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Hannah's Hope Fund For GAN

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Nonprofit Overview

Causes: Health

Mission: HHF is the only organization in the world dedicated to finding a cure for Giant Axonal Neuropathy (GAN). GAN renders it's victims quadriplegics, dependent on feeding and breathing tubes and typically die in their mid 20's. Before HHF there was no hope and we are months away from stopping the progression

Results: we have done in 4 years and 3M what we were told originally would take 10 yrs and 10M. Have aligned with other Rare disease communities and will have efficacy in helping find a cure for many.

Target demographics: patients with GIANT AXONAL NEUROPATHY around the world. They are born with this and typically die in their mid 20's

Geographic areas served: the world

Programs: Collaborative team of scientist world wide Natural History Study is being conducted at Columbia U. Clinical Trial is to start in 2013 at UNC Chapel Hill

Community Stories

3 Stories from Volunteers, Donors & Supporters

General Member of the Public

Rating: 5

Great organization - so happy to participate in their efforts

Paula25

General Member of the Public

Rating: 5

I have heard about HHF from a friend and the good work they are doing. I support their efforts in finding a cure for this disease.

Don_12

General Member of the Public

Rating: 5

I share HHF's goals for finding a cure for GAN. I hope they find the funds needed to continue their efforts.