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2013 Top-Rated Nonprofit

Foundation for Angelman Syndrome Therapeutics

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Nonprofit Overview

Causes: Health

Mission: Dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

Results: Minocycline Clinical Trials commenced April 2012

Target demographics: by raising funds to research therapeutics

Geographic areas served: supporting those affected by Angelman Syndrome

Programs: Fast's primary goal is to advance research leading to a cure for as.

as as is a rare disorder, the community of parents and caregivers of individuals with as rely heavily on social networking to become informed and seek advice and guidance on the challenges which the disorder presents. Its is one of fast's objectives to educate, support, and strengthen this community. In december 2014, fast brought together 527 parents/caregivers to hear about the latest research on as, the goals and objectives of fast, its progress towards meeting those goals and plans for the future. Speakers included the head of fast's scientific advisory board, dr. Edwin weeber, who cured as in the mouse model, as well as dr. Rebecca burdine, fast's chief science officer, colin farrell, jai courtney, retta sirleaf and paula evans. In addition, networking/mentoring opportunities were facilitated so that people caring for individuals of the same age or with similar circumstances could exchange experiences, information and guidance and solidify relationships.

literacy and advancing adventures in communicating camp for individuals with angelman syndrome and their families.

Community Stories

5 Stories from Volunteers, Donors & Supporters

Donor

Rating: 5

FAST gives all parents with Angelman Syndrome hope, they are charging ahead with funding for research to help try to find treatments to help our children and hopefully a cure. They are a board of volunteers that really make the most of the money thats fundraised pumping almost all of it into research. They are not paid staff. I really think with FAST we will get a cure soon.

Judy33

Volunteer

Rating: 5

Foundation for Angelman Therapeutics is one of the best organizations I have volunteered for. They work tirelessly to help our children. The hope they have given our children and families means so much! Thank you FAST!

Previous Stories

Donor

Rating: 5

Foundation for Angelman Syndrome therapeutics is an amazing nonprofit organization! They are made up of wonderful volunteers who give so much of their time to help find a treatment for Angelman Syndrome. I am so thankful to all of them for giving us hope for our children.

Donor

Rating: 5

FAST is setting an unprecedented example of how a foundation should be run. They are streamlining the way research is conducted for individuals with Angelman Syndrome. FAST takes a very innovative approach to bridging the gap between parents' reality and research. They do a marvelous job of motivating parents to understand that a cure is within our reach. FAST's mission aligns with everything I want for my child. You can't get anything better than 100% of donations towards research to benefit our loved ones!

Brenda22

Donor

Rating: 5

I first heard about this organization as it was starting up. I watched from a distance as Paula Evans and several other parents brought their hopes and dreams from a mere seed to a seedling and then watched as that seedling grew into a full grown tree(organization). This non profit group has dome amazing things over the past few years and has reached out to parents and researchers of those who have been diagnosed with Angelman Syndrome. The sincerity , determination and continuous support and growth of the organization drew me in and I am proud to support it in any way I can. I no longer watch from a distance but follow the group and encourage others to do so. It's track record and all volunteer board are impressive . I know any time or donation I can contribute will be utilized wisely and will be valued. FAST is an approachable , transparent non profit and I am proud to have them in my son's corner.

Tanja G.

Donor

Rating: 5

The entire goal of this charity is to cure Angelman Syndrome. The board is made up of parents, caregivers, and friends of children and adults with Angelman Syndrome, and they serve on this board voluntarily and for no compensation. I have seen firsthand that this is a time-consuming effort and many of the board members do this in addition to their regular jobs. They ask nothing in return but for us to raise awareness and funds to further AS research. When my daughter was diagnosed with AS ten years ago, we were told that there was no cure and that she would be dependent on others for all of her needs for the rest of her life. Because of FAST, this has changed. The cure for Angelman Syndrome has now become a reality. Right now, a clinical trial is being conducted to test a treatment for AS. Our daughter is part of this clinical trial, which is something that I could have only imagined ten years ago. I am so grateful for the dedication that FAST has to our children and to the entire Angelman Syndrome community. I have nothing but the utmost respect for FAST as an organization and will support them in any way that I can because this organization believes in the miracle of a cure for our daughter.