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2017 Top-Rated Nonprofit

FRAXA Research Foundation

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Nonprofit Overview

Causes: Autism, Brain Disorders Research, Disabilities, Health, Philanthropy, Philanthropy, Voluntarism & Grantmaking Foundations, Specifically Named Diseases Research

Mission: FRAXA was founded in 1994 by three parents of children with Fragile X. Our mission is to accelerate research aimed at finding effective treatments and a cure for Fragile X and related disorders, by directly funding grants and fellowships at top universities around the world.

Results: We have funded $26 Million in targeted research and are on the verge of bringing a treatment for Fragile X - and perhaps also autism - to patients.

Target demographics: find effective treatments and ultimately a cure for all children and adults who have Fragile X syndrome

Direct beneficiaries per year: 20 research teams to find new treatments for Fragile X; half of them have now gone on to receive large grants from the National Institutes of Health.

Geographic areas served: The U.S., Canada, Europe, South America, Australia, and Singapore

Programs: 1) Research grants and fellowships to fund research on Fragile X Syndrome, autism, and related disorders at universities around the world. 2) The FRAXA drug validation initiative (FRAXA-DVI), where we can provide preclinical testing of potential new medications for Fragile X; we have provided this service to a dozen pharmaceutical companies and now several of them are conducting clinical trials.

Community Stories

4 Stories from Volunteers, Donors & Supporters



Rating: 5

FRAXA is a truly remarkable organization with only one goal in their mission statement: to find a cure for the genetic disorder, Fragile X. Presented with a zero public recognition factor on day one, the dedicated founders and staff at FRAXA have moved the Fragile X conversation forward. America can boast a National Fragile X Recognition Day due to this group. As the parent of a Fragile X young man, I know that my contribution to FRAXA makes a difference. Why? Because contributions fund research grants, not administrative costs. Medical, genetic, and pharmaceutical researchers around the world are working toward a cure. My son will be 26 years old in 2 days. Go FRAXA! You are doing the impossible, and everyday we thank you for the cure that is coming.

Comments ( 1 )

kclapp Hi, I am FRAXA's president and co-founder, and I would LOVE to quote your review in a letter to FRAXA supporters. Could we include it and include your name (first name and last initial is fine if you like)? You can let me know here or at kclapp@fraxa.org thank you!!! Katie


Client Served

Rating: 5

Both of my children have fragile X syndrome and the hope that FRAXA gives us with their dedication to researching a cure cannot be measured!


Client Served

Rating: 5

Our daughter, who is now 19, was diagnosed at 2 which is when we were introduced to this remarkable organization. We have been blessed by the support of FRAXA, led by Katie Clapp and Michael Tranfaglia. FRAXA's mission is single focused on finding a cure for FragileX. I know they will find a cure in the not to distant future.

1 Audrey10

Client Served

Rating: 5

Having opportunity to participate in essential clinical trials sponsored by FRAXA.

2 Lisa165

Client Served

Rating: 5

FRAXA was created by parents of a child with Fragile X and it shows. This organization is dedicated to the treatment and cure of Fragile X Syndrome and they work towards this goal with a drive that only a person with personal involvement could have. As the mother of a child with Fragile X Syndrome, I can say with personal experience that FRAXA is not only out there raising money for treatments, but was there for me when I needed to find a clinical trial that was right for my son. A donation to FRAXA is money well spent and I recommend them to all of my family and friends.