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2016 Top-Rated Nonprofit

Gastroparesis Patient Association for Cures and Treatments, Inc.

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Nonprofit Overview

Causes: Digestive Diseases & Disorders, Digestive Diseases & Disorders Research, Health, Public Health

Mission: G-PACT was started by a group of people nationwide who are suffering from Gastroparesis. It is not a very well known condition so therefore patients are often misdiagnosed for years and do not respond well to treatment for other disorders.G-PACT is dedicated to increasing awareness of Gastroparesis among the medical profession, patients, and general population. We provide multiple educational resources and coping mechanisms to the public at no cost.

Results: We have over 12.500 Facebook fans from all 50 states and 50 different countries. We have some of the leading GP physicians on our medical advisory board. We are also conducting the first IRB approved international research study into Gastroparesis. We founded DTP awareness month in August 2010 which has become an international event. We are very highly regarded among the leading GP doctors in the country and are the go-to organization for these conditions. We advocate on Capitol Hill every year, but also expand and pursue different types of treatment options outside of the FDA.

Target demographics: individuals suffering from digestive tract paralysis, caregivers, general population

Direct beneficiaries per year: 12,000 patients, caregivers, physicians

Geographic areas served: The international community with anyone who deals with digestive tract paralysis, including gastroparesis, CIPO, colonic inertia

Programs: Free educational booklets, accessibility cards to use at restaurants, certain venues, and restrooms, support groups online and 1-800 support line, cookbooks for Gastroparesis, unprecedented international IRB approved research study, one-on-one interaction with volunteers who deal with it daily

Community Stories

28 Stories from Volunteers, Donors & Supporters

4 Anna26

Client Served

Rating: 5

My beautiful 16 year old daughter, Faith, was diagnosed in September 2012 with Idiopathic Gastroparesis. We had never heard of this disease before, and to put it bluntly, while I was relieved that the doctors had finally could explain why my daughter had been so ill for several long months, I was also petrified as to what this diagnosis meant for my daughter. I came across the G-PACT website when I was doing research on my daughter's condition while waiting the two weeks it took between getting the diagnosis and actually getting an appointment to see her pediatric GI specialist. Many of the sites I found provided generic information about Gastroparesis, but the G-PACT site is different. As I looked at the information on this site, I knew I had found an organization that cared about my daughter and other people suffering from severe chronic digestive illnesses. Not only is G-PACT actively working to raise funds for research into diseases like Gastroparesis, it also provides support groups for and pertinent information about these disease to people who suffer from them. My daughter has been able to connect with other young people who also have Gastroparesis which has been a blessing because it has helped her realize that she is not alone. It is wonderful for her to be able to share her experiences with others who understand what she is going through. I have learned more about how to meet the needs of my daughter through the information provided by G-PACT than I have through any other source, including her doctor. We live in a state where we have no medical professionals who are specialized in treating Gastroparesis, so this information has been a life saver. I have just signed up to be a volunteer for G-PACT because I truly believe in and appreciate the work they do.

Client Served

Rating: 5

This organization has been a great help to my wife. It has given her a lot of resources to refer to and provided a lot of support.

Client Served

Rating: 5

Great group of volunteers and they really care about us patients! They have done so much for the gastroparesis community over the years.

Client Served

Rating: 5

G-PACT is always available to help patients understand their illness. Plus, the do a great job of increasing awareness. They advocate for us all daily and many of us would be lost without them.

2

Client Served

Rating: 5

Awesome organization. This is an organization which is fully staffed by volunteers so every single penny goes directly back to patients in some way. They are leading the fight against Gastroparesis, chronic intestinal pseudo-obstruction, and colonic inertia. They are doing the first and only international IRB approved research study into GP. The volunteers are available 7 days a week and genuinely care and understand my needs because they all have it themselves. They know exactly what patients need and work to gear all programs to meet those needs. The volunteers are very personable and take time with ME, even though they have their own serious health issues. They have so many totally free resources, provide a wealth of the latest info, founded DTP awareness month, and have a huge international presence. They just get me. They understand from a first-hand perspective, not just head knowledge and facts. They know with heart and they show it. They are very responsive to me and do as much as they can to ensure I get as much support and info as possible. Their integrity is so high and they are open and honest about everything. They work as hard, or harder, than people who get paid. It's a passion for them...not a job. I've been a fan since almost the beginning, and they have grown so much! I fully trust them with my privacy and their expertise in this area!

5 Phyllis26

Client Served

Rating: 5

This organization has helped so many, including myself. They have taught me so much about Gastroparesis. I thank God for them.

4

Client Served

Rating: 5

G-PACT provided more information about my disease than any of my doctors have. I learned about medical options, joined their support forums, and learned tips for caring for my feeding tubes, traveling with medical equipment, and navigating life with a serious and chronic illness.

3 Elana N.

Client Served

Rating: 5

Incredible foundation that raises awareness for those who cannot seek the attention they deserve. These are terrible disease which need cures today! No child or adult should starve to find a cure! Thank you G-Pact for raising awareness!

3

Client Served

Rating: 5

G-Pact is a great organization for patients. I have full Digestive Tract Paralysis. As I have gone through varying stages of this disease (diagnosed in 2004...sick since 2000), G-Pact has been there with dietary recommendations, research, resources to become familiar with medical terminology, information about clinical trials and medications, and much more. They are also there when you just need someone to listen or a little pep talk. Thanks G-Pact!!!

2

Client Served

Rating: 5

This is an awesome organization. I was diagosed in 2002 and everyone has been so incredibly helpful; from support and adivice to petitioning my insurance company to cover a surgery for me. Everyone is wonderful!!

2

Client Served

Rating: 5

This organization has helped me learn about my disease and has given me resources that I have found nowhere else.

Debbie138

Client Served

Rating: 5

I was diagnosed with Gastroparesis in 2010. As there is little to no help locally, I felt completely alone and isolated from everyone around me. Absolutely no one in the medical field where I live had been able to offer advise as to how to live with this most debilitating condition. I spent three years in the dark, feeling more and more helpless and alone.
Thank God I stumbled upon G-Pact support group! They have been a tremendous source of help and support to me. I truly thought I was going crazy until I found others going through the same thing! G-pact was the first to give me valuable information on diet, suggestions on pain relief and so helpful in emotional support as well.
They have my undying appreciation!
Thank you,
Debra Montefesco

Jimmysheila C.

Client Served

Rating: 5

I have been sick since Nov. Of 2010. I first found about G-pact by watching you tube. Carissa, the founder of G-pact had made for college. Not only did I learn a lot I was able to see and hear my motility doctor do an interview for Carissa and G-pact. Dr.Kenneth Koch is one of the most sought after motility doctors in the world. Just the fact he did this very happy important video for Carissa and G-pact shows who he is very aware that the is so little education and support for our community. Even before Facebook came about G-pact was reaching those in desperate need of education and support. I remember coming home from my doctors appointment and got the diagnosis of gastroparesis. My doctor then just put me on Reglan and told me to eat 6 small meals a day. But once I looked it up on the internet I learned the sad and scary truth. I was new to all this and G-pact was the first place I found online that did not scare me to death but helped explain my new illness, the best tests, a list if doctors, a support group that was managed by others like myself who suffered and I understood. And now with this great PSA video, the message can reach even more, if only we could get more funding and support. Gastroparesis can be a very isolating illness. Food is the center of every family get together, every holiday, any celebration....food is a major part of the fun. But once food is removed from your life you just can really feel the magnitude if that isolation. The looks you get at a restaurant when everyone else orders food and you can't cause you will get sick and be doubled over in pain. You even stop receiving your invitations. G-pact is a tight bunch. We send out cards and gifts to one another. Even when we are so sick and even when our volunteers who direct these outreach are very I'll, the outreach of love and support touches every need possible. G-pact reaches out to families who have lost a loved one to some form of digestive tract paralysis. They have a phone line that is a toll free number that gives us a chance to actually hear a kind voice on the other end of the line. Online support groups are so important to those like myself that will be on bed rest for awhile or in the hospital fighting for our lives. G-pact has saved lives many times over. They don't spend money on having these huge fund raisers to keep them up and running, unlike many non profits. They keep it fun and despite those volunteers being ill
themselves, tireless hours are donated with no complaint. All to spread the word so more research will be funded, so people will not feel alone and even is used to educate those in the medical field.
Anyway we can promote G-pact and save a life is priceless. Help us to spread the word by adding G-pact to your important list. Once you learn more about digestive tract paralysis and how it affects newborns and seniors. It is a very painful slow starvation. Help us spread the word and educate those who suffer like myself and desperately educate the medical field that gas not always been very kind and to us. People either reach out a hand for help or will run away from what they do not understand.

Kathleen74

Client Served

Rating: 5

I was diagnosed with gastroparesis about 3 years ago after being sick and I diagnosed for over a year. G-Pact had a wealth of information for me with my new diagnosis. The support system and information they provide through their website and online groups has been amazing. I have learned so much from them. Thank you G-Pact for the resources, support and encouragement you provide.

Christine119

Client Served

Rating: 5

GPACT is a great organization serving a community that needs a voice!

Client Served

Rating: 5

G-PACT is currently small but growing. Which is good considering it's the only voice for all of us who suffer from debillitating gastroparesis and need support and advocacy more than ever. Gastroparesis is a very serious disease that demands awareness and research, sadly we do not get it. Luckily G-PACT exists for those of us suffering.

Client Served

Rating: 5

I love being able to have somewhere to go to look for information about the rare disease that I have. G-PACT is helping by getting information out and by getting those of us with digestive diseases to work together to have the government acknowledge these diseases and help find a cure!

Jeannie2

Client Served

Rating: 5

I came to G-Pact through a friend about two years ago and joined the group. I was welcomed and made to feel like a part of this online family. I received information, support and compassion that I so desperately needed at that time and then no longer felt alone. I have made some amazing friends through G-Pact and I'm sure some will be lifelong friends. Being a part of something bigger when cHronic illness can make you feel so small and alone is just priceless. I am thankful.

Sheila22

Client Served

Rating: 5

I learned so much from the g-pact you tube videos produced by the founder Carrisa. When I learned about gastroparesis there was no facebook. But thanks to g-pact and Carrisa I was able to educate myself and even my family dr. And without the facebook g-pact group I would be so lost as to what to do and how to get treated. G-pact is an awesome group of volunteers that are often very sick themselves yet continue to put out a great support group for us and our dr.'s to follow.

Freda S.

Client Served

Rating: 5

I have never met a doctor that knows very much if any about this disease. After I was diagnosed with gastroparesis I was led to G-pact. They have been so informative for me. Many days I don't know what I would have done without them. I have suffered nearly 30 years with this disease and through G-pact I received more information than I knew what to do with. Thank you G-pact,

Client Served

Rating: 5

I have worked for a non-profit for going on 5 years and have worked for two non-profits prior to that. My passion is making a difference in the community. I have never seen a non-profit work as hard as G-pact though. I have Gastroparesis and it truly is a scary disease. Gastropareisis is lacking research from science, doctors and approval of any medications from the FDA. Without the work of G-pact patients like me would be completely alone in our fight to survive this horrible disease. G-pact thank you for all the hard work you do each day.