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2017 Top-Rated Nonprofit

ICAN, International Cancer Advocacy Network

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Nonprofit Overview

Causes: Cancer, Health, Philanthropy, Private Independent Foundations, Technology

Mission: ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services, to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers. ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, molecular profiling services, and palliative care program services. ICAN has been profiled in Newsweek based on the still enduring complete remission of one of its breast cancer patients and in Pharmaceutical Executive Magazine (where ICAN was viewed as the exemplar of cancer patient advocacy--out of 5000 organizations to choose from). ICAN has also been featured in the Robert A. Nagourney, M.D.'s pivotal book "Outliving Cancer" and is featured in the upcoming biography of anticancer drug discoverer G. Robert Pettit, PhD (published in June 2015).

Results: When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 20 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues. On the metric of "Was there a stone left unturned in the patient's journey with cancer?", our ICAN patients and their families resoundingly answer "No."

Target demographics: All ages, all socioeconomic backgrounds.

Direct beneficiaries per year: more than 1000 patient/spouse advocate/care partner/public inquiry cases at ICAN.

Geographic areas served: While we are headquartered in Phoenix, we work throughout Arizona; across the U.S. and all U.S. territories; 54 countries worldwide

Programs: Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org

Community Stories

59 Stories from Volunteers, Donors & Supporters

Diana48

Volunteer

Rating: 5

It is a privilege to work Marcia Horn and the rest of the ICAN volunteer team. The work ICAN does is vital to cancer research and advocacy on a local and global scale, while bringing individualized case care to each patient. I am honored to know this organization exist for patients in need and running with the highest of integrity.

Volunteer

Rating: 5

It's been two and a half years since I have been working for ICAN as a research team leader. I got chance to work with some of the most talented and dedicated people of this organization, Ms Marcia Horn, the CEO and Ms. Regina Marie Klopfer, Director of Research Services. I communicate often with Ms. Regina for my work and she has been extremely helpful in fulfilling our needs. She is one of the most dedicated, passionate and hardworking staff at ICAN. Working at ICAN has been extremely rewarding as I learned so many qualities from our great mentors. It is a true pleasure to be a part this organization.

Volunteer

Rating: 5

ICAN is such an AMAZING nonprofit! I started volunteering at ICAN as a Web Research Intern, then transitioned to a Research Team Leader and now I'm volunteering directly with Regina Klopfer. The transitions between my different volunteer roles have been seamless and I feel as though I am truly part of the ICAN family. From the very beginning, Marcia has been so warm and inviting and Regina has helped me grow and succeed in my volunteer positions along the way. I am so appreciative for everything that ICAN does and could not be happier to be a part of this amazing team that is truly making a difference in people's lives!

Karen296

Volunteer

Rating: 5

I have worked with ICAN for many years, and have seen many lives saved and changed because of their help and dedication to patients. I have never seen anyone go above and beyond in so many ways to help, care and provide the help that ICAN does! Many lives would have been lost without them!!!!! Thank you ICAN for your dedication and services over the years!!!!!!!

Volunteer

Rating: 5

Nonprofit organizations in general are a great way to gather community service volunteer hours. However, ICAN is much more than your typical Nonprofit organization. Working with all the members of ICAN for over two years now, I can personally say that this organization, from top to bottom, is filled dedicated, compassionate individuals who share a common goal - improving cancer treatments worldwide.

Marcia, Regina and all the other members of ICAN have spent countless hours helping a tremendous amount of people battle and beat their cancers, and I could not give this company a stronger recommendation.

Cancer can be considered the disease of our new generation, and when I first started working for ICAN I was fascinated by it. Moreover, I was interested in the amount of research going into the discovery of new treatments and cures for this terrible illness. However, what was lost was the step in between research and the implementation of new treatments. While new breakthroughs are coming in at an enormously high rate, there is only so much that oncologists can keep up with and keep their patients informed about. This is what ICAN does, as we serve to educated both patients and physicians on the newest research in every field of cancer.

Volunteer

Rating: 5

The international cancer advocacy network is in need of more funding to continue to help more patients as that continues to be ICAN's top priority.

Volunteer

Rating: 5

ICAN is a fabulous organization to volunteer for. They are very caring and work hard for the patients. Everyone with ICAN is very organized and helpful and a pleasure to work with!

Volunteer

Rating: 5

Ican is a fabulous organization, with great people involved that TRULY care about every person that comes to them. I have referred them to a few friends, and all have been extremely satisfied with the help they received. I love volunteering for this amazing organization, as I know my help will truly help Ican, help others! I look forward to volunteering at their golf fundraiser in just a couple weeks!

Cathy62

Volunteer

Rating: 5

ICAN IS A WONDERFUL Non-profit that is truly an advocate for the patient and its family(s). ICAN is exhaustive in their quest to get doctors, trials, support and information to those in need. I believe they are more out of the box thinkers and believe people / patients should not be sent home to die; all avenues must be explored, conventionally and in non-conventional ways. The people I have sent to ICAN have be very appreciative of the respect ICAN gives to each individual knowing that everyone has a unique case and story to tell. This would be a well deserved recognition for this extraordinary non-profit.

Volunteer

Rating: 5

I have volunteered for this organization for at least 10 events they have out on. One thing that is so great about this nonprofit is that they help someone no matter what kind of sickness they have. They can get you in touch with the greatest doctors around the country. They have helped countless people with sicknesses. I have referred two cancer patients, and they couldn't have been happier with their experience with ICAN. They are amazing!!

Volunteer

Rating: 5

Both my wife and daughter developed cancer. Fortunately, my daughter - who had Ovarian Cancer over 11 years ago - is still alive and well. During her early cancer treatments ICAN was deeply involved and I believe helped save her life. My wife, unfortunately, did not survive her cancer, and though I had tried to have her see the physicians ICAN had suggested, and to follow a chemotherapy course strongly recommended by both ICAN and consultants, she refused.

I have been working with ICAN for over 10 years and believe that it is the most effective and well run cancer advocacy organization one will find in this country. The work they do is phenomenal

Ryanna S.

Volunteer

Rating: 5

I began as a Media Relations & Lobbying Volunteer in July 2010 & love it! My most interesting project was a legislative letter writing campaign urging Pennsylvania state legislators to approve equal insurance coverage for oral chemotherapy medicine. The majority of my projects have involved researching cancer articles & collecting media contact information. I studied public relations in college & am trying to get accepted to the Master's program at ASU West. I am in a wheelchair & can't handle a full-time job outside the home. Part-time, paid work in P.R. was too difficult to find. This was the best way to get my start in public relations. I am eternally grateful to Marcia Horn for giving me that chance!

Volunteer

Rating: 5

ICAN is truly an incredible organization. The services it provides are unparalleled by any organization of its kind, and the level of involvement, investment, and caring for individual patients has exceeded my greatest expectations for what I had hoped to become involved with. The services that ICAN provides for patients, in what is undoubtedly the most difficult time in their lives, and at no cost, provides such hope. Marcia Horn, CEO,tirelessly works all hours of the day, 8 days a week, to ensure that ICAN patients receive the best possible care to maximize their chances of survival. The volunteer experience is of equal match, as Marcia takes the time to ensure that the volunteers are engaged to their best potential and provides unique opportunities to gain involvement and experience. I can't recommend ICAN highly enough...if advocacy were an Olympic sport, ICAN would win the gold.

1

Volunteer

Rating: 5

The International Cancer Advocacy Network (ICAN) is at the forefront of cancer patient care. Led by its extraordinary President/CEO, Marcia Horn, and guided by outstanding board members and scientific advisors, ICAN works tirelessly with cancer patients to ensure that they get the best care possible. ICAN was an early advocate for personalized medicine, well before the current paradigm shift towards molecular profiling became an integral part of patient care. ICAN's work with late stage cancer patients is remarkable, helping each patient on an individual basis, holding their hands as they address difficult clinical decisions. I have volunteered with ICAN as a member of the biomarkers council, where we provide scientific expertise in the areas of molecular profiling. ICAN also works to implement and advocate for changes in public policy that benefit cancer patients. ICAN helped a friend of mine with melanoma, guiding him through international roadblocks and helping him to access top clinicians, and for that I am most grateful.

Volunteer

Rating: 5

ICAN is a wonderful organization to volunteer with. I learned a great deal and felt like I made a difference.

Volunteer

Rating: 5

I have been a volunteer with ICAN for almost 3 years. I started out in one our research positions and gradually worked my way from that into Research Team Leader position and finally into my current role as Director of Strategic Planning and Operations for Research Services. I have never volunteered with an organization where each and every one of the volunteers were so committed, so dedicated and so wonderful. I am definitely feel honored that I can be part of organization with such a worthy cause and truly wonderful volunteers.

Volunteer

Rating: 5

I joined ICAN with hopes of giving my time to something that really matters, and it definitely lived up to my expectations! Everyone that I came in contact with was enthusiastic about her/his work, and being a part of such a helpful and experienced team gave me great confidence. My Research Team Leader, Aniko, had everything one can possibly ask for in a team leader, and I am happy to have had the chance to work with her! Being with ICAN helped me to gain insight into the world of research and taught me a lot of useful skills for my future. Each member of ICAN is extremely knowledgeable about his/her area of expertise, and I am proud to say that I was a part of this!

Volunteer

Rating: 5

I am a Research Team Lead volunteer with ICAN's Lobular Breast Cancer Research Team. I really enjoy being able to contribute to a great cause like ICAN. It feels good to be able to donate a little time with an organization that has such a great impact. It has been one of the most rewarding volunteer experiences I have been engaged with!

1

Volunteer

Rating: 5

My first contact with the International Cancer Advocacy Network (ICAN) occurred in late December, 2011 in conjunction with a diagnosis of Stage 1 Breast Cancer. I needed information to make informed decisions about treatment options. Speaking with ICAN's resident angel, President and CEO Marcia Horn, I encountered someone who was professional, knowledgeable, dedicated, and compassionate. By the end of our phone call, I had a plan of action and hope for the future. I couldn't have asked for a better Christmas gift!

I am a Communications, Marketing, and Design professional who is very selective about the organizations with whom I volunteer because it is important to me to live my values in all aspects of my life. No one at ICAN asked me to volunteer. I offered my skills and time about a week after my initial contact with the organization because a follow-up call with Marcia made it exceeding clear that ICAN is a patient advocacy organization steeped in integrity and totally focused on helping each individual patient win his or her personal battle with cancer. The organization places a premium on providing each patient with the most up-to-date and accurate treatment and resource information for his or her particular cancer. They are sensitive to each patient's situation while also being supportive and encouraging.

So what's it like to be an ICAN volunteer? After two months and literally tons of hours, I can honestly state that being an ICAN volunteer is a totally positive experience! The organization has high standards and expectations as it strives for excellence in every aspect of its operations. Praise and encouragement are abundant. The staff, leadership, and even other volunteers go out of their way to let you know that you and your work are valued. Moreover, you have the satisfaction of knowing that your contributions are making a difference, not just in your particular area of service, but to the well-being and effectiveness of the entire organization and, by extension, to cancer patients residing all over the globe. Awesome responsibility and equally awesome personal rewards

Volunteer

Rating: 5

I am a Research Team Leader. I supervise (via email) all the work that several research interns do and review the end product before it is posted to the ICAN website.
I know that ICAN truly appreciates all of its volunteers! They are very kind and responsive to all their volunteers and they care deeply for the cancer patients they support and help. I have volunteered at numerous organizations over the years and this is one of the most integrity-filled and best-run nonprofit organizations that I have every worked with.
I am a certified project management professional and a CPA who has worked at top notch organizations in the business world so my expectations about quality and integrity are very high -- and I can say that ICAN meets and exceed all my expectations.
A few hours a week can make a big difference in the lives of the cancer patients that ICAN helps. All your efforts provide support to so many all over the world. The work can be done when it is convenient for you and ICAN works with you to provide the type of volunteer work that you desire. I would recommend this organization to anybody looking for a rewarding volunteer experience!