The Cure JM Foundation was so important to our family when our grandchild was diagnosed. We found the website was a place where we could gather information, then ask questions of other JM families. We always felt someone was on the journey with us. We were never alone, even though JM is so rare.
We feel confident that any money we raise will go directly to research studies to find a cure. Cure JM is very transparent.
Nana and Papa
Cure JM is a wonderful organization dedicated to finding a cure for Juvenile Myositis. I am proud to raise awareness and funds for these children. Over 91% of all donations go directly to research to find a cure.
My daughter was diagnosed with JPM in 2006. When you are told your daughter has a very rare autoimmune disease in which her body is working against itself, it is overwhelming. By the time of diagnosis, my daughter could barely walk, was in constant pain, and suffered from continual fatigue. JPM had taken so much away from her. The treatment was very aggressive, the drugs laden with side effects, and recovery was slow. A volunteer from Cure JM was often at clinic and she introduced us to organization. The support that Cure JM offers families is tremendous. Yes, the disease is rare and each case is very unique but we are not alone. Cure JM provides a community for families dealing with JM diseases. Above all of this, Cure JM and it's families raise funds to pay for medical research. This is key to finding better treatments, finding the cause, learning prevention, and someday finding a cure. I have chosen to join all of the other volunteers with Cure JM and dedicate my time to offering family support and helping to raise funds.
My daughter was diagnosed at age 12 with JDM. We watched her go from being an all-star catcher and basketball player, to being dependent on a wheelchair in just 5 months. At the appointment where we were told of the diagnosis, our doctor gave us the best advice, get involved with CureJM. When you are first diagnosed, you are like a dog on a leash. You go and do whatever you are told to do to get your child better. What CureJM does, is it sets you free to discover the world of myositis from the eyes of the parents who are with you on this journey to find a cure. You are free to ask questions, express yourself, and find peace from the doctors office and hospital visits. This foundation provides you answers, compassion, togetherness and friendship so you can get through your day and stay strong for your child. CureJM has found a way to ignite the fire of hope in the newcomers, while stoking the fires of the experienced, all in the interest of one thing, finding a cure! God bless CureJM!
As a donor and a parent of a child affected by JM it is important to me to know my donations and those I ask of my friends and family are going to be spent in the best way. The Cure JM Foundation leadership provides complete transparency and decisions are thoughtfully made where each dollar is spent. I am able to donate and ask others to support Cur JM with complete pride and confidence it is making a difference in the lives of these children.
Being diagnosed with a rare autoimmune disease we felt so alone until we found CureJM! This amazing group of families gave us hope and support! Finding a cure is the one mission and shared by all families and CureJM will make our dream come true!
CureJM is a one of a kind organization made up entirely of parents and families of kids with JM. The support I have been personally given has helped me through the last several years in fighting this incurable disease. CureJM not only raises awareness, supports families and especially parents, but raise money to fund research for the cure I believe they will ultimately be responsible for. To now be able to give back by being a parent volunteer to this incredible organization and group of parents is amazing!
Attended the 2016 CureJM National Conference and it was awesome. It was the first time my 6 year old JM child has ever me someone with the same disease. There were so many opportunities for medial updates and questions - completely invaluable. I came hope feeling validated and with direction as to what changes we needed to make in regards to her medical care. So thankful for this organization!!
CureJM brought us HOPE during the scariest time in our lives, JDM diagnosis. Attending a conference was THE BEST decision I made. It instantly connected me with other families that unserstood exactly what we were going through. More importantly, I walked away armed with valuable information that helped me make more informed decisions regarding my daughters care. It allows me to breathe knowing that we have determined smart parents and researchers fighting for a cure. Thank God for CurejM!!
Our journey started just over seventeen years ago when our daughter was diagnosed with Juvenile Dermatomyositis at the age of two. For many years we struggled with very little information. When we first were introduced to the Cure JM foundation I felt like someone finally understood what we were going through and we had a support system. Since that day there has never been a time that we needed something they have not been helpful and supportive. This organization has one goal and they are doing everything in their power to find a cure for JM so no other child has to go through what our daughter and so many other children have gone through. There is no doubt in my mind that we would not have received best possible care for our daughter without the support of the Cure JM Foundation.
My daughter was diagnosed in 1997, at that time there was little to no information to help parents of newly diagnosed children.
From the moment I made contact with Cure JM, they have made us feel like family members and have been with us every step of the way.
No concern is too big or too small, anytime I have had a question someone has been there to help.
We were given the names of two specialists that have ultimately helped turn our daughter's disease around.
Without the Cure JM Foundation I don't know how we would have gotten through the first year after my grandson was diagnosed with Juvenile Dermatomyositis. The support we received was beyond anything I expected. Now that my grandson is in remission I am more than happy to help families that are dealing with this disease and all that goes along with the diagnosis. Cure JM does so much for families with JM by supporting us and raising funds for much needed research. Meeting some of the families at the annual conference was so good for both my grandson and I. I really appreciate all they do for us and all the other families.
Since my grandson was first diagnosed 6 years ago the Cure JM Foundation has been my rock. They are always willing to help answer questions, give advice, comfort, support and rejoice the good times. Besides being a wonderful support group for families affected by JM they do everything they can to help raise awareness and research funds to help find a cure for our kids.
I have had the opportunity to attend a Cure JM Conference and learn more about this rare disease, not only from other parents going through the same thing but, from some of the leading specialists in treating and researching this disease. Cure JM funds this research so that doctor's can more easily recognize Juvenile Myositis so that our kids will get a quicker diagnosis, which is critical for a good outcome. They are also researching to find better treatments and one day a cure. Cure JM is the only foundation in the States helping parents and trying to find a cure!!! Without them I don't know how I would have gotten through the diagnosis of this disease and the last 6 years.
Cure JM has been a lifesaver for our family. It's the only organization raising funds & awareness for research and offering support to families. Cure JM is an amazing group of family and friends working together for one goal, one dream- a cure for juvenile Myositis.