My experience is as a monthly donor. CureJM is not only worthy but is highly efficient. The main purpose of all fund raising is to support research that will lead to a cure. A secondary purpose is to inform doctors about JM so that the disease can be identified in a child as soon as possible. CureJM is efficient and has very low overhead. I am confident that my money is well spent and that CureJM is critical if a cure for JM is to be found.
The Cure JM Foundation was so important to our family when our grandchild was diagnosed. We found the website was a place where we could gather information, then ask questions of other JM families. We always felt someone was on the journey with us. We were never alone, even though JM is so rare.
We feel confident that any money we raise will go directly to research studies to find a cure. Cure JM is very transparent.
Nana and Papa
Cure JM is a wonderful organization dedicated to finding a cure for Juvenile Myositis. I am proud to raise awareness and funds for these children. Over 91% of all donations go directly to research to find a cure.
I first became aware of the Cure JM Foundation through a co-worker who's son had been diagnosed with JDM. I have seen first hand the good they do through outreach and support for the families and the kids. Plus they are getting money over to researchers to support the finding of new treatments. A small non-profit doing great things.
Cure JM is comprised on the most passionate and giving families I've ever met. I first learned about Cure JM as one of my dear friend's son was battling this horrific disease. From the get go I learned how much time, energy and commitment everyone associated with Cure JM puts toward helping every family with Cure JM and their amazing and relentless focus on fundraising so one day there will be a cure. I started donating to Cure JM about 8 years ago and they continue to be my # 1 charity of choice. I know with Cure JM my money is going to critical research. My friend's son lost his battle. While he endured painful treatments he was always making people laugh and an inspiration to all to find a cure. I'm forever grateful Cure JM is ensuring we fund that critical research so one day these precious kids and their families won't have to endure JM/JDM.
Our daughter was diagnosed 16 years ago with juvenile dermatomyositis. Cure JM was in its infancy but was so supportive and helped guide us through a very difficult time. Even though our daughter is in remission we are still involved with the Cure JM Foundation. We are so grateful for all the guidance and knowledge we have received over the years. There is no better nonprofit around!!
I have been involved with Cure JM for about 10 years or so in one way or another. I was on the board for a year or two and enjoyed that role. I am currently a Family Support Network volunteer. Cure JM has offered tons of information on JM and helped in countless ways to find a cure for this disease.
Cure JM is a fantastic non-profit that focuses on patients, without pricy overhead, therefore passing along a maximum percentage of donations to finding a cure and patient care.
Have always been impressed by the CureJM family. Will continue to support and gladly so.
Cure JM has been a lifesaver for my daughter and myself since the diagnosis of my granddaughter a little over two years ago. Hearing that she had juvenile dermatomyositis was confusing and frightening and Cure JM helped us with lots of information as well as a book. We have made lots of connections and helped raise funds for Cure JM, alongside many other families in the same situations. The conferences are a great place to connect and learn more. I am continually impressed with the determination and heart of Cure JM and the research that is being funded for a cure. I support this organization wholeheartedly and will not stop until we Find A Cure!!
A foundation that gives families hope, knowledge, and love when a JM diagnosis turns your life upside down. I don't know what I would of done after my daughter was dx last year if it wasn't for this foundation. I was lost, and I am so thankful I had somewhere to turn.
The Cure JM Foundation is a volunteer-managed organization dedicated to finding a cure for Juvenile Myositis (JM). JM is a group of rare and life-threatening autoimmune conditions affecting approximately 17,000 children in the United States alone.This foundation gives hope and support to familes that have to deal with JM.
My daughter was diagnosed with Juvenile Dermatomyositis in 2010. I searched for information, but the only real information that I found was on Cure JM's web site. After a while I discovered that they are the ONLY organization that is searching for a cure specifically for the juvenile population. This non-profit is run by people that have ALL been affected by this disease. They are not just looking for money- they are truly searching for a cure. Their proceeds from their fundraisers go directly to the doctor's that are researching. Not to mention their Facebook private group for family members and people suffering have helped to draw the community closer and further educate the affected population. This non-profit has been a Godsend for us and so many others!
Now that Cure JM is coming up to their 10th anniversary, I am delighted to see that they have not wavered in funding research, educating families and the medical profession and raising awareness. I wish I could give them 10 stars instead of 5. They deserve it.
This all volunteer organization continues to grow. Talk about the
"little engine that could"! Parents and grandparents find time to
fundraise on top of being full-time care givers. I pray for the
day that more research will find a cure. Then we will all shout
"Take that JDM!!!"
My son has an autoimmune disease (not JM) but we became familiar with the organization after having a hospital roommate with the disease. I have been very impressed by this grassroots organization, and wish that my son's disease had a support and fundraising network like this one. The strides these parents have made is no less than astounding, with serious contributions made to capital campaigns for serious research, networking between the affected children and parents, and providing a knowledge base that rivals some of the more well documented and supported chronic diseases. As a parent with a child who had a related illness, I have also benefited from this knowledge base, as many of the drugs and "tips" are the same. As a volunteer organization, it is well managed, and a labor of love, not burdened by ad campaigns or employee salaries. Your contribution makes a real impact on an underfunded, under-recognized, serious childhood disease here where it is needed most. As an "orphan" disease it receives little to no funding from government or healthcare sources. Supporting cure JM can really make an enormous impact, and for that reason, we are donors and supporters.