My beautiful 16 year old daughter, Faith, was diagnosed in September 2012 with Idiopathic Gastroparesis. We had never heard of this disease before, and to put it bluntly, while I was relieved that the doctors had finally could explain why my daughter had been so ill for several long months, I was also petrified as to what this diagnosis meant for my daughter. I came across the G-PACT website when I was doing research on my daughter's condition while waiting the two weeks it took between getting the diagnosis and actually getting an appointment to see her pediatric GI specialist. Many of the sites I found provided generic information about Gastroparesis, but the G-PACT site is different. As I looked at the information on this site, I knew I had found an organization that cared about my daughter and other people suffering from severe chronic digestive illnesses. Not only is G-PACT actively working to raise funds for research into diseases like Gastroparesis, it also provides support groups for and pertinent information about these disease to people who suffer from them. My daughter has been able to connect with other young people who also have Gastroparesis which has been a blessing because it has helped her realize that she is not alone. It is wonderful for her to be able to share her experiences with others who understand what she is going through. I have learned more about how to meet the needs of my daughter through the information provided by G-PACT than I have through any other source, including her doctor. We live in a state where we have no medical professionals who are specialized in treating Gastroparesis, so this information has been a life saver. I have just signed up to be a volunteer for G-PACT because I truly believe in and appreciate the work they do.
I am Jodi, from Delaware. I was diagnosed with Gastroporesis this April (2017) after one year of pain and suffering. Prior to this diagnosis, early last year, I was diagnosed with Gastritis. I also suffer from IBS-C (for about 2 years), but most of my life had IBS-D. I also have GERD, Barrett's Esophagus, Hiatal Hernia, phew. So my GI tract has been acting up for some time now. IBS-C causes serious along with the Gastroporesis.
I suffer daily from Gastroporesis, can barely eat 2 meals/day, and drink Glucerna as a supplement. I spend most of the day on the sofa, with a heating pad to cover my abdominal area. If you haven't tried one, the heating pad helps ease the pain. Unfortunately, I have Tardive Dyskinesia, which is the most serious side effect of the Gastroporesis medication, so unable to take it.
I have read about Gastroporesis, but am interested in learning how other folks manage their disease. I would like to speak to others about the ins and outs of daily life.
Last week, I had Botox injected in the Pylori area (where stomach ends, before dumping into intestines. So if you have questons, please ask.
God bless you all.
I'm 31 April Leone diagnosed this year with extreme case of Gasteroperises I go through 2 weeks of nausea a month nothing works on reglan don know how to live the rest of my life like this have no experience and need help group or support please 7276003804
This organization has given me so much information and hope. I have a 5 year old that has suffered for a few years, and I have learned more here than with any doctor.
Gpact has given this momma and her teen daughter a better understanding of what was to be expected so much more then her drs prepared us for ..we are still new to the gastroparesis world ..but with Gpact in my pocket of resources I'm not as worried or over whelmed with dealing with this disorder .. now if only we can get the world to understand we would be golden .. anyone who ever hasld questions that I couldn't answer I send them to this group.. school nurse and teachers as well as family members are all one the same page ..I couldn't ask for better support we love Gpact ♡♡
g-pact is an amazing organization and an indispensable resource for info about treatment options and the latest research.
So much useful information. This site has been a God send through this entire nightmare. I love the pamphlets I received as well. Big thank you to everyone involved!
This fabulous group has unselfishly helped so many; from information and support for those with the condition (s) to raising awareness so even more can be helped.
Great organization that has helped my wife so much. She can get answers to her questions almost anytime during the day and night. They really work hard to help others.
I was diagnosed with Gastroparesis nearly 2 years ago after 5 years of severe illness. This is a disease that can make you feel very alone because it is rare, and there isn't a lot of awareness out there for it. My sister did some research online and found G-PACT for me. They've been a lifesaver! There's so much good information available through this group for people suffering from this disease, and they're constantly working to raise awareness for it, as well as working to encourage the medical community to find more effective treatments. I'm involved with the support group online, and it's been so good for me. There are so many compassionate people there who are willing to share information about the disease. It's gone a long way toward helping me feel less isolated. I've made friends through G-PACT's support group who will be my friends for life!
my mom has gastroparesis and i am boarderline. this page helps me to keep up with the news and events regarding this horrible disorder. it also helps to know that we are not in this alone. thank you to the volunteers that post information and fight for us.
I have been diagnosed with gastropareis since 2007. My freshmen year of college. when i kept throwing up and the diarehia i didnt know what was happening to me. I ended up going to the hospital the Dr. there thought I was anerexic. I tried to explain to him i cant keep my food down. They just gave a prev pav to take 14 days. I was scared and went from 148 pounds to 98 pounds in a month or two. I really thought I was going to die. But someone preferred me to a GI Dr. they gave me the test where u eat the scramble eggs and have to lay down for two hours so they can watch how long it takes to digest your food. Right of the bat after taking the test getting the results he knew it was gastroparesis. i was happy that they found out what it was. i would think to myself i will be able to live and eat and get strong again. at the same time my boyfriend and i were starting to date. needless to say even though i threw up my food on our first valentines day and many other days. he was always there beside me giving me support and comfort. We just made it to our six year anniversary this year on Oct. 31 2012.If it wasnt for him i would have gone crazy. My eating improved after i took reglan for a week before i had blurry vision side effect, so they had to take me off of it. and on motillium. for five and half years i was doing good till Sept. 11, 2012 I started to have severe stomach pain.mit was Gastroparesis acting up i went back to my same dr. again and now im on the gastroparesis diet it has helped a lot. the pain eased up. i have a follow up appointment Nov 20 th. the only things i fear are: hoe long will this diet help me, will i get it even more severe than what it is now, not knowing if i have to get surgery or not, feeding tubes, stomach pacer, im not sure but i have asked my boyfriend is still gonna stay with me even though i have a chronic illness, he said, "yes i will be with you like i did at the biggening when it first started to the end..." so i hope i have a long life and that one day there will be better ways of treating this illness. this organization helped me in dealing with the sadness i had when i found out that this illness doesnt go away, made me laugh, suggestions on how other people who have the same thing i have deal with their own troubles of eating, change of diet, dresssing for comfort, and better ways of dealing with the symptoms of gastroparesis. I would like to thank them in helping me understand and deal with this chronic illness.
I have idiopathic gastroparesis. GPACT gives people like me a voice. They work so hard to advocate for people with this condition. I am always excited to see what project they are doing next. And they inspire me to get involved. GPACT is working hard to spread awareness of this condition so that we can have better treatment options and one day a cure.
As a family member of a person with GP, having an organization available to provide valuable information and support is much needed. G-PACT provides what is needed in an easy to understand manner.
My teenage daughter has gastroparesis...we'd never heard of the condition before her diagnosis. This site has been such a wealth of information and positive support for us.
g-pact has been an absolute blessing to me - i have had gp for 19 years now and without the group i would never have even known others suffered the same disease. i didnt know there were treatment options had no idea about gp diets. medications, surgeries etc - so informative and incredibly supportive . I cope day to day because i can access gpact at any time and i consider it extremely vauable alongside my medical carers
G-Pact is so informative and is an avenue where I can have support with others that are diagnosed with Gastroparesis, like me. Since Gastroparesis is not a well known illness, I do not know anyone personally in my area. G-Pact puts me in contact with others with motility problems for support and guidance.
This is a wonderful organization for those suffering with Gastroparesis. They truly care about everyone and are trying their best to raise awareness and offer support.
At the age of 16 my daughter was diagnosed with idiopathic gastroparesis. Gastroparesis in not rare but it is relatively unheard of for some reason and there is very little the medical community can do for GP patients and there is very little research being done. Armed with little information from the medical community I had to search out to find my own, something - anything, to make my daughter's life tolerable. After dropping from 116 pounds to 86 pounds in a little over 2 weeks I was desperate and went online in search of some hope in a seemingly hopeless situation, this is when I found G-PACT. Without this wonderful non-profit and their community of GP patients my daughter would not have near the quality of life that she has today. Everything from tips and tricks, current news to shoulders to cry on, it has given us more to work with than any Doctor, Specialist, Nutritionist of internet search engine ever could.