I've worked with the Diabetes Hands Foundation since 2009. I've participated in their excellent Big Blue Test Event, participated in the TuAnalyze project and participted in 5681 discussions at TuDiabetes.org (acidrock23....). Diabetes is a unique disease in that people with diabetes are obligated to beceme their own doctors in order to treat the disease successfully. I have explored online research, both through diabetes and through fantasy baseball and I am certain that a message board, offering conversation as well as checks and balances, is the best way to find answers quickly. Diabetes Hands foundation is clearly an organization committed to being more than a message board by finding innovative and participatory methods to harness the vast amount of data accumulated by people with diabetes in informative events members are able to participate in. Please consider them strongly for your recognition. S
What a great organization. This is the most caring group of individuals I have ever encountered in relation to Diabetes. Upon entry volunteers greet you and direct you to the places most likely to be of interest. They let you ask questions and they care for you if you have an issue.
I find the Diabetes Hands Foundation to be an incredible resource for people with diabetes and their caregivers. It is a pleasure to be associated with the organization. For 33 years I was the only type 1 diabetic I interacted with daily. With DHF I am no longer an island facing the disease by my self. I am honored to be part of the organization.
DHF is an excellent resource for diabetics old and new. The experience and support from the members is fantastic. The site is user friendly. The resources and links are excellent. And I just like the folks there. 5 stars for TuD :)
I was diagnosed with T1 diabetes 16 years ago. Since then I've managed to control the situation ok but not enough for my standards. Also sometimes felt my diabetes was controlling my life and not the other way around.
This last period turned out GREAT! I've read many books and articles. Finally, while looking for some people struggling with the same condition I found this great community. Can't say how much this is helping me out!
It's like a group of soldiers preparing each day to face obstacles and difficulties, together.
Each and every person I've had the pleasure to meet was kind and open to discuss my issues.
Furthermore, I've got the possibility to give back the community and feel useful and share smiles with my Dmates!
I was diagnosed as a type 1 diabetic about 2 years ago. Found TuDiabetes and found a wealth of information in one place. The volunteers and community is top notch. Have been having much better control of type 1 since joining.
I have been a member of the TuDiabetes Website for many years. It is run by the Diabetes Hands Foundation. I have had Type 1 insulin dependent diabetes and several other chronic disorders for over 25 years. I happened upon the site and found an amazing group of people with diabetes. I learned up to date information on how to care for myself the absolute best way possible. There are so many people involved in the site of all nationalities and ages, people with type 1 and type 2, pump users, people on injections and people on pills.
The environment is fun, exciting, interesting and friendly. I am always learning new ways of caring for myself and the emotional support is really astounding. I have made lifelong friends there. People get so connected that they actually end up meeting face to face.
There are fun parts to the site too, a forum, blogs, and you get your own page, and email option. They have a design studio for decorating and personalizing your own page. There are meet ups, fundraisers and gatherings. There is a live 24 hour chat.
The best thing is that people that actually live day to day with diabetes have become experts at caring for the disease are happy to share their knowledge. I have never been more impressed with any group and to tell the truth, I have learned more about studies, insulin, dosing, diet and exercise and balancing all of these Online at this site than I have ever learned from a professional. It is an invaluable part of my life. It is a site that truly saves lives.
I first discovered DHF when is started to look to social media as a place to connect with other people with diabetes. In addition to others with diabetes, I wanted to connect with a diabetes organizations to take advantage of their resources. There were many diabetes organizations, but dhf offered both things I was looking for - a place to meet others and an organization that offered many resources. The top brass of dhf don't sit behind a virtual desk all day; their execs and advisory board are made up of people who are in the diabetes online community every day and helping people in every way. You can talk to them one on one and they support you as an individual. Their BiG Blue Test event raises much needed money to buy supplies for people all over the world who have diabetes. IMHO they epitomize diabetes advocacy and everyone with diabetes benefits from their never ending efforts and important mission. Brad S. a person with Type 1 diabetes
Diabetes Hands Foundation provides an invaluable service to those with diabetes, as well as their friends and families. When someone is feeling lost and alone in the sea of diabetes, Diabetes Hands Foundation is there to toss out a lifeline. Thanks to DHF, no one ever has to be alone with diabetes again.
Thanks so much for this very positive review, SStanton. I'm the Head of Communities for Diabetes Hands Foundation (which means I run the TuDiabetes and EsTuDiabetes websites) and it truly warms my heart to hear that we are successfully achieving our mission to connect people with diabetes.
I am bothered by the activism of this site toward one fringe diet. It actively advocates ultra low-carbohydrate eating, in line with Atkins, Weston Price, Bernstein, etc. It is also, therefore, anti-American Diabetes Association. This activism extends beyond the many volunteer posts that are made - in fact some of the site administrators as well as the co-founder of this site join in the ultra low-carb, anti-ADA, activism. I would not raise my rating of this foundation until they learn that there is more than one diet that works for diabetics.
My name is Emily Coles, and I'm the Program Manager for Diabetes Hands Foundation. As such, I manage the TuDiabetes website, and oversee our volunteer administrators. Diabetes Hands Foundation is dedicated to the education, connection and empowerment of people touched by diabetes. We strive to support the members of our social networking site, TuDiabetes.org, in sharing the full range of information, experience and opinion that exists in our diverse community. Of their own volition, members have created a variety of groups specifically for people who find particular dietary guidelines, exercise regimens, treatments etc. to be helpful in their health management, and we are proud to provide members a place to connect around what works for them. While we do discourage the sharing of perspectives which are considered dangerous by the medical community--such as an opinion that people with type 1 diabetes do not need to take insulin--neither the staff of DHF nor our volunteer administrators espouse any specific diet or treatment regimen.
I am grateful for this organization for having TuDiabetes. It has helped me so much understand the many dynamics of T1 diabetes through open discussions and blogs from other diabetics. Before I joined I had 5 years of frustration and misdiagnoses from doctors. I have learner how to get a lower A1c, true side effects of Mersey and how to avoid lows while excercising. I don't feel alone anymore and I am grateful for that :)
I just came across this website and I have to say I am so happy to see that there are sites like this out there. My sister died at a young age due to complications of diabetes. There weren’t sites like this when she was alive. I believe it would’ve made such a difference in the quality of her life to be able to be part of a community that allowed her to comfortably be a diabetic. Now that I’ve found it I must volunteer!
Thanks so much for sharing the story about your sister (we are really sorry to hear she's no longer with us) and thanks for your thoughts about TuDiabetes! You can contact us through the Volunteer Form on the DHF web site: http://tud4.us/dl8p96
The TuDiabetes Website sponsored by The Diabetes Hands Foundation is an important gathering place for diabetes sufferers to meet and greet each other while exchanging solutions to common issues with testing equipment, foods and life experiences all with good humor. This website is a source of comfort and insight that is very unique. Thank you Manny Hernandez for creating this venue.
Review from Guidestar
The Diabetes Hand Foundation sponsors TuDiabetes, a message board for diabetics. I have been diabetic for almost 27 years now and suffer from some complications. I have learned a lot being able to talk to other diabetics online and also enjoy being able to help others by sharing the things that I know. I have gastroparesis and doctors were not able to help me figure out how to get good blood sugar control - I learned that by talking to others with the same problem. TuDiabetes has been a life changer for me and really appreciate the fact that Manny and others work hard to provide the message board for us.
Review from Guidestar
This Diabetes is like 5 things: Your family, friend, lover, protagonist, teacher, lifelong friend. In life you can't go at it alone in any big situation. These are the people to have on board. Dr Michael Hutch PhD
Review from Guidestar
Five key points: People are so welcoming knowledgabe diverse honest controversial! This means the interactions are very much real-world and applicable to one's own life.
Michael, Thanks for the keen and insightful assessment of the TuDiabetes membership. Glad we're able to help!!
Diabetes Hands Foundation has been a tremendous help to me and my family, not only by keeping us in check on what is new in the diabetes world, but also it gives us so much support and it make us feel like we are not alone with this condition. It is a great place to talk, to keep your numbers in check and meet good people from around the world that are having the same problems that you are. It is also run by great administrators that are always on top of all the forums in the community and are looking forward to help you and all the rest of the people that is suffering with diabetics.
My work with Diabetes Hands Foundation has shown me how engaged and concerned they are on raising awarenes about diabetes and giving support to every member. They do it in ways one cannot imagine as an outsider, even by publishing a poetry book written by regular people whose inspiration is to have this condition. I can only support and recommend Diabetes Hands Foundation for their courage, involvement, and extend reached so far.
I'm recently released from prison, after serving almost 4 years in a system that is with out question broken; is especially so for Type 1 Diabetics. My family used tudiabetes.com to help me get words of advice and encouragement all through the duration of my times behind bars. In doing so I was able to extend my hand to the other diabetics that I was locked up with, to better help them deal with the msny issues diabetics face behind bars. Now that Im out , I remain an active member of the tudiabetes.com site, and give and receive input on an almost daily basis.. Im grateful that sites liked this, and as I continue my lifes' journey hope I continue to find such positive outlets for dealing with such a life altering disease. Sincerely Adam Magid
I found TuDiabetes.org last summer when I was searching the Internet for information about diabetes. At the time, my doctors didn't know what type of diabetes I had and I was put through a series of tests and treatments that were making me sickier and more stressed out. Not only did I find information about diabetes, I discovered a network of people from all across the world who understood what I was going through. In the end I was diagnosed with Type 1 diabetes, and I believe it is due in large part to the encouragement I received from my friends on Tu, and the advice they offered to help me get a correct diagnosis. Type 1 diabetes is a disease of self-management. My doctors can teach me how and when to administer my insulin, dieticians can teach me how to eat, but it's up to me to take these actions and make good decisions. It is not always easy to excuse myself from a business meeting to eat or find something to occupy by infant son while I inject insulin. Some days I want to give up; some days I want to neglect my treatment. Having a resource like TuDiabetes that allows me to talk to others who are going through the same thing, helps keep my spirits up and pushes me to continue my hard work. In my personal life, I don't know anyone else who has Type 1 diabetes, so no one understands when I talk about my numbers, or my A1C or my bolus insulin. It's so nice to have support from people who do.
The diabetes hand foundation is a creative bunch of people, though they may be small they reach out to hundreds of diabetics, they created a safe haven for diabetics on their sitectudiabetes, which I frequent constantly. There site is the one place where a diabetic can feel welcomed, come with questions, or find support. They are branching out in so many ways I can't wait to see what's next. It's really nice to have a voice for this horrible disease, they make it a lot more manageable to be happy diabetics.
I have long been a fan of all that Diabetes Hands Foundation does to help anyone touched by diabetes. I frequently visit the online community tudiabetes.org to correspond with people facing the same sorts of challenges I see in my life. I find it very therapeutic to connect and communicate with those touched by diabetes.
I have gone through several new experiences to help me to control my diabetes. I started on a pump, began taking the drug Symlin, used a continuous glucose monitor, and have had an islet cell transplant. In my real life, I only know of a few adult diabetics in my community. It is so nice to be able to share my experience and live vicariously through other members with their experiences with this complex disease. The shear number of members, and its strong leadership makes this group a very positive and powerful domain.