My grandson, Felix, is a cranio warrior. At a time of anxious and fearful anticipation of his surgery this wonderful non-profit shared comfort, stories, reassurance and a care box with my daughter. What a wonderful service.
Our daughter is approaching her 1 years since our CVR. She was 10 months when we had the surgery. The support, knowledge, and care that this group provided really helped us get thru the process. It is so hard to see your child go thru such an extreme surgery as such a young age. Nothing can ever prepare you for what you may endure during the process because every case is different but Cranio Care Bears provides a care package that I can truly say that helped so much. You don’t know what you may or may not need during the process and this package provided those small things that mean so much. I recommend this group to anyone that is dealing with our beautiful Cranio children. Thank you for the support and love during such an hard time.
Cranio Care Bears provides information, support and care packages for infants/children (and their families) going through surgery for Craniosynostosis. It is a common, often undiagnosed, condition and it's important for folks to be able to find support. My son went through this. It's not an easy time for anyone. CCB is there with kind words, support and awesome merchandise (proceeds go to care packages).
The Cranio Care Bears are truly remarkable. They have brought to light a condition that most people have never even heard of, let alone affected by it. For the many people they help with spreading awareness and in shipping care packages, they have shown these people that they are not alone....that there is an amazing support group out there for people just like them. Not only have the Cranio Care Bears made very difficult situations for families easier to take on, they truly care and want to show the world that. Can't thank them enough for what they do!
Cranio Care Bears is a wonderful group! It's amazing how a little package in the mail from someone who has been thru what you are going thru can help your spirit during such a scary time. From the items that cover your basic needs during a hospital stay to the personal prayer chain created by so many families. Truly an awesome organization!