The Epilepsy Foundation has been doing regular pick ups for us for about five years now. They have always come the day they commit to and the workers doing the pick ups have been really nice overall. We've had a great experience so far. A couple of times, I have called to check and make sure that they were coming that day for a pick up, and they were very nice about it, and the pick up was done that day. We will continue to donate to them!
I love the EFGC they help me Spread HOPE Helping Other People with Epilepsy as one who got lucky and became seizure free 5 years ago after having a Left Frontal Lobectomy at Tampa General Hospital. I then was able to come to this are a and go back to work again, soon after I got the Governor of Illinois to make November Epilepsy Awareness Month Officially. Soon after Kurt Florian of the Foundation came to meet me and hear my story. I then got together with the Northwest Suburban Community Action Board and began doing lots of Volunteer work with them and the Foundation. Since then each year I have made it my mission to continue keeping November officially Epilepsy Awareness Month. So Far it has been the case and again this November we are Officially pushing Purple Awareness to all!
Camp Blackhawk allows children with epilepsy go to summer camp for a week and be like any other child. The camp is free for every child!
I have been involved with the Epilepsy Foundation for over 20 years. I am always amazed how caring and helpful the staff members are to the individuals that they serve. The Foundation offers so many programs to a wide variety of people living with epilepsy. I have attend Camp Blackhawk as a volunteer for several years and enjoy watching the children who are attending the camp participate in so many actitvies that they may not otherwise be able to participate. It is an outstanding way for children living with epilepsy to attend camp in a safe environment for them.
The Epilepsy Foundation of Greater Chicago has been a huge support to our family. Our son was diagnosed with Epilepsy in Februrary of 2014 when he was 8 years old. I elected no cost seizure recognition and response training for our school staff as well as student seizure education. We have also benefited from educational advocacy during IEP meetings and accommodation requests, clinical scheduling for new doctor visits and family/caretaker seizure recognition/response training. I have been a member of a community action board "CAB" in the northwest suburbs as part of the foundation since 2014.
My building, AMLI 900, has worked with the Epilepsy Foundation of Greater Chicago to offer residents the opportunity to donate to the great cause. The Epilepsy Foundation sets up bins in our back loading dock area for residents to bring down clothing and small household items to donate. This has been an extreme success in the building and residents look forward to donation. Our original plan was to have the donations bins available for one month only, but because it was such a success we now offer them for a week, once a month, and residents know they can bring items down to donate. The Epilepsy Foundation has been very helpful with coordinating dates and pick up times and we always look forward to working with them.
I have been a volunteer for almost 2 years. My neurologist always suggested that I should find a group or foundation that would give me a sense of what others dealt with the same issues. As time opened up, I decided to give it a chance. I met some wonderful people as a volunteer. All the staff is quite friendly and are willing help others and the cause to improve epilepsy. Being a Hispanic, I would like to encourage all the Hispanic Community to be involved in the cause and break the taboo within our culture. Therefore, I will like to ask all the Hispanic Community to be a part of it.
For the past few years, I have been volunteering at the Epilepsy Foundation of Greater Chicago. As a person with epilepsy, I find being at the foundation to be extremely comforting. Everyone here is so genuinely kind and caring, and ready and willing to help with anything that they possibly can. Two years ago, my friends and I produced a benefit concert to raise money for the EFGC. Although I was only a volunteer, people at the foundation volunteered THEIR time to help me. They helped us secure insurance for the event, they provided us with educational materials to give to audience members, they helped find donation items for a raffle at the event, etc. We absolutely could not have done it without them. Recently, I began the new Youth Council, and the foundation has been incredibly supportive. They help us with funds, advertising, resources, etc. Now that I am on the Youth Council, I spend a significant amount of time volunteering, and I get no greater joy than being here at the foundation. The EFGC has given me a place where I am accepted, where I feel normal, where I can be myself, and where I can help make a difference. They have made an enormous impact on my way and have helped me in ways I cannot describe, and I want nothing more than to give back to them as much as I possibly can.