Mission: ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services, to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers.
ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, molecular profiling services, and palliative care program services.
ICAN has been profiled in Newsweek based on the still enduring complete remission of one of its breast cancer patients and in Pharmaceutical Executive Magazine (where ICAN was viewed as the exemplar of cancer patient advocacy--out of 5000 organizations to choose from). ICAN has also been featured in the Robert A. Nagourney, M.D.'s pivotal book "Outliving Cancer" and is featured in the upcoming biography of anticancer drug discoverer G. Robert Pettit, PhD (published in June 2015).
Results: When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 20 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues. On the metric of "Was there a stone left unturned in the patient's journey with cancer?", our ICAN patients and their families resoundingly answer "No."
Target demographics: All ages, all socioeconomic backgrounds.
Direct beneficiaries per year: more than 1000 patient/spouse advocate/care partner/public inquiry cases at ICAN.
Geographic areas served: While we are headquartered in Phoenix, we work throughout Arizona; across the U.S. and all U.S. territories; 54 countries worldwide
Programs: Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org
ICAN, the International Cancer Advocacy Network is at the vanguard of cancer patient care. Led by its amazing President and CEO, Marcia Horn, and steered by outstanding board members and scientific advisors, ICAN works tirelessly with cancer patients to ensure that they get the best care possible. ICAN was an early advocate for personalized medicine well before the current paradigm shift towards individualized molecular profiling became an integral part of patient care. ICAN's work with late stage cancer patients is extraordinary, serving each patient on an individual basis, hand holding as they address tough clinical decisions. I have volunteered with ICAN over the past three years as a member of the Biomarkers Council, where we provide scientific expertise in the area of molecular profiling. ICAN also works to implement and advocate for changes in public policy that benefit cancer patients. Please support ICAN today in any way that you can.
I was an advisor on healthcare financing issues for the International Cancer Advocacy Network as well as a Director of research team leaders. Not only is ICAN a great place to volunteer, but they work tirelessly to serve the public. They are experienced, providing creative direct patient navigation and information services with the goal of extending life with the highest achievable quality of life. If you have a diagnosis of cancer they will help you to navigate the rapidly expanding diagnostic and personalized treatment options available to you. ICAN is a great place to start a career and and as always a great place to find specialized options for those diagnosed with cancer.
Since 2001 I cannot think of a more important organization doing the work they are doing on an international based right here in Arizona. I lost my first wife to Stage IV colon cancer, and Marcia Horn and her team were all over it trying to help and advise as to weather we were getting the right drugs for the treatment, and if we had the right docs and the right facility to begin with. Sadly, she died because her cancer was so bad, and spread so fast, yet ICAN was always there. My second wife was diagnosed with Stage I colon cancer in early 2011, so of course the first call we made was to ICAN to get advice as to where might be the best docs for her to see, as what what be going on with feedback we first had per the diagnosis. Five minutes later Marcia was on it, and we were on our way with sound support and advice. Science is science, and drugs are drugs which means somtimes things don't get as one would like; however, when you need an advocate-one that happens to be local for us since we live in Arizona-ICAN has been there ---G. Seitts, Scottsdale, AZ