I've worked with the Diabetes Hands Foundation since 2009. I've participated in their excellent Big Blue Test Event, participated in the TuAnalyze project and participted in 5681 discussions at TuDiabetes.org (acidrock23....). Diabetes is a unique disease in that people with diabetes are obligated to beceme their own doctors in order to treat the disease successfully. I have explored online research, both through diabetes and through fantasy baseball and I am certain that a message board, offering conversation as well as checks and balances, is the best way to find answers quickly. Diabetes Hands foundation is clearly an organization committed to being more than a message board by finding innovative and participatory methods to harness the vast amount of data accumulated by people with diabetes in informative events members are able to participate in. Please consider them strongly for your recognition. S
I have only been using the tudiabetes site for a few months now, but it is fabulous! As a diabetic for 11 years, sometimes there are frustrations that only other diabetics can understand. Having this site and their forums available to read, search, and share has made a difference in how I am able to manage my day-to-day health. The Diabetes Hands Foundation enables the help that we need, and I am grateful for them being there.
What a great organization. This is the most caring group of individuals I have ever encountered in relation to Diabetes. Upon entry volunteers greet you and direct you to the places most likely to be of interest. They let you ask questions and they care for you if you have an issue.
I find the Diabetes Hands Foundation to be an incredible resource for people with diabetes and their caregivers. It is a pleasure to be associated with the organization. For 33 years I was the only type 1 diabetic I interacted with daily. With DHF I am no longer an island facing the disease by my self. I am honored to be part of the organization.
TuDiabetes is a place where I feel normal and understood. The emotional support it provides is so vital. It's amazing to connect with other people who are walking the same path and motivates and encourages me to manage my health proactively. I've also learnt a HUGE amount about diabetes and feel far better qualified to make well-informed decisions about my health that will ensure that I have a happy future, free from diabetic complications.
TuDiabetes is the first place I've found that made me feel understood and normal as a diabetic. The empathy and camaraderie I've found is invaluable to me and encourages me daily in my management of diabetes. The collective wisdom and knowledge I've found is incredible. I'd recommend that any diabetic use it.
Encouraging, always helpful, I can rely on both staff and other community members to get dependable and accurate information.
Diabetes was a very solitary disease until I found TuDiabetes. I am a librarian who is very cautious about information on the internet. TuDiabetes.org, sponsored by the Diabetes Hands Foundation, has given me a new outlook. I am still very cautious, but TuDiabetes has served a population and personal patient needs that make a huge difference in the quality of life of the diabetic patient. I have found other T1 patients who have experienced the same misdiagnosis that I did. I have obtained information about research studies looking for patient volunteers and participated in 2012 and 2013. I found Insulin for Life, an organizaiton that accepts donations of diabetes supplies. I will be donating supplies this week. Simple problems ( ie Where do you put an insulin pump on a Mother of the Bride dress?) can be answered by experienced "pumpers" on TuDiabetes. Problem solved.
I have shared the TuDiabetes website with anyone who might be interested, such as an emergency room doctor in Alaska, a radiologist in Nebraska, a dentist and family members of other T1 patients. I have shared the Big Blue Test with a nurse educator who works in Haiti and college physical education teachers in NY. I have participated in the Big Blue Test for 2 years, read books recommended by the other TuDiabetes members, and participated in the webinars with diabetes experts. I am very encouraged to see diabetes patients on the website who have managed their blood glucose for decades. The TuBiabetes members and the staff of the Diabetes Hands Foundation have offered support in ways that my family and friends cannot. I have also made contributions to the Diabetes Hands Foundation.
I've been a member of TuDiabetes (run by Diabetes Hands Foundation) since the early days. I've connected with others close to me that have diabetes, I've been able to get useful and useable advice from other members. It's had a huge positive impact in my life.
DHF organizes an annual event to emphasize the importance of exercise. I've taken part in this several times, it's a great reminder that frequent exercise isn't difficult and helps me control my blood sugars.
Being diagnosed as a type 1 diabetic is frightening. Once you are done at the doctors office or hospital you are left at home, with a ton of questions and very little answers. Sure you can search online, but interaction and support from actual people, those dealing with the same things you are, is what really helps. Thanks to the Diabetes Hands Foundation support like that exists 24/7. While there may be other resources, I have yet to find more comfort, welcome and information than I have from them.
I find their website TuDiabetes to be a place were all types of diabetics whether they have Type 1, Type2 LADA, MODY , or any other type are welcome. It's a great resource for diabetes related information or it can be a place to discuss problems and issues common to diabetics. Heck, sometimes it's a place just to vent the flustrations of living with diabetes. A place to find understanding voices. I found TuDiabetes when I became an insulin dependent Type 2 diabetic. Without this foundation I don't know how I would have managed the transition to using insulin.
Thanks so much for your kind words!! We rejoice in seeing that the work of many (staff, volunteers, board) translates into people touched by diabetes not feeling alone and learning more from their peers.
Their website, tudiabetes.org, is best resource I've found for crowdsourced wisdom/experience/commiseration regarding life with diabetes. Everything from diet to devices, and lots in between is covered here.
Diabetes Hands Foundation, through their online community TuDiabetes.org, provides a well thought out, moderated community for diabetics (and their families and caregivers) to exchange information, support, photos, stories and more. It is an online oasis for those for whom diabetes can be a challenge/burden/mystery (or all of the above). I spend more time there than any other online community (sorry facebook!)
Thanks a lot for your kind words, sisiay!
Ten days before my 55th birthday I heard the doctor say "You have diabetes". The rest of that conversation is a blur. I hadn't been feeling well, but I never really get sick. Not even a cold. I ate well and was not over weight. How could this be? I knew next to nothing about diabetes. I needed desperately to learn what I needed to do. How do I eat? What did I have to do to bring my blood sugar down from the dangerous 436 that it was? I was overwhelmed. A trip to the CDE only frustrated me. All of this unknown was daunting. Where and how could I ever get the knowledge I needed to save my life? I knew I could not spend the kind of time it would require simply making Dr. appointments.TuDiabetes was the answer. Somehow in that early fog of uncertainty my wonderful wife came across a link. A community, a home with answers. Answers to questions I didn't even know to ask. I have spent countless hours over the last year reading and learning from the experience of other people with diabetes. The fog and the fear quickly melted away. I have a much better idea now of what to expect. And, I know I have a solid resource to lean on when I need to. A wonderful support team that spans the globe. I cringe to think where I might be today without TuDiabetes. That is no exaggeration. This is truly how I feel about DHF and TuD. They have become a critical member of my healthcare team. Knowledge is power and support is key.
Thank you for your kind words, Randy! We are honored to be able to serve you the way you describe...
The Diabetes Hands Foundation operates an online community known as TuDiabetes which is an ever-growing community of people who are going through the same things in their day-to-day lives.
A place where someone who is Diabetic can be just that, a Diabetic, or a place where someone newly diagnosed can come to get advice on how to cope and handle with what life has thrown at them. TuDiabetes is a place to remind you that you are not alone.
I just joined a couple of weeks back, and already I'm diving into the community. I've even found myself in situations where I can't wait to see a reply, or what someone has posted next.
It's a great community for all of us that are in the same boat, and its refreshing to know that we're not in it alone. We have eachother.
When my son was first diagnosed with Type 1 diabetes at 18 months of age, I quickly found that the literature offered by my diabetes clinic addressed the larger issues of what was happening, but didn't help with day-to-day issues, particularly in a child so young. TuDiabetes gave me a place to learn the ins and outs of parenting a child -- an infant, really -- with diabetes. The community of members has really been an active partner in my son's care, and for that I'm eternally grateful.
TuDiabetes is a wonderful place to go when you just want to talk about diabetes. Whether you need information, or suggestions for a specific problem, or just someone to listen and understand what you're going through, this is the place.
I found TuDiabetes after suffering a diabetic coma, when I was really needing to talk in order to mentally process my experience. People there really understood what I was talking about, and responded thoughtfully.
I have also enjoyed the opportunity to test my own knowledge of diabetes -- people will correct you if you're wrong!
All in all, I think TuDiabetes is the best diabetes web page out there, because of its scope, large membership, and well-thought-out organization.
The Diabetes Hands Foundation has done a fantastic job using the power of the online communities to help diabetics in need. From a donor perspective, the DHF provides a cost-effective way to reach tens of thousands of diabetics at a time. From a recipient's perspective, the online community of TuDiabetes provides an invaluable service of connecting diabetics, allowing for advice, support, and idea exchange which I believe can tangibly reduce the risk of complications for diabetics.
Review from Guidestar
Diabetes Hans Foundation have been very important for my family because they teach us how take care with our diabetic problem. We learn the important to eat quality food not only for to have the ideal weight for the health but to avoit the consequence to not take care of our conditions of diabetic person. We also have learn the important thing that is to do exercise every day. Thank to everybody who do a hard work to help us.
I was new to type 2 diabetes when I discovered TuDiabetes and the Diabetes Hand Foundation. Thanks to this great organization I gained valuable information towards managing my diabetes, and met others who shared in my struggle. My contacts with this organization led to me becoming a columnist for dLife.com, http://www.dlife.com/dLife/do/ShowContent/daily_living/Viewpoints/grubb_bio.html
DHF is a fantastic source of information. They bring the information together in one place eliminating the searching, digging, and sifting thru everything that is out there to get to the good, reliable information.
I stumbled onto the tuDiabetes web site and found myself joining a group of extraordinary people. I was recently diagnosed with type II diabetes and after talking with some of the people I seen how not alone I was. I learned more about the disease from chatting with people than I did from my own doctor. I learned how important it is to have the right doctor assisting with your case. In essence, I learned a lot from these people about how to cope with my disease and how to take the steps to beat it. The administrative staff are wonderful caring people. The very unfortunate thing is meeting such a great group and coming together with these people required my having this disease. I wish we could have met under different circumstances.
I don't remember how I started going to tudiabetes, but I will never stray from it. This site gives me the opportunity to discuss my heath issues with others who are both professionals and patients. I never feel like I'm being talked down to or scolded. It is a place for learning and making friends who know your world. I didn't realize it before becoming diabetic, but it is a whole different world then most deal with. Tudiabetes gave me the confidence to face this world head on. They have been my friends and family. Please consider them for this grant. I can't imagine who deserves it more.