My beautiful 16 year old daughter, Faith, was diagnosed in September 2012 with Idiopathic Gastroparesis. We had never heard of this disease before, and to put it bluntly, while I was relieved that the doctors had finally could explain why my daughter had been so ill for
Mission: G-PACT was started by a group of people nationwide who are suffering from Gastroparesis. It is not a very well known condition so therefore patients are often misdiagnosed for years and do not respond well to treatment for other disorders.G-PACT is dedicated to increasing awareness of Gastroparesis among the medical profession, patients, and general population. We provide multiple educational resources and coping mechanisms to the public at no cost.
Results: We have over 12.500 Facebook fans from all 50 states and 50 different countries. We have some of the leading GP physicians on our medical advisory board. We are also conducting the first IRB approved international research study into Gastroparesis. We founded DTP awareness month in August 2010 which has become an international event. We are very highly regarded among the leading GP doctors in the country and are the go-to organization for these conditions. We advocate on Capitol Hill every year, but also expand and pursue different types of treatment options outside of the FDA.
Target demographics: individuals suffering from digestive tract paralysis, caregivers, general population
Direct beneficiaries per year: 12,000 patients, caregivers, physicians
Geographic areas served: The international community with anyone who deals with digestive tract paralysis, including gastroparesis, CIPO, colonic inertia
Programs: Free educational booklets, accessibility cards to use at restaurants, certain venues, and restrooms, support groups online and 1-800 support line, cookbooks for Gastroparesis, unprecedented international IRB approved research study, one-on-one interaction with volunteers who deal with it daily
My beautiful 16 year old daughter, Faith, was diagnosed in September 2012 with Idiopathic Gastroparesis. We had never heard of this disease before, and to put it bluntly, while I was relieved that the doctors had finally could explain why my daughter had been so ill for several long months, I was also petrified as to what this diagnosis meant for my daughter. I came across the G-PACT website when I was doing research on my daughter's condition while waiting the two weeks it took between getting the diagnosis and actually getting an appointment to see her pediatric GI specialist. Many of the sites I found provided generic information about Gastroparesis, but the G-PACT site is different. As I looked at the information on this site, I knew I had found an organization that cared about my daughter and other people suffering from severe chronic digestive illnesses. Not only is G-PACT actively working to raise funds for research into diseases like Gastroparesis, it also provides support groups for and pertinent information about these disease to people who suffer from them. My daughter has been able to connect with other young people who also have Gastroparesis which has been a blessing because it has helped her realize that she is not alone. It is wonderful for her to be able to share her experiences with others who understand what she is going through. I have learned more about how to meet the needs of my daughter through the information provided by G-PACT than I have through any other source, including her doctor. We live in a state where we have no medical professionals who are specialized in treating Gastroparesis, so this information has been a life saver. I have just signed up to be a volunteer for G-PACT because I truly believe in and appreciate the work they do.