I felt so alone and confused with assisting my father in his battle with cancer. After a few months of navigating the complicated world of our medical system, I was put in touch through a family friend with ICAN. A month ago my family was faced with the difficult challenge of choosing the best option given to us by our oncologist, including different clinical trials and standard of care. With all options there were pros and cons. The anxiety I felt making such a difficult decision was eased by the support of ICAN. The team at ICAN was more than responsive. They provided us with resources, guidance, were able to shed light on certain treatments that were effective or ineffective based on my father's genetic makeup. This is something that our oncologist should be able to guide us through, but the issue is oncologists are limited to the resources of their institution. Therefore, we were limited to the information we received. We sought a 2nd opinion and they also had different options. When we asked them which option they felt were better including the other institutions', we were met with opposition. Not surprisingly, they were unable to provide any opinions on the other institutions' progress or therapies. Cancer is a complex disease and there is no one method or approach. The ICAN team made me feel like I had an extended family for support and guidance. All cancer patients and their families should seek support from an organization like ICAN. Marcia Horn is an incredible person. She is not only knowledgeable and dedicated, she also has the kindest heart. I am so thankful to have ICAN help me during this time. The network of professionals and volunteers is deep and ever growing. I thank all those participating as a volunteer through ICAN. My family is grateful for your selfless acts of service to cancer patients and community.
I really believe so wouldn't be here today without ICAN..their advice and moral support helped give me the courage to fight. I'' eternally grateful.
ICAN is amazing they have been so incredibly helpful for my mother. She is currently battling cervical cancer that has metastasized. ICAN put us in contact with the best doctors which are giving her the best treatment imaginable. Without them this awful disease probably would of taken my mother from me. Truly grateful for ICAN I can't say enough great things about them. They are making a huge difference for my mother and a incredible impact on the cancer society. I couldn't be more happy every time I talk to them they make me feel important like talking to family.
ICAN has been amazingly responsive with recommendations, referrals and options for second opinions as I have navigated the confusing and complicated medical system related to cancer treatment for my mother. It's clear that many cancer patients and families need resources and counsel to seek the best care and clearly understand the options available. I'm sure that many families and cancer patients have found themselves confounded and, unfortunately, unable to get the answers and resources they need before it's too late. ICAN is a service that should be known and available to all dealing with these issues of health and comfort.
As a cancer survivor myself, I have experienced the confusion, fear and isolation first hand that come after diagnosis. An advocate can (literally) make the difference between life and death. Following my mother's diagnosis with colon cancer, my family was blessed to find Marcia Horn at ICAN. From the beginning, she was our educated, compassionate, knowledgable, objective support system. Marcia made herself readily available (via phone and email) at that crucial decision making time. She advised us on the latest medical findings and trends, second opinion resources and best practices for followup after treatment. It's overwhelming to be the patient or the family member and care giver, ICAN fills a vital role. Marcia and ICAN, I cannot thank you enough!!
ICAN was invaluable to my family during my Mother's recent episode of colon cancer. She is 86 years old, with atrial fib and the risks to surgery and possible extreme treatments after was frightening. ICAN and Marcia Horn guided us through the questions to ask the Physician, did investigative work on who was the best provider in OKC and provided a radiologist to view the images and provide a second opinion. In short, they were available to us 24/7 and made a scary situation manageable.
I will recommend and support ICAN anyway possible in the future, this is important work.
We heard of Marcia Horn and ICAN through a cousin, who was working in the medical field, and my husband just took a chance, at the beginning of our journey with bc, and called her cold without any introduction, and even though we have never met her in person, she has been a rock for my husband, as she responds to his every email, with positive information and support. This began in 2013 and he still corresponds with her till this very day. Thank you Marcia and ICAN. from Marilyn in Tennessee.
There are simply not enough stars to rate International Cancer Advocacy Network (ICAN) as high as they should be rated! I am an elderly, low-income grandmother who has been recently diagnosed with Stage IV colon cancer. It was so, so scary at first. My experience with ICAN has been critical, life-saving, inspiring, motivating, empowering, and amazing! The ICAN advisors have helped me take charge of my Stage IV colon cancer diagnosis. ICAN has a tremendous knowledge base of cutting-edge advanced genetic and other cancer research that even the top-class practitioners in the United States do not *yet* use routinely with all their patients. ICAN has worked tirelessly, promptly, and caringly to help me 1) understand my diagnosis; 2) find the absolute world-class top doctors near my home; 3) introduced me and the doctors to advanced research to personalize my care; 4) supported me *every step* of the way with advice, interpretation of doctor's recommendations, and guidance; 5) provided inspirational, positive motivation to me. I am elated to report that, despite my very serious stage of cancer, and my elderly, low-income status with no other "connections" in the medical world except ICAN, I am making great progress towards curing this cancer! ICAN has helped me access the best treatment possible with their tremendous knowledge base of research and has helped me feel confident that I am getting the best cancer care available today in the United States -- for instance, the advanced genetic and protein profiling that ICAN has introduced to me and to my nationally-recognized top cancer doctors at one of our country's top cancer centers, would not have happened without ICAN's help. I only feel bad that I do not have the financial resources to help ICAN as much as they have helped me. I thank every and any person involved with ICAN -- volunteers, researchers, doctors, employees, and financial donors -- for giving me hope and changing my life. I am so confident in their value that I have been spreading the word about ICAN to other cancer patients I meet, including, tragically, even very young cancer patients. ICAN can make a difference, and I will also support them in any possible way that *I-CAN!*