My name is Sandy. I am a 52 year old female. My mother has AMD and she is 86 years old. She is blind. I thought I too had AMD. I started having vision changes in my left eye this past summer. I felt dizzy and nauseated. I also had a migraine headache the day my vision changed. I noticed that my left eye had a gray spot in the center of my vision and words I tried to read were wavy. I also noticed that doorways and window frames were wavy. It was like being in a fun house with those crazy mirrors. The scariest thing was when I closed my right eye and looked in the mirror. It looked like my face was dropping or melting on the right side. I looked like a monster. I went to see a doctor at University of Michigan. He didn't think I had AMD, but diagnosed me with Chronic Serous Chorio Retinopathy. I had laser surgery done. It helped improve my vision only for about a month. It is bad again. I am scared that I will lose my sight in both eyes. I wonder if I too really have AMD like my mother.
I am only 61 and have been dealing with wet Amd for two years. I called Discovery Eye Foundation and was able to speak with Judy Delgado the very same day. She listened and was able to confirm that the course of treatment my doctor is using is standard protocol. She also gave me the name of a doctor at Casey Eye Institute who would be a good physician should I choose to get a second opinion. After the conversation, I felt very reassured. It has been difficult dealing with this disease at such a young age. It was so nice to talk to a knowledgable person who showed compassion. They are providing a great service.
When I was diagnosed with Keratconus the foundation provided me with the information I needed to really understand what was going on with my vision. Hearing from others has been a great source of support for me. i feel so much more well equiped to deal with this eye disease with thier help.
My father is almost blind from Macular Degeneration. Recently I have found out that his sister is also showing symptoms, and I also have beginning signs of developing AMD. This organzation has become a valuable resource for me, to get the information I need to keep my own vision healthy, and to understand the implications of having AMD. Through this organization, I have been able to participate in research regarding the genetic factor in AMD, which is important to me since it clearly runs in my family. I feel very fortunate to have this wonderful resource to help me and my family!
I have been diagnosed with Keratoconus for 41 years. As new developments and proceedures have recently emerged, the NKCF website has been a saving grace. I am currently 61 and through the interchange of others with KC and physicians and contact fitters in the field, I am able to discern what treatments have been successful as well as others who have have similar side effects to new contact lenses.
AMD provides the latest research and care information for macular degeneration with timely emails and newsletters. When I've asked a more specific question of the director, Judith Delgado, I get a very prompt, informative, caring response. I've been helped a great deal to handle the AMD diagnosis in my life by this group, and have recommended them to others over the years.
Thank you to NKCF for their great newsletter and website. Being a Keracatonous patient I have learned that there are not very many resources, and their website/newsletter gives me the resources and research results are extremely helpful to me.
My husband has had keratoconus for 25+ years and the National Keratoconus Foundation has kept him informed over the years. Their sample insurance letter helped get him medical reimbursement for his expensive hard/Rose K contacts ... probably common these days, but the NKCF lead the way to getting this much needed financial assistance.
I have a family member with macular degeneration and as so, am at risk for developing it as well. The information on this website has been extremely helpful for my family so far. I would recommend that anyone who has the disease or wants to know more information about it visit the website. As they are a resource for people with diminished vision, they thoughtfully publish everything in larger font sizes.
When my son was diagnosed with Keratoconus his grades had already been failing in school and he was frustrated that over the course of a year spent going to eye doctors we couldn't find a contact that he could either see through or that stayed in his eyes! That is when I turned to The National Keratoconus Foundation, a program of The Discovery Eye Foundation website for help. Within a day we received a list of eye Doctors in our state who are affiliated with NKCF. These Doctors understood that disease and the issues of good sight correction. After One Doctor visit my son had a pair of contacts he not only could wear but could see well with too! Now each month when we get a newsletter update we both read the articles and discuss the information. It has made dealing with the disease easier now that we are better informed. Thank you NKCF for your life changing help with this complicated and not well understood disease.
I knew nothing about keratoconus (KC) when I was diagnosed. I was frightened and worried about my future. When I found NKCF online, it was such a relief. I was not alone! There were doctors who were ecperienced with this condition; there were patients like myself who really, truly knew what I was going through. It was a tremendous support. Their day-long seminar at the Skirball was very informative, and a chance to meet other KC patients in person. When it came time for my first cornea transplant, NKCF was there, too. Their booklet about cornea transplants was extremely helpful in my planning and knowing what to expect. And it was free! Although my transplanted corneas are healthy now, I still visit the NKCF and support them with my participation on the chat board and monetary donation. This organization is suberb, and has made a huge difference in my life with KC!
This organization provide a badly needed informational service to people suffering from keratoconus. This disease is fairly rare and thus it can be very difficult to get timely and accurate information about it. Thank you. Bill Simkins
I am very thankful for the information that Discovery Eye Foundation distributes to the KC community. I have learned valuable information that helps me take better care of my eyes and stay informed on the latest research and surgeries. They do a great job disseminating information!
Discovery Eye Foundation brought me a great deal of knowledge at a time of great fear for my future well being. The knowledge was an excellent pacifier for those fears, since understanding relieves the apprehension of ignorance. They have, and continue to this day, to provide a great deal of continuing knowledge concerning my condition, which is keratoconus.
Discovery Eye Foundation has helped me in many ways since I was diagnosed with AMD. In a time of great fear, it gave me comfort. I was supplied with the latest research along with the available aids & nutrition to help in my fight against this disabling disease. I am very appreciative for this organization.
I was diagnosed with keratoconus thirty years ago. As a result my eyesight problems have gradually worsened over the years, and despite ongoing development of new rigid contact lens, my eyes have suffered repeated corneal scratches and injuries, to the point where cornea transplants seemed inevitable. The problem is sufficiently unusual and rare that even my wife did not have any real understanding of KC. Fortunately, my corneal specialists are on the leading edge of medical advances and after decades of trying new lenses, my latest scleral lenses have been injury free, and I learned about NKCF from their office. Since then, my wife and I attended a half-day program in Chicago presented by NKCF for patients and family members. One of the featured speakers was one of my doctors. Everyone who spoke helped my wife to better understand my condition, and increased my knowledge and perspective on my own condition. Patients attended from three or four states, some of spent hours travelling to the program. NKCF also has an email list of patients and professionals exchanging information to help each other. Recently, from there I learned of a new keratoconus lens available in Europe and patients' experience using it. This is another encouraging benefit of NKCF. Now I have reasons to hope that I will never need corneal transplants. NKCF has helped me improve my quality of life and hope for future years of stable and possibly improved vision. Too many people take eyesight for granted.
Being diagnosed with macular degeneration is both frightening and overwhelming. A source of current information relating to this condition is extremely important to someone trying to cope with the potential for loss of vision. Discovery Eye Foundation has become that trusted source of information for me. I sincerely appreciate the frequent updates from Discovery Eye Foundation that are conveniently delivered via email. They do an excellent job of presenting the latest information on research studies and therapies in an easy to understand format.
With this organization's newsletter I found a new hybrid contact that has essentially granted me 20/20 vision. I had no idea that I was seeing so poorly with glasses until I was fitted with this medical device. It actually won medical device of the year 2009 against even prosthetic devices. It's a miracle!
When my mother was diagnosed with Macular Degeneration we were both very frightened. We knew so little about the disease and what she was going to face. The Discovery Eye Foundation has provided a wealth of information and support over the years. Mom can't read information on a computer anymore so I receive the monthly newsletter and read it faithfully before printing it off in large font for mom. It's given her direction on what questions to ask her eye doctor, warned her about a prescription that was tainted and advised her what to do to help. It's informed me about lifestyle changes my daughter and I can do to help decrease the odds of us getting the disease. Thank you.
The ongoing up-to-date online information provided by Discovery Eye Foundation has greatly assisted me as a patient treated for AMD. Additionally, I have helped to disseminate the findings of research reports as well as the importance of early detection. Therefore, the organization has made it possible to impact a wider group of high-risk individuals.