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Foundation for Angelman Syndrome Therapeutics

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Nonprofit Overview

Causes: Health

Mission: Dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

Results: Minocycline Clinical Trials commenced April 2012

Target demographics: by raising funds to research therapeutics

Geographic areas served: supporting those affected by Angelman Syndrome

Programs: Fast's primary goal is to advance research leading to a cure for as.

as as is a rare disorder, the community of parents and caregivers of individuals with as rely heavily on social networking to become informed and seek advice and guidance on the challenges which the disorder presents. Its is one of fast's objectives to educate, support, and strengthen this community. In december 2014, fast brought together 527 parents/caregivers to hear about the latest research on as, the goals and objectives of fast, its progress towards meeting those goals and plans for the future. Speakers included the head of fast's scientific advisory board, dr. Edwin weeber, who cured as in the mouse model, as well as dr. Rebecca burdine, fast's chief science officer, colin farrell, jai courtney, retta sirleaf and paula evans. In addition, networking/mentoring opportunities were facilitated so that people caring for individuals of the same age or with similar circumstances could exchange experiences, information and guidance and solidify relationships.

literacy and advancing adventures in communicating camp for individuals with angelman syndrome and their families.

Community Stories

33 Stories from Volunteers, Donors & Supporters

Lois8

Volunteer

Rating: 5

The money this nonprofit collects ALL goes to research for a cure for Angelman Syndrome. They are tireless in getting the word out about the syndrome and are very supportive for families of Angels.

Previous Stories

General Member of the Public

Rating: 5

My beautiful granddaughter has Angelman Syndrome. Living far away, I feel helpless. It is wonderful to know that the Foundation for Angelman Syndrome Therapeutics is doing so much to find a cure, to educate, and to support families and caregivers. The volunteers who run it take their only reward in a job well done. I don't know another group that does as much for our Angels or is getting us closer to a cure. I congratulate them and thank God FAST is doing so much for our Angels.

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General Member of the Public

Rating: 5

When our son Ryland was diagnosed we were devastated! Then we were introduced to FAST! We actually have hope Ryland might one day lead a normal life. The entire FAST Organization if filled with wonderful dedicated people, without them we wouldn't have hope for a cure. We thank them from the bottom of hearts for working so hard and being so dedicated in helping our children.

General Member of the Public

Rating: 5

Anybody who's ever received a diagnosis of a developmental and/or neurological disorder for their child knows how incredibly difficult those first few days/months are. It was no different for myself, as I can still remember the sensation of being gut punched, curled up in a corner and distraught, not even trying to contain my anger and fear.

It was only after I'd summoned up the courage to look up Angelman Syndrome online, to actually commit to understanding what life for my son (and for the rest of our family) was going to look like from here on out, that I came across FAST and their mission to fund research into Angelman Syndrome therapies. It sounded too good to be true; I went from the lowest point in my life to something resembling elation. I had to do background research on the organization to make sure that the information on the site was legitimate and not pandering to the hopes and dreams of Angelman caregivers and parents. After getting in touch with several members of the FAST board (all of whom reached out to me personally after seeing my facebook post on my son's diagnosis), I was sold on the goals and mission of FAST.

The foundation has provided hope, education and a community that galvanizes whenever there is something that can help those afflicted with Angelman Syndrome and I'm not sure where we would be right now without their hard work and commitment.

1

General Member of the Public

Rating: 5

Tengo una hija que padece el sindrome de Angelman y gracias a la FAST ahora por primera vez en toda su vida tenemos la esperanza de que pueda tener un futuro mejor. GRACIAS FAST!!!. Juan Jose Palomares - Madrid - Spain.

General Member of the Public

Rating: 5

Tengo una hermana que padece el Sindrome de Angelman y gracias a la FAST ahora por primera vez tenemos la esperanza de que tenga un futuro mejor. Gracias FAST!. Daniel-Madrid-Spain

1

General Member of the Public

Rating: 5

Tengo una hermana, Elena, que tiene el síndrome de Angelman y gracias a la Foundation for Angelman Syndrome Therapeutics por primera vez tenemos la esperanza de que mi hermana pueda tener un futuro mejor. Gracias FAST!!. Cristina - Madrid (Spain).

1

General Member of the Public

Rating: 5

Soy madre de una niña de 28 años que padece el síndrome de Angelman. Foundation for Angelman Syndrome Therapeutics nos ha dado por primera vez una esperanza de un futuro mejor para nuestra hija. GRACIAS FAST!!.

General Member of the Public

Rating: 5

Great foundation! I have 3 grade kids with Angelman's! Olivia 7 1/2, Harrison 6 and Dennis 4! Stacy R is the same mom of all 3. She is awesome and so is FAST! So very worthy of this praise! FAST gives us HOPE! Olivia's middle name!?

Lulu C.

General Member of the Public

Rating: 5

FAST has been wonderfully effective in raising awareness of Angelman Syndrome and funding studies aimed at mitigating the very difficult symptoms of this condition. The board and administrators are 100% volunteer and all monies raised go directly to services. In addition to raising awareness and funding studies, they provide information, support and hope to families (and professionals) dealing with Angelman Syndrome.

Carmelita C.

General Member of the Public

Rating: 5

FAST me ha dado la Esperanza que ya no tenía,pero gracias a Dios conocí de ellos pronto.Mi hija es un Ángel Angelman syndrome y cada dia lucho duro por mantenerla saludable y pronto pueda ser candidatA a cualquier avance que FAST tenga, pues trabajan muy duro para avanzar y pronto encontrar un tratamiento que por Qué No,pueda ser la cura pronto. FAST we Love You All.Thank you for giving Us Hope.

Mickey B.

General Member of the Public

Rating: 5

FAST is best nonprofit organization for all the wonderful help and hope that they have given to our Angels!! Thank you FAST!!!

Diane35

General Member of the Public

Rating: 5

Our son was diagnosed with Angelman Syndrome in 1998 and we were given no support or hope for his future. Through FAST, we have been given great hope for our sons' future and we have discovered a community full of support and love. We are so grateful to the Board of Directors, all of which are volunteers and most of which are parents to a child with A.S., and to the Scientific Advisory Board of FAST, a team of terrific, dedicated people, for all that they have done and continue to do. FAST have created an A.S. community, given us all hope and shown the world that our Angels are awesome and they deserve nothing less than the very best!!

1 Karina3

General Member of the Public

Rating: 5

I have a beautiful daughter with Angelman Syndrome and through a search with Google, found this site. It is very informative and sets you up with hope for the future. Of all the staff I have encountered, they have nothing but helpful and always willing to talk to me at anytime of day or night. Thank you FAST!

1 Lisa105

General Member of the Public

Rating: 5

I am a Speech-Language Pathologist and have had the honor of working for three families and their children who have Angelman Syndrome. I am also personal friends with one of the Tampa 24 participants. FAST is providing a hope that we never thought possible when I met my first Angel 8 years ago! Families have resources and an endless source of encouragement thanks to FAST. They are tireless and dedicated. Thank you FAST for giving us all the support and inspiration to keep fighting to cure Angelman Syndrome!

Anna20

General Member of the Public

Rating: 5

We found out my daughter Sadie had angelman syndrome a year ago! Are lives were rocked to the core. We found alot of hope from FAST. There organization is doing incredible work in advancing theraputics to help our children with this crapy disorder. The scientist work extremly hard and they are very willing to talk to any parent that has questions. This oraganization could likely cure angelman syndrome somthing that even 10 years ago seemed impossible.

Antonio G.

General Member of the Public

Rating: 2

Somos nos papas de España con un hijo con Sindrome de Angelman. Estamos muy pendientes de FAST y de su investigación y dándoles las gracias por todo el esfuerzo y el trabajo que realizan para todas las personas con Sindrome de Angelman de todo el mundo. Muchas gracias a FAST desde España.

Paula J.

General Member of the Public

Rating: 5

FAST is an amazing organization brings and fights for hope. A organization that has a tight knit community, bonded and constantly inspiring and encouraging one another. I would never wish for a syndrome for my child or any, but if it had to be, I am glad it is Angelman Syndrome. Because now I have the great fortune calling FAST members and community~ friends!!!! Mom to Carmyn, Paula Hawthorne

Nicole28

General Member of the Public

Rating: 5

I am a step mommy of an Angel that my husband and I take care of full time. I knew nothing of Angelman Syndrome and I had to learn really FAST. LoL The Foundation for Angelman Syndrome Theraputics has taught me so much and has a great way of supporting other parents of children with AS. For all involved to work for FAST to find a cure, you truly are Angels yourselves! Thank you for all that you do! We Love FAST!!!

Jennifer115

General Member of the Public

Rating: 5

My son was recently diagnosed with Angelman Syndrome and this organization is giving us some hope of a better future for my son.

Don Y.

General Member of the Public

Rating: 5

Thank you FAST for providing my family and the AS community HOPE. I am so thankful to have your orginization help my beautiful daughter Emma and her friends. We love all the hard work you do, and for you to do it out of the kidness of your heart and not your pocket. Bless You!