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2017 Top-Rated Nonprofit

ICAN, International Cancer Advocacy Network

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Nonprofit Overview

Causes: Cancer, Health, Philanthropy, Private Independent Foundations, Technology

Mission: ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services, to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers. ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, molecular profiling services, and palliative care program services. ICAN has been profiled in Newsweek based on the still enduring complete remission of one of its breast cancer patients and in Pharmaceutical Executive Magazine (where ICAN was viewed as the exemplar of cancer patient advocacy--out of 5000 organizations to choose from). ICAN has also been featured in the Robert A. Nagourney, M.D.'s pivotal book "Outliving Cancer" and is featured in the upcoming biography of anticancer drug discoverer G. Robert Pettit, PhD (published in June 2015).

Results: When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 20 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues. On the metric of "Was there a stone left unturned in the patient's journey with cancer?", our ICAN patients and their families resoundingly answer "No."

Target demographics: All ages, all socioeconomic backgrounds.

Direct beneficiaries per year: more than 1000 patient/spouse advocate/care partner/public inquiry cases at ICAN.

Geographic areas served: While we are headquartered in Phoenix, we work throughout Arizona; across the U.S. and all U.S. territories; 54 countries worldwide

Programs: Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org

Community Stories

59 Stories from Volunteers, Donors & Supporters

Volunteer

Rating: 5

I am a member of the public and a sometime volunteer.
I was first introduced to ICAN through their musical events at which the great pianist, Ronald Jacobowitz, entranced and educated the audience. He not only played beautiful classical piano music but gave us background information on the composers their times and the musical developments i.e. early to late Beethoven. Through the people I met at these musical events I learned about the important and wonderful work ICAN is doing.
I have been able to give ICAN and Marcia Horn- ICAN's CEO- contacts to people in Phoenix and elsewhere in the world who have had need of a cancer advocate. They have all reported to me how helpful Marcia Horn has been to them and their families. In some cases they just felt full of despair and hopeless before they contacted ICAN. Marcia helped them see what they could do to help the cancer patient and find the best current medical care. ICAn is there locally and globally.

Volunteer

Rating: 5

Ican facilitates cancer patients , who are under stress, to find the treatment center that is doing the the most advanced work in their area of caner.
A friend in Boston called me. She was understandably very tense and stressed. Her grandson had just been diagnosed with cancer.

Her husband was an eye doctor but they were looking for cancer treatment expertise. ICAN , she later told me, was able to talk to them knowledgeably , with sympathy, empathy and care.

Volunteer

Rating: 5

ICAN has been very supportive to both patients and their families. A case that I personally witnessed was with a fellow T.B. who came to ICAN in his final days! Both he and his wife were in severely depressed. A friend told me that his wife was furious with the world and would not cooperate. Her husband T.B. was very impressed Marcia Horn and thankful for the help he received..Marcia met with the wife and after a few meetings she became very supportive. After T.B. died Marcia and his wife continued to meet and she has beome a volunteer! There just is not enough time in the day for Marcia, she even recruited me to participate in an ICAN project for which I need to make the time! With her example, I will. Eugene B. Shapiro.

1

Volunteer

Rating: 5

I fit many chairs as I am a retired physician who, in the course of volunteering for ICAN (International Cancer Advocacy Network), has also served on the Board and as Chairperson of its Medical Advisory Council.

Over the past 10 or so years I have developed great respect for the organization, especially its CEO, Marcia Horn. Her knowledge of the intricate, complicated aspects of cancer and dedication to assisting laste stage cancer patients acheiving the best hope of survival is unmatched. The one-on-one personal contact with cancer patients or family, and the review of their medical records and treatment is not dupicated anywhere that I know.

What ICAN needs is more money and more staffing so that it can expand serving more patients in great need of this vital service.

Volunteer

Rating: 5

My time as a Web Research Intern has been incredibly fulfilling. I've learned so much about cancer advocacy and even medical/scientific aspects of cancer simply by compiling research and literature for ICAN's resource project. Also, the communication between volunteers and the supervisors and executives is extremely efficient and quick. It's impressive!

Volunteer

Rating: 5

Volunteering for ICAN has been one of the richest and most rewarding experiences in my long career as a cancer researcher. I was searching for an organization that would allow me to give back to the cancer community in a meaningful manner. What can I say! Volunteering for ICAN has surpassed even my wildest imagination. Their passion, enthusiasm, and total commitment to helping people with cancer just encourages one to want to do more. The team leaders and off course, Marcia are some of the most dedicated people around. Communicating with them all has been such a pleasure. There is no stress, just encouragement and a willingness to listen to ideas. I endorse this organization wholeheartedly.

Volunteer

Rating: 5

I came across ICAN's website when I was looking for meaningful volunteer work to do before starting my graduate program. It has been amazing ever since and I can't imagine ever leaving! The assignments are fulfilling and the entire team is incredibly friendly and cooperative. Marcia (CEO+President) works day and night and is always willing to lend a hand. It's good to know that the effort I put into this role helps people who have no hope in finding help: late-stage cancer patients. I highly recommend volunteering for ICAN.

Krysten J.

Volunteer

Rating: 5

I thoroughly enjoy volunteering for ICAN. I learn a lot from my research and it feels wonderful to be contributing to such a great cause. The organization has excellent communication, which helps to keep me up to date and answer my questions quickly.

Volunteer

Rating: 5

I had the privilege of serving on the board for several years and got to see first hand the amazing service this Org provides and the niche it fills. i continue to be a strong supporter and donor. I never hesitate to let friends and family know of their fine work particularly if they are in need of counsel on their health situation. Several of my friends are alive today do the the careful, conscious advice provide by their amazing team. THere is tremendous need for a resource in later stage Cancer cases and i know of no other i could turn to that will provide true options like ICAN.

Volunteer

Rating: 5

Volunteering for ICAN these past two years has been a wonderful experience for me and I wouldn’t trade it for anything. As the Director of Research Team Leaders, I can say that I work with what I consider to be some of the finest and most dedicated virtual volunteers in the world. Each and every one of our volunteers works so hard to further help us obtain our truly worthy goal of prolonging our patient's life with a high quality of life .

Volunteer

Rating: 5

I have been working as a virtual volunteer with ICAN for a few months now and it has been a wonderful experience. Everyone I have worked with and communicated with has been kind, helpful, and professional. They are extremely well-organized, and everyone is clearly very committed to doing good work and helping cancer patients. The work I have been doing has involved researching journal articles online, which has been ideal work for me since I am a writer and editor who does a lot of internet research for my day job. Virtual volunteering for ICAN is great if you like flexible work that you can do in your free time.

Volunteer

Rating: 5

I have had the honor of working alongside and at the direction of Marcia Horn for some time now. It is simply not possible to be near her and to personally observe the hope and education that she gives those in desperate need, without wanting to help in any small way that one can.

It is not easy to understand Marcia. I have never been close to anyone that did not have a hidden agenda to meet some personal need(s). To graduate at the top of her class at Stanford Law School opened a multitude of doors for personal gain. Instead, Marcia appears to have given her complete life to serving in areas where she sees a great human need not being competently addressed by others. As one example of her selflessness, she is always available, day or night. Her energy level is almost super human.

Marcia’s personal knowledge surrounding cancer (including new developments) is astounding. She is so respected in the medical community that she is on a first name basis with many of the top cancer physicians in the United States.

The big gift that Marcia passes out freely to all in need is hope. I have observed families in despair do a total attitude turn-a-round after just one phone conversation with Marcia. Moreover, she combines being factual with compassion. Patients and families alike truly come to understand what the situation is and what the future could hold. Marcia does not practice medicine, but she is the best coach one could have. She is truly a five star human being.

Volunteer

Rating: 5

I first learned about ICAN while volunteering at an event in 2007. I asked ICAN to help my girlfriend who was diagnosed with Stage 4 breast cancer. They helped her get into a clinical trial, and she is here with us today because of it. I am now going through testing for leukemia and ICAN has been an invaluable resource in helping me find the right doctors.

Volunteer

Rating: 5

I first learned about ICAN in 2005 through a family friend. I was immediately interested in ICAN's mission to assist and empower cancer patients who may not be aware of their treatment options. I got in touch with Marcia, who allowed me to work as a volunteer. During my time as a volunteer, I have helped to recruit and manage interns for the organization, and I have assisted in planning fundraising events. I have also had personal experiences with ICAN, as some of my friends and family members have consulted ICAN with regard to their cancer treatment. ICAN's fundraisers are always impeccably executed. They are truly events to remember. More importantly, the quality and consistency of the assistance Marcia and her team provide to patients is unlike anything I have observed at any other non-profit organization. "Devoted" doesn't even begin to describe it. I cannot rate ICAN highly enough.

6

Volunteer

Rating: 5

ICAN is an amazing organization. You have the benefit of working from home and having a great resource in Marcia Horn available to you. Marcia makes certain to provide assignments that are rewarding (based on your interests) and that will help develop your skills. It was my privilege to have volunteered with ICAN and I encourage others to do the same!

9

Volunteer

Rating: 5

In November of 2008, my wife was battling late stage cervical cancer. We were at MD Andersen in Houston being evaluated for a clinical trial when we receieve a referral to Marcia Horn, CEO of ICAN. The person providing the referral told us we could contact Marcia "at any time of the day or night." We were very concerned about our options given the stage of my wife's cancer. We had more questions than we had answers and time was not on our side. Marcia was an incredible savior helping us navigate the plethora of information available while guiding us to an oncologist with unique expertise. Over the final 5 month's of my wife's life, I must have had two dozen or more phone conversations with Marcia. It was not unusual when checking my emails first thing in the morning to have emails from Marcia that were written and sent at 3am. Where can you find such dedication and advocacy? Sadly, my wife lost her battle April 2009. Of my many wishes, I wished we would have been referred to ICAN a year or two earlier. Maybe, just maybe I would still be married to the woman of my dreams.

8

Volunteer

Rating: 5

Since retiring, I have chosen to give back by helping non-profits upgrade their web presence. I started working with ICAN in March of 2009, and I have spent more time with ICAN than any other of the non-profits I work with. This is not because they are difficult to work with -- far from it! Marcia Horn and her cadre of dedicated staff are friendly and appreciative of the volunteer help they get. I spend the time I do with ICAN because of the unique work that they do. There is no other cancer-related organization that does what ICAN does, and I can think of no other organization as worthy of the time I can give them.

8

Volunteer

Rating: 5

Marcia Horn is the expert when you don't know where to go. She knows all the best oncologists and surgeons and is up to date on the latest trials. Her services are needed as she will be the one to help find a cure for this horrific disease.