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Nonprofit Overview

Causes: Epilepsy, Health, Health Care, Public Health

Mission: The Epilepsy Services Foundation, Inc. is committed to creating a better future and environment for persons affected by epilepsy in West Central Florida, including children, teens, young adults and their families. The office is located in Tampa, FL.

Results: ESF trained over 58 volunteers to be mentors who can provide education and support to other parents and families affected by epilepsy. ESF provided 25 camp scholarships for children and teens to participate in a medically-supervised camp, Camp Boggy Creek. ESF provided 20 scholarships for families to attend one of three Epilepsy Family Retreat Weekends. ESF provided 3 scholarships for University of South Florida medical students and residents to continue their pursuit of neurology as a medical focus. ESF provided 5 scholarships for persons affected by epilepsy to pursue their college degrees. ESF provided numerous epilepsy education programs to students, teachers, childcare workers and nurses in West Central Florida.

Target demographics: Persons affected by epilepsy, primarily children, teens, young adults & their families

Direct beneficiaries per year: 800-1,000 persons

Geographic areas served: West Central Florida: Hillsborough, Polk, Hardee, Highlands, Pinellas, Pasco, Hernando counties.

Programs: Information and Referral Education & Awareness Graces' Hope Hospital Visitation Program Support Groups Mentoring Project Access Emergency medications Fundraising Volunteer

Community Stories

12 Stories from Volunteers, Donors & Supporters

General Member of the Public

Rating: 5

My experience with ESF has been an incredible journey so far. We live in Orlando where there is not a whole lot of Epilepsy-support resources as there are in Tampa, so we really appreciated being accepted at ESF-Tampa the way that we have been. Tom Orth has provided us with a wealth of information to be able to help our 14-year-old as much as possible. We have attended fundraisers, seminars and will be attending the Family Retreat at the end of April that we are so looking forward to, and have Tom and Sande Van Hook to thank for all their help in offering up these options for us, and our family. Thank you !

General Member of the Public

Rating: 5

Wonderful organization. I've seen first hand all the help it's provided to a close friend who lost her son to epilepsy.

General Member of the Public

Rating: 5

I've had the opportunity to observe Epilepsy Services Foundation as a part of their partnership with the Tampa local of the National Association of Insurance and Financial Advisors (NAIFA-Tampa) through our joint efforts together on a golf tournament.

Epilepsy Services Foundation provides a tremendous value and service to those suffering from Epilepsy or are a family member caring for those with Epilepsy. The work they do makes it easier for this group to have one week where they can be "normal." Epilepsy is becoming more and more common, and for an organization like Epilepsy Services Foundation their work is needed throughout our community.

Thank you to Epilepsy Services Foundation for making our community a better place!!

General Member of the Public

Rating: 5

I cannot speak highly enough about this organization and the services its Board, Executive Director, volunteers, and supporters provide for the community and, particularly, persons effected by epilepsy and their loved ones. ESF's dedication to educating and growing awareness in the community about the challenges of epilepsy is unmatched. The love and outreach ESF's members give to individuals who deal with epilepsy, and the support shown to their families, is constant. ESF's programs and fundraising activities have bettered so many lives. I am a former board member and volunteer, and now just a fan. I feel blessed and grateful to have been involved in such a laudable non-profit organization.

Previous Stories
1

Volunteer

Rating: 5

I have never worked with a more caring and dedicated group of people who desire only to help individuals affected by epilepsy, whether directly or indirectly through their loved ones. My participation with ESF began by virtue of the fact that my employer, Fowler White Boggs P.A., has been a long time sponsor and supporter of this organization. However, even if I did not have professional ties to ESF, I would gladly volunteer to assist this non-profit, which is comprised of giving and selfless individuals who make this world a better place on a daily basis. Unlike well-known national non-profit organizations, ESF is striving to expand through grass root connections and local/regional awareness with the ultimate goal of providing a wider range of support, assistance, and educational services. In my brief time volunteering with ESF, I have seen the efforts of its volunteers deeply touch the lives of children and adults who are affected one way or the other by epilepsy. Dedicating my time to this organization has been nothing but a pleasure. Please support our cause!

General Member of the Public

Rating: 5

This is a fantastic organization that serves to raise awareness about epilepsy, assist those affected by epilepsy, and simply rallies the entire community together. All the members in this association are so passionate for this cause, it's inspiring! Great work, keep it up!

-Matt C.

General Member of the Public

Rating: 5

It was a great experience. Everyone seemed really happy to be there, the ceremony didn't take up much time, and along with the scholarships, the epilepsy services foundation even payed for our dinners. Several people showed up dressed professionally. I don't have any complaints. It was a great ceremony.

General Member of the Public

Rating: 5

I was referred to esf by another parent and I am so happy with the resource. I explained my son, 23, needed to find a support group. He said he knew there was a need and a year later, we have a group of 12 that keeps growing. We have met so many wonderful, supportive people through esf!

2

General Member of the Public

Rating: 5

I can begin to tell you how hard it is to believe that someone one in your family has epilepsy and really not even know what it is amongst all the other tragedies that are out there. Until my wife and I got the number of the ESF foundation of Tampa Bay and our granddaughter lives in Missouri, but Tom Orth, Sandy VanHook have been the wealth of knowledge and support anyone could have. They have provided us with more info and ideas and just general knowledge that has helps us help our kids help our granddaughter, we can say enough about them. They are always will to do whatever, even if its just to listen.

Jeff Burke

1 Donna227

General Member of the Public

Rating: 5

My Granddaughter was recently diagnosed with Epilepsy and I contact Tom @ ESF and he and his staff have given me so much of their time to help me understand what my son is facing and what my granddaughter is up against. They have been sounding board, they even met with my son & his family while they were visiting and gave them so much information that not even there doctor had shared with them.

1

General Member of the Public

Rating: 5

My son was diagnosed with epilepsy at birth he started having seizures 7 hours after he was born he is now 3 years old. This is such an amazing group of people who go above and beyond for other.