When our son was diagnosed with sagittal craniosynostosis the day after he was born we were completely overwhelmed and distraught. We found Cranio Care Bears online and that was the beginning of feeling like we were not on this journey alone. Their website had success stories that made us feel supported and loved. Our son received his Cranio Care Bears package 10 days before his surgery and it brought us all to tears with the amount of generosity and caring that went into the package. It had clothes, blankets, toys, snacks for us, chap stick, and many more items. Most amazingly it included hand written ribbons that formed a beautiful prayer chain that we could place on our sons bed as well as advice on what to pack. They really go above and beyond and the love they spread is amazing.
Our son was diagnosed with Craniosynostosis, but we were pretty sure that was what was going on before the diagonisis through our own research. We found Cranio Care Bears and what a great organization it is! The support they give to families during such a stressful and scary time is invaluable. They make it so easy to donate back and when you do it, you know exactly how you are helping others who are in the same boat as you!
Amazing organization! They help out cranio families by sending packages with prayer chains, candy, toiletries, pjs for kiddos, and many other things at no cost
Their care packages not only come with a lot of hospital essentials, they come full of love and hope. My husband and I were both brought to tears when we received our package. We were both so scared, but receiving this package, and reading the countless Cranio journeys assured us that we were not alone, & that our baby boy would be okay! THANK YOU FOR ALL YOU DO!
I can't thank Cranio Care Bears enough for the prayer, support, and our awesome care package during this time in my family's life. Cranio Care Bears was one of the first sites I stumbled upon while researching my son's craniosysnostosis--which I had never even heard of prior to his diagnosis. It was a pretty frightening time for us. Their site had links to support groups and info on Cranio. They prayed for my son from the very beginning when we were getting the confirmation CT scan to the day he actually had his surgery. I can't explain how important that support was for us--we weren't alone in any of this. The care packages are phenomenal! They are so thoughtful and practical. Our family has never had to experience a surgery before, this was all new. The packages include items for during and after the surgery that only an experienced parent would know you'd need--and so generous, and filled to the brim with encouragement and love. In our particular case, we were in a bit of a financial bind at the time of our son's surgery, so our package was a real blessing to us. I will always hold Cranio Care Bears dear. Thank you to everyone--from the donors, to the volunteers, to the fellow families who offer thoughts and prayers for each others' children through their surgeries. This is wonderful non-profit group.
I was lucky to find this website. My son was diagnosed at 2 and half months. The doctor didn't want to wait long. He wanted the surgery done within two weeks. I looked on pinterest to see if I could helmet decorations idea and I stumble on the cranio care bear website. It was so helpful to find other mom who had gone through what I was about to go through. The care package was so nice and sweet. Kolton is now 10 months post op and he is the wildest little boy. He will climb on anything.
I was lucky enough to stumble upon this website the day of my sons cranio surgery. Summer replied to my care package request very quickly with kind words and blessings for my sons surgery and quick recovery. The package they sent is so amazing and appreciated. It is so amazing to me all the work these two angels put into the packages and emails that they send to families all over the world. What a wonderful program this is.
I hold Cranio Care Bears near and dear to my heart! I have been extremely fortunate to have met both of the founders. They have the most huge hearts! The care package was packed with so much love and was tremendously useful during our hospital stay. I cannot say enough good things about them! If I could give them more than 5 stars, I would!
Cranio Care Bears was the friend my family most needed during the weeks and months surrounding my son, Calvin's, diagnosis and surgery. The website shared success stories that gave us hope, the care package was delivered full of useful items for us, Cal's parents, for Calvin, and a prayer chain that we all needed for strength. This is an amazing organization and I can't imagine how we would have coped without them.
I cannot begin to express how grateful I am to Cranio Care Bears. There was so much support both emotionally and educationally... I don't know how I would have gotten through the wait from diagnosis to surgery without the support. The care package with recommended packing list for surgery was great too!
The Cranio Care Bears organization...I get choked up just thinking about the comfort they brought to me and my family in the months leading up to my sons CVR surgery. The success stories, the before and after pictures and the informative tabs on their web page prepared me for the Cranio surgery and the care package, the care package was the most beautiful gift I have ever received.
I open the mail and here in this little box are all these small incredibly meaningful items. As I took each one out I knew a parent/caregiver made this box or made the box possible. There were tea packets and chap-stick, pain reliever and socks. The list goes on. It may not seem like much if I list the items to you but trust me when I tell you it grabs a hold of your heart. Just knowing that at some point the person who put this box together felt the same exact anxiety, fear, hope and pain that you feel in anticipation of your child's surgery is comforting.
The prayer chain is beautiful, it provides a sort of strength that I cannot describe. It went up on his hospital bed then onto his stroller as we made it home. It now hangs in his nursery. It is cherished.
I will never forget the support that made its way out of that little box. Thank you! Thank you! Thank you!
Cranio Care Bears was amazing during a very difficult time for our family, what they do really makes a difference. The care packages are great!!
So thankful for the awesome care package they sent prior to my son's surgery!
The most amazingly helpful and supportive group! Cranio Care Bares helped us during the toughest time of our lives - our 2 month old baby's skull surgery! Cranio Care Bears sent us a wonderful care package filled with goodies that we used during our hospital stay while our baby was in surgery and later recovering. They also have a facebook page, which is updated daily. The people running Cranio Care Bears are the most caring, selfless, and hardworking people I've met. Thank you, Cranio Care Bears! You bring hope and inspiration to all of us!!
Cranio Care Bears helped us during the toughest time in our lives as first time parents to a precious baby girl. Our daughter was diagnosed with multiple suture craniosynostosis soon after her birth and the shock and fear was total. She had her surgery, which was a success, when she was four months old. The care package we received from Cranio Care Bears was touching in many ways; what an amazing feeling to know that people across the world were thinking and praying for our little daughter and us!
We got an amazing care package from these amazing women prior to our son's surgery. Not only did we receive products we would need while in the hospital (toiletries, snacks, pjs,) we also got a list of suggested items to pack, toys for our son, a prayer chain, and a notepad to journal in. The care package was such a thoughtful way to show we were not alone and provide things we would need! They asked for prayer the day of surgery via Facebook and followed up with an email after surgery to see how he was! Family donated to cranio bears and they sent us an email letting us know. I also love being able to buy bibs, coffee traveling mug etc in honor of what our little man and to know the money goes to a great cause. I think they go above and beyond caring for other moms who were in their same situation years ago!!!
My William had cranial surgery about 8 months ago. My husband and I were extremely worried and in dread of all our child would have to face. This wonderful organization provided love, support, prayers, awareness, a forum for connection with other parents and a sweet care package including a prayer chain which we treasured. The support, love, caring helped us get through this incredibly hard time.
my son had cranio surgery and the kind ladies of the cranio Care Bears sent a care package that far exceeded my expectations! cranio Care Bears is the best organization I've ever had the privilege of knowing about! so grateful for all they do for famiies like mine!!
Cranio Care Bears is an absolutely incredible organization there for our family in the scariest time of our lives. The volunteers behind the scenes do an incredible job creating the care packages and sending such love and support during the darkest days. We couldn't have made it through our craniostynosis diagnosis if it weren't for the support of Cranio Care Bears
The organization Cranio Care Bears is so special! From the support, to the care package, and follow ups they have been great! The email that I just received from them was so sweet, they truly care about you and your child! You don't find people like this in the world these days. I just wanted to make a shout out to such amazing people! Thank you so much for everything Cranio Care Bears! SO Happy to have had your support to help make this journey easier! Happy to be on the other side! ~From Metopic Cranio Mom.