As you know, Medicare refuses to pay contact lenses, even if they are deemed medically necessary, even if wearing them is?the only way I can see.
Ween I went to your organization for assistance, I was?told that there is absolutely nothing you can do to helo. Hell, your group refused to even try!
The Discovery Eye foundation is unique amongst non-profits in how many people they help in relation to how many people they are. I have rarely seen any organization where their people are so hard working and have such a deeply rooted personal interest in what they do. Truly a stellar organization with stellar individuals!
I have seen DEF grow over the years and they provide a great source of information and comfort for those suffering with eye disease. They sponsor ground-breaking research into the source of many of these aliments and provide patients with support and clear information to help them manage or treat their disease. It's amazing to see such good work produced by their small, but dedicated staff.
Over the years, 30 to exact, I have watched Discovery Eye Foundation blow the lid off off of so many unsolvable problems! From Keratoconis, to mitochondria genetics, Ocular herpes, Potassium osmosis, and a subject close to my eyeballs, pterigum.
All kidding aside, these researchers are leading scientists who care about everyone.
The National Keratoconus Foundation Newsletter has been a hugely helpful resource for us in keeping informed about developments in the study and treatment of Keratoconus.
I learned that I have dry macular degenerative disease almost 3years ago. I was told not to worry. The a year later my sight in my right eye became wavy, went back to my eye doctor. He referred me to a specialist . After an exam was told to either get a sho in eye or be blind in a couple of days. Took the shot, that night I had twitching on right side if my face. Did not go back. Found website for age related macular degenerative and have learned a lot more. Learned that there are different forms of dry. Learned that there is a chart to use. Had to request for one from , eye doc. Tried to tell me I didn't need one. I rely on this organization for lots of info.
Discovery Eye Foundation fills many roles to those of us with eye problems. We use the website for information from the Macular Degeneration Partnership since my Mother suffers from this debilitating disease. We have so many eye issues in my family from ambliopia, to eye sockets that are not even that it is truly a blessing to find so much information on one website. Thank you from the bottom of our hearts.
I especially appreciate the information provided by the Macular Degeneration Foundation about the latest research on treatments. I cope with the loss of vision caused by Wet Macular Degeneration and have had a total of 88 injections in both eyes since 2005. The knowledge that my children and grandchildren will be affected by this condition is very sad to know. I am grateful that there is hope for them - thanks to the information that I receive from the Macular Degeneration Foundation.
I have been diagnosed with dry Macular Degeneration. My father and grandparents all suffered from the disease and went blind. Thanks to the Macular Degeneration Partnership and the great information that is emailed to me from AMD.org, I am learning more and more about the disease and keeping informed as to things in the pipeline. Thank you for your help!
Having AMD myself along with several family members and friends, I'm really thankful we have DEF to keep us up to date on the latest information regarding this awful condition of the eye.
The NKCF Discovery Eye Foudation is a very practical way to get tons of information about keratoconus.
The monthly newsletter presents the latest development for treatment alternatives. It's also possible to get in touch with other people diagnosed with keratoconus to learn about their experience with different treatments. Overall very pleased with the work of the NKCF Discovery Eye Foudation.
When I was first diagnosed with Keratoconus, after having received several misdiagnoses, I went to the Internet to do research. My most positive experience has been with the NKCF, whose website and newsletters have been truly useful and informational. I was particularly impressed when I announced to the newsletter that I would be having a corneal transplant. I received immediately from Cathy Warren a booklet concerning the whole procedure, including factors which my surgeon didn't think to tell me. I was touched and pleased with her prompt response. The procedure went as described, and now I see well enough to drive with glasses.
The first time I heard about the NKCF/DEF was almost 20 years ago. I was feeling a little down and felt sorry for myself because of my keratoconus. It was so comforting to read other people stories and feel that I’m not alone. I’ve been receiving the quarterly newsletter for many years and keeping up-tp-date with the latest discoveries in the KC treatment. Because of the DEF information, I was more informed patient, asking my doctor and optometrist questions and getting more information and answers to be able to get the best treatment for me.
Hello, I have been a user on the Discovery Eye Foundation website and newsletter for many years. About 12 years ago I was diagnosed with myopic degeneration in both eyes resulting in scarring on the macula and bleeding. I fortunately am in the great care of an east coast eye speciality hospital. I have to give credit to the wonderful physicians who have treated me over the years for saving my eyesight. Although, I do not have perfect 20/20 vision even with correction and have had double cataract surgery as well, I can function well in my ADLs and work full time. I am extremely grateful for all of this. I read the AMD Updates regularly and it has provided me with excellent information that helps me to have meaningful conversations with my physicians. It keeps me up to date on the latest vision research and provides me with resources in which I benefit. I have recommended this newsletter to family and friends who also have to cope with vision disorders. Thank you.
I was diagnosed with wet AMD several years ago. In researching this problem I came across the Discovery Eye Foundation site and it has been a big help to me ever since. Good information, response to E-mails and questions, personal attention when needed. I have recommended the site to several people who also suffer from AMD. Thank you!
The charity has provided a newsletter which always I look forward to receiving. They keep the world of those who suffer from this condition updated on possible treatment options. They post details about research and have a fantastic support and awareness function. Great company, made a difference in my life.
I can't even remember where I learned about the AMD website, but I think it was in a magazine or from another website. I went to check it out because my mother and my oldest sister both have MD. I have really gotten a lot of information from their articles and they even sent me a chart to keep on my refrigerator to check my eyes with and that gives me security in knowing that I will catch it early if I develop it also. I am watching their research now to decide what the best vitamin will turn out to be. It's great to have so much information in one place that is keeping up with the latest information. Maybe I will be lucky and not have to go through what my mother and sister are doing. I know that they are very helpful now, and with any luck they will be life-changing for me and my other siblings and our children and grandchildren.
When I was diagnosed with Wet AMD in June 2011, I was crushed and afraid. AMD.org was a huge help in assisting me in understanding what I was going through, what to expect, and how to help my eyes retain the health they did have. I also found that I'm not alone, there are many others like me who also benefit from AMD.org.
I live in Ontario, Canada & have received the emails from Discovery Eye Foundation since I was diagnosed with ARMD & have been encouraged by the research information & general eye care information I have received. Not only do I have the benefit of first class research information but I share with others as I am a volunteer with our local CNIB (Canadian National Institute for the Blind). Thank you for this service. Meg Slater.