excellent. I was terrified and overwhelmed. I went to the experts at ICAN and they helped me with complete commitment, deep compassion and comprehensive knowledge that helped me get through my decision-making process, surgery, and treatments. I recommend them without reservation. ICAN is excellent, professional and fully prepared to help anyone and everyone lucky enough to find them. I thank God for ICAN. Contact them immediately if you need help, you will be in safe, caring hands.

Client Served

Rating: 5

Hands down, this is the place to go if you are suffering from confusion, lack of knowledge, or just someone to show kindness, during your battle with cancer. No other organization came close to what ICAN has done to help me. They are the most committed and kind people that I have ever had the pleasure of talking to. Thank you Marcia Horn and the rest of your team! I love you all!
Cathy Larson

Client Served

Rating: 5

My dear friend has multiple myeloma. In her calls to ICAN, she always got more helpful information than she did from her doctor. For that reason and others, she asked her advocate at ICAN to refer her to a new oncologist and is thrilled with the one they referred her to. She really feels that having ICAN at her side has helped her tremendously both medically and emotionally, in her fight against her disease. I am so impressed with what ICAN has done for her that I'm asking for friends and family to make donations to ICAN instead of buying me Christmas gifts this year!

Chuck C.

Client Served

Rating: 5

In January of 2003 my sister's daughter Claire was diagnosed with Glioma a type of Brain Cancer. It was a huge tragedy and everyone in the family was deeply concerned. Claire was only 14 at the time. Over the next year many things were tried to help her. I was introduced to Marcia Horn (CEO of ICAN) from Ted Rogers (president of the National Speakers Association in Arizona at the time). When I first talked with Marcia she said to me "We never give up on children!" We became immediate close friends.

ICAN was not involved in Claire's initial treatment, however when all else had not worked, (My sister is a nurse and her ex husband is a doctor and they had many resources). Anyway, Claire was getting treatments for her Cancer but nothing was working. When the time for the Hail Mary move came, ICAN stepped up to the plate and helped get Claire into an experimental program. Unfortunately, Claire passed away just after her 16th Birthday on March 23, 2004. She was a wonderful child with a great future ahead, but it wasn't meant to be.

I have been involved with ICAN ever since then and am on their leadership development council. Helpings others like Claire it is well worth the time.

Recent Activity:
Since I have been involved in Tango for several years, and have a bit of a creative brain, it somehow made sense to do a show. Currently I am the producer/director of a show called ICAN Tango and will be held on October 20th in Tucson Arizona. http://www.facebook.com/events/385522744843432/

Client Served

Rating: 5

My sister was diagnosed with lung cancer and kidney cancer. I didn’t know where to turn for answers. Another organization was nice, but they just gave me pat answers that sounded like they were reading them from a book. I felt like the person on the phone wanted to get rid of me. That was not the case with ASKICAN.ORG. They were, and still are, my most important resource to deal with my sisters terrible diagnosis. They are like angles sent from GOD!

Client Served

Rating: 5

I have a dear friend who unfortunately has been diagnosed with recurrent colon cancer. I have been desperately trying to get information on where she can go for a second opinion. I happen to be a biotechnology recruiter so sent out a “Can you help” note on some of the life science groups for which I am a member on LinkedIn. Within a few hours I was contacted by a wonderful research scientist by the name of Scott Kahn, who immediately started networking with the many specialists that he knows in the NYC area. Shortly after, I was contacted by the CEO of AskICAN.Org, Marcia Horn, who spent at least an hour with me on the phone to get the facts of the situation so she could find me the resources needed. I now have a clear plan of action, thanks to this wonderful nonprofit that is filled with great people like Scott Kahn and Marcia Horn. I contacted another well known nonprofit here in NYC, and never received an answer. They deserve 10 stars!!!

Client Served

Rating: 5

When I was diagnosed with breast cancer I immediately contacted ican and they have helped me every step of the way! I truly would not have known what to do if it wasn't for ican!

Client Served

Rating: 5

When we found out that my sister had breast cancer, we started researching different organizations to find answers and help. ICAN was at the top of the list after speaking with a few people about their service! It was a relief to have someone explain the different types of breast cancer, the stage and what to expect. They provided resources, questions to ask the doctor and the best advice was to create a binder with all the patient information to have at all times. Especially when you're at the doctor. They took their time, never hurried us and made us feel very comfortable.

Client Served

Rating: 5

My husband read about ICAN in the December 2011 Newsweek article and encouraged me to contact them. We had just emerged from several months of intense treatment for metastatic Stage IV breast cancer (my original diagnosis and treatment was in 2006), including emergency spine surgery, and almost eight weeks of radiation treatment. When a Pet scan revealed there was no improvement but actually progression in my disease on hormone therapy, we were both stunned, scared and very disappointed. After a few days of processing this bad news, I pulled up the ICAN website and sent off an email immediately. Within a few days I was speaking to Marcia Horn, President and CEO of ICAN. Our conversation took almost an hour of Marcia's time, while I feverishly scribbled down notes. Before speaking to Marcia that morning, I was feeling terribly anxious and pessimistic. Marcia urged me to join the percentage of breast cancer patients who have survived their odds, suggesting names of exciting new treatments and specialists who would consult with me. Marcia urged me to consider taking a closer, more comprehensive look at my individual pathology and gave me information to follow up with Caris Life Sciences, a state of the art lab in Dallas doing some very exciting work. We are still waiting to determine if chemotherapy is next in line for me, but at Marcia's insistence we are now in the position to determine what might be the most effective step for me. And one that might save my life. I am only 48 years old and have two young daughters and a loving husband and family to live for. The next time I saw my doctor I came with a stack of notes and questions, and now the data of the Caris lab results. I am so grateful for Marcia and her team of volunteers at ICAN for giving me a sense of empowerment at this most critical time of my life.

Client Served

Rating: 5

I consider ICAN to be a very helpful breast cancer support network. They have taken the time to find information for me concerning a vaccine trial, as well they are looking into oncology services in my area which might fit my situation. I appreciate the assistance of Marcia Horn and ICAN.

Client Served

Rating: 5

After hearing the diagnosis of breast cancer and words/phrases that I did not understand, I called Marcia Horn, ICAN's Pres/CEO. Here brother urged me to call her and I am so glad I did. It was a couple of days before Christmas 2011. I do not remember much about Christmas and New Year's 2011. However, I remember every single conversation I had with her between December 23 and January 10 (and we continue to talk). Marcia's calm and reassuring willingness to share her expertise was our rock until we finally spoke to the team of doctors that are taking care of our daughter. I will forever be grateful to have Marcia explain every step of the way - what to expect good/bad/ugly. Because of Marcia and ICAN I am stronger through this "pink journey," as our granddaughter Nikki calls her mom's breast cancer diagnosis/prognosis.

Client Served

Rating: 5

My wife has Stage IV Metastatic Breast Cancer. It can be quite a challenge to figure out the best approach to take in dealing with it. Marcia at ICAN has been very helpful. We informed her with what procedures, drugs and doctors we were using, then advised and encourage us on what we could do further.