My beautiful 16 year old daughter, Faith, was diagnosed in September 2012 with Idiopathic Gastroparesis. We had never heard of this disease before, and to put it bluntly, while I was relieved that the doctors had finally could explain why my daughter had been so ill for several long months, I was also petrified as to what this diagnosis meant for my daughter. I came across the G-PACT website when I was doing research on my daughter's condition while waiting the two weeks it took between getting the diagnosis and actually getting an appointment to see her pediatric GI specialist. Many of the sites I found provided generic information about Gastroparesis, but the G-PACT site is different. As I looked at the information on this site, I knew I had found an organization that cared about my daughter and other people suffering from severe chronic digestive illnesses. Not only is G-PACT actively working to raise funds for research into diseases like Gastroparesis, it also provides support groups for and pertinent information about these disease to people who suffer from them. My daughter has been able to connect with other young people who also have Gastroparesis which has been a blessing because it has helped her realize that she is not alone. It is wonderful for her to be able to share her experiences with others who understand what she is going through. I have learned more about how to meet the needs of my daughter through the information provided by G-PACT than I have through any other source, including her doctor. We live in a state where we have no medical professionals who are specialized in treating Gastroparesis, so this information has been a life saver. I have just signed up to be a volunteer for G-PACT because I truly believe in and appreciate the work they do.
I have volunteered for this organization and was disappointed of the misappropriation of money being used. Good for information, but I would never ever donate my hard earned money to them.
This comment was made by a disgruntled volunteer who was let go in 2013 after only three months. She never had access to any financial or operational information. G–PACT is a GuideStar Gold participant, which means we are committed to transparency and annually update our financial records through GuideStar. You can view our records on GuideStar or email us at firstname.lastname@example.org with any specific questions.
I have been helped by these people for seven years and have helped as a volunteer for a couple years.
Great group of people who work hard every day to help others. I am proud to be affiliated with this organization.
very helpful organization. they are helping us gastroparesis patients
I was diagnosed with Gastroparesis about 2.5 years ago after about 1.5 years of symptoms. I had seen a GI Dr several times and my pcp ordered a gastric emptying test as one last attempt to figure out why I was sick all of the time. The results showed delayed emptying. The results of this test have led me down a long, rough road of trying to manage my symptoms day to day (nausea, difficulty going to the bathroom, fatigue..) and making constant adjustments as I learn more about what my body needs. The cause for my Gastroparesis is currently idiopathic (unknown).
I found G-PACT right after my diagnosis and received materials in the mail that gave helpful information about Gastroparesis. My frustrations for lack of knowledge and medical options by the medical field has made me want to volunteer and try to help others who are struggling and those who are newly diagnosed. I can only hope that one day medical professional will have the resources to treat Gastroparesis and hopefully one day there will be a cure! The volunteers are great and all struggle with health issues themselves, but all share the common goal of advocacy and working towards a cure. G-PACT has a lot of wonderful support groups where people can support and encourage one another, and many other programs to support people with digestive tract paralysis, as well as grief programs for those that lost their lives.
when I first was diagnosed with gastroparesis, I had no one to turn to for support and help understanding my Condition. i googled gastroparesis and found GPACT. i met many who i could identify with. I found and made friends with many people with the same condition who were able to help me during the beginning. support is critical and GPACT provides support, education, and encouragement along with networking resources. I would be lost with out it. Now I'm a volunteer assisting others in creating hands on support groups across the USA. this group needs to continue to be in active status there is still so much we have to do. Thank You GPACT for making a difference in my life..
I suffer daily with gastroparesis and if it weren't for G-Pact I don't know how I would get through. A great organization.
G-PACT I have Gastroparesis and this non- profit org has given me so much to see and learn how to have hope for my survival to a dreadful disability education, links,clinical trials support groups, participation to helping others! Thats life oppurtunity that I was so in need to live, Awareness to a condition like no other! Respectful to those lost ! Family comaderity! Kind to all .,. Thank you G-Pact
I came to know G-PACT through a YouTube video I saw. I had recently been diagnosed with Gastroparesis at that time. As for most people with GP, I began exploring social media to find others who also suffer from GP. I saw all the wonderful things G-PACT did for everyone suffering from Digestive tract paralysis. G-PACT is ran by all passionate volunteers who spread the word and help others with Gastroparesis. G-PACT has given me and so many others a voice and a place to go for help and support for such a rare disease.
G-PACT has changed not only my life but the life of many people. Being isolated with a "rare" condition that more than 5 million Americans suffer, no doctor could ever give better information that the one provided by G-PACT. A part from amazing guidelines and resources they provide a social network between those who we suffer this daily chronic pain and malnutrition. Please consider G-PACT as one of the best of the best.
Prior to finding G-PACT, the only person I knew with Gastroparesis was my grandma. For over 20 years, it was just my grandma and I facing a random faceless disease. We didn't even know the diseases name. Once I received the formal diagnosis of Gastroparesis, I went on-line where I found G-PACT. I found a support group "G-PACT Middlers" where for the first time I was able to interact with others about GP. Words cannot express what it felt like to no longer feel stranded on an island. Through G-PACT, I have learned how to handle various symptoms, how to educate others, and how to laugh in spite of it all. I really don't know how I was surviving without all of my GP brothers & sisters that I found through G-PACT!
REVIEW OF G-PACT My daughter got Gastroparesis the summer after 9th grade. Everyone assumed that with a diagnosis there was a cure- there is not. We went through years of Dr's visits, testing that lead to more diagnoses but no more help, feeding tudes, surgeries, and years of struggling to eat, throwing up, chronic constipation, lack of energy, chronic pain, depression, and more. This was my daughter's high school years. At the time, there was virtually no information on this illness and our physicians at one of the best children's hospitals in the world offered little to us but more feeding tubes and surgeries. G-Pact was a source of information and most importantly a way to connect with other people who were suffering from the same illness. My daughter was one of the lucky ones! Her Gastroparesis has resolved, for now. Although she suffers from another conidtion that challenges her on a daily basis, she is leading a relatively normal life. That is not the case for thousands of Gastroperesis and Chronic Intestinal pseudo obstruction victims who cannot lead a normal life, have a meal, go to the movies, or even get out of bed. At its worst, this is a death sentence. So I continue to volunteer with this organization which is run solely by sick people and their families who continue to raise awareness and reach those who have no other lifeline in the hope that some day no other people will have to suffer with this terrible, gravely debilitating and relatively unknown illness.
I first found G-PACT via a friend and was directed to their Yahoo! Chat Group. I had been recently diagnosed with Gastroparesis and could barely pronounce the name let alone comprehend what was going on with my body. From there, in those early years I moved with them to Facebook and the information, support, restaurant cards and other information has continued to help me face my illness with courage, dignity and grace. I later developed Chronic Intestinal Pseudo-Obstruction in addition to esophageal dysmotility and through the journey I have had G-PACT and access to all of the support groups and open door policy for asking questions. I later joined as a volunteer so that I could find a way to "give back" if only a small amount of what the organization had given so freely to me. Also, the gift of information and support they gave to me in the early days and during this journey I wanted to make sure continued to the many that are newly diagnosed. Medical Awareness and Research is severely needed for GP/CIP and other digestive motility disorders (DTP) but G-PACT helps to fill a gap otherwise left open by the medical community. Does not matter the age, race, religion, or any other factors, if you have a digestive motility disorder or are a family member, friend or the care provider of someone diagnosed, G-PACT is there.
Back in 2001, when I was finally diagnosed with gastroparesis after years of suffering, I found G-PACT. They knew more about this disease than most physicians and helped me with choosing the best options for treatment and medication. I began volunteering with them shortly thereafter and am impressed with how far this organization has come with a fully volunteer staff of patients. G-PACT reaches thousands of people each day and provides a number of services for patients. It is the leading non-profit organization in the United States that deals primarily with digestive tract issues.
I was diagnosed in March 2012 with Gastroparesis. This changed my life as well as my family's living/eating habits. I hit the computer to find help, as my GI Dr at that time (I now have a new one) did nothing for me, education/reassurance/nothing! In all of my on-line search for help to understand GP, I found G-PACT to be the most informative. I ordered a Restaurant Card from them so when I was out 'eating' with family, I could order a small portion or off the kid's menu without a problem. They have links for credible doctors and other helpful info. G-PACT has several campaigns going as well. Such as the one asking the Federal Government for funding for research. This doc is so close to being passed, I can almost taste it and it is much needed for all of us! Just picture having the flu 24-7 and you are only partially in our daily shoes! G-PACT is involved with so much and they provide up-to-date information (check Facebook too), that I asked what I could do for them in return. That is how I became a volunteer and have just now assisted with the launch of our “Please, Pass The Puree” on-line fundraiser. We wanted to honor all of us that are unable to eat a Thanksgiving Meal! This is currently going on, so check it out. I can't picture not being part of this great non-profit organization. It is my dream one day to be able to eat food again and enjoy life the way I did before GP hit me. It is my belief that with G-PACT we can make this happen!
I have had Gastroparesis for the past 7 years and GPACT was very critical in the beginning helping me understand what I was facing and how to deal with it. To know that there were so many others who suffered the same thing that I did eased a little bit of my anxiety, but as I delved deeper and deeper into what Gastroparesis was and what I could be dealing with I was horrified. Members of the online group are some of the most uplifting, caring, compassionate people I have ever met. No matter what they are going through, they are ready to set that aside and lift you up and give you information that has helped them. It is never medical advice and if it is a medicine or something else that has helped them, everyone is encouraged to discuss it with their doctor. Almost 2 years ago I decided that I wanted to be a part of this amazing community being able to help others that are just starting to find out they have this, or maybe the ones that are far in it but have gone up against a setback. It is important to make sure we are always encouraging people. I am not someone who is right up front showing everyone what I am doing, I would rather be a "behind the scenes" type of person and the other volunteers were very patient trying to find the perfect fit for me. I am so glad that I have found such an amazing nonprofit that is just trying to help the patients and go to the many different companies and doctors to try and get some funding to get research and better treatment options and hopefully a CURE!!