My beautiful 16 year old daughter, Faith, was diagnosed in September 2012 with Idiopathic Gastroparesis. We had never heard of this disease before, and to put it bluntly, while I was relieved that the doctors had finally could explain why my daughter had been so ill for several long months, I was also petrified as to what this diagnosis meant for my daughter. I came across the G-PACT website when I was doing research on my daughter's condition while waiting the two weeks it took between getting the diagnosis and actually getting an appointment to see her pediatric GI specialist. Many of the sites I found provided generic information about Gastroparesis, but the G-PACT site is different. As I looked at the information on this site, I knew I had found an organization that cared about my daughter and other people suffering from severe chronic digestive illnesses. Not only is G-PACT actively working to raise funds for research into diseases like Gastroparesis, it also provides support groups for and pertinent information about these disease to people who suffer from them. My daughter has been able to connect with other young people who also have Gastroparesis which has been a blessing because it has helped her realize that she is not alone. It is wonderful for her to be able to share her experiences with others who understand what she is going through. I have learned more about how to meet the needs of my daughter through the information provided by G-PACT than I have through any other source, including her doctor. We live in a state where we have no medical professionals who are specialized in treating Gastroparesis, so this information has been a life saver. I have just signed up to be a volunteer for G-PACT because I truly believe in and appreciate the work they do.
I have volunteered for this organization and was disappointed of the misappropriation of money being used. Good for information, but I would never ever donate my hard earned money to them.
This comment was made by a disgruntled volunteer who was let go in 2013 after only three months. She never had access to any financial or operational information. G–PACT is a GuideStar Gold participant, which means we are committed to transparency and annually update our financial records through GuideStar. You can view our records on GuideStar or email us at firstname.lastname@example.org with any specific questions.
I have been helped by these people for seven years and have helped as a volunteer for a couple years.
Great group of people who work hard every day to help others. I am proud to be affiliated with this organization.
very helpful organization. they are helping us gastroparesis patients
I was diagnosed with Gastroparesis about 2.5 years ago after about 1.5 years of symptoms. I had seen a GI Dr several times and my pcp ordered a gastric emptying test as one last attempt to figure out why I was sick all of the time. The results showed delayed emptying. The results of this test have led me down a long, rough road of trying to manage my symptoms day to day (nausea, difficulty going to the bathroom, fatigue..) and making constant adjustments as I learn more about what my body needs. The cause for my Gastroparesis is currently idiopathic (unknown).
I found G-PACT right after my diagnosis and received materials in the mail that gave helpful information about Gastroparesis. My frustrations for lack of knowledge and medical options by the medical field has made me want to volunteer and try to help others who are struggling and those who are newly diagnosed. I can only hope that one day medical professional will have the resources to treat Gastroparesis and hopefully one day there will be a cure! The volunteers are great and all struggle with health issues themselves, but all share the common goal of advocacy and working towards a cure. G-PACT has a lot of wonderful support groups where people can support and encourage one another, and many other programs to support people with digestive tract paralysis, as well as grief programs for those that lost their lives.
when I first was diagnosed with gastroparesis, I had no one to turn to for support and help understanding my Condition. i googled gastroparesis and found GPACT. i met many who i could identify with. I found and made friends with many people with the same condition who were able to help me during the beginning. support is critical and GPACT provides support, education, and encouragement along with networking resources. I would be lost with out it. Now I'm a volunteer assisting others in creating hands on support groups across the USA. this group needs to continue to be in active status there is still so much we have to do. Thank You GPACT for making a difference in my life..
I suffer daily with gastroparesis and if it weren't for G-Pact I don't know how I would get through. A great organization.
G-PACT I have Gastroparesis and this non- profit org has given me so much to see and learn how to have hope for my survival to a dreadful disability education, links,clinical trials support groups, participation to helping others! Thats life oppurtunity that I was so in need to live, Awareness to a condition like no other! Respectful to those lost ! Family comaderity! Kind to all .,. Thank you G-Pact
I came to know G-PACT through a YouTube video I saw. I had recently been diagnosed with Gastroparesis at that time. As for most people with GP, I began exploring social media to find others who also suffer from GP. I saw all the wonderful things G-PACT did for everyone suffering from Digestive tract paralysis. G-PACT is ran by all passionate volunteers who spread the word and help others with Gastroparesis. G-PACT has given me and so many others a voice and a place to go for help and support for such a rare disease.
G-PACT has changed not only my life but the life of many people. Being isolated with a "rare" condition that more than 5 million Americans suffer, no doctor could ever give better information that the one provided by G-PACT. A part from amazing guidelines and resources they provide a social network between those who we suffer this daily chronic pain and malnutrition. Please consider G-PACT as one of the best of the best.