Cranio Care Bears is an amazing non-profit. They provide personal care packages and beautiful linked ribbons decorated in prayers for children having skull surgery. The most amazing thing about this non-profit is that is run by two mom's who's children were affected by craniosynostosis. In addition to the care packages they spread awareness about cranio and connect families and parents in need of support. Most people do not know what craniosynostosis is until it happens to their child or a child they love and its amazing to find this group to lean on for support during hard times. They have put a smile on our face more than once and we are so blessed to have stumbled across them!!!!
They are the best .. When my grand was going to have surgery the package wouldn't make it to the house so they sent it to the hotel the day she arrived. Love these people
My 3 month old son just had surgery for Craniosynostosis. Cranio Care Bears sent me a wonderful care package with things for the baby and for our hospital stay. It helped us feel more prepared and that someone genuinely cared.
This is by far the best thing I have ever done. I found out my daughter needed surgery when she was 2 months old. She didn't get to do surgery until 5 months. During that time I was crazy stressed and just over all a mess. Shelby found me on a Facebook page and I got sent over to this charity. The care package gave us something to look forward too, and when surgery came and we got it, it was worth the wait. We had snacks, tea, hygiene products, and omg socks! While trying to pack I was a wreck and packed all the wrong things and forgot hygiene products and socks. Hospital floors get super cold! It was so helpful in more ways than one, the ladies that do the packages do it from their heart, and it shows. They still reach out to see how we are doing. It's not just a package your getting, it's support! Thank you cranio Care Bears!
We were blessed to learn of Cranio Care Bears. Our grandson has Craniosynotosis. He had no soft spot on his head, the sutures had already grown together. He required a Sagital CVR surgery to repair and reshape his skull, to give his brain room to grow. Through Cranio Care Bears we were able to learn more about procedures and what to expect from other parents who had Been down this path. A week before the surgery Jaxon and his Momma received a care package FULL of items to help during his hospital stay. A prayer chain, books, toys, a blanket, an outfit and little hat that fit his larger then normal head, for Jaxon. There was personal hygiene items, footies, snacks, gum, mints, and breakfast bars, for his Momma. These items really did make the stay better. Most of all we knew they were there for us if we had questions and that the power of prayers from the others on the site were with Jaxon.
This is a fantastic nonprofit group! These moms give so much time and support to each and everyone of us that need support going through tough times before, during and after our journey with our kids that have craniosynostosis and other anomalies of the skull. They give us so much comfort and the care packages just help encourage us before the surgical journey begins.
After having my twins at 28 weeks and a 3 month stay in the NICU we found out one twin had Sagital crainosynisyosis and would require yet another surgery. The Craino Care Bares sent us a wonderful care package. This package included pj's, blanky, toys, a purple hat, pacifiers, and some things I sure I am forgetting for my son. Plus personal care items, snacks and gum for myself. Up until I found this organization I felt so alone. The Craino Care Bares made me feel like I was part of a community and actually had some support. Regardless of how rare crainosynisyosis is I did not feel alone any more. My son's surgery went very well and he has recovered well. Thank you Craino Care Bares you are amazing!!
Our son, Heath, was born with a very rare form of craniosynostosis, his was frontosphenoidal. After doing some research on craniosynostosis, we found Cranio Care Bears and what a blessing it was. Summer, one of the founders of the organization, her son had the same type of craniosynostosis. I emailed her our story and the next day I received an email back with encouraging words. A few days before Heath's surgery we received his care package. In the midst of fear, this package of goodies made our hearts happy. Heath will always have his prayer chain to look back on, and pictures of him in his handmade hat they provided, as well as all the other items they had that was so helpful for his hospital stay. We can not thank Cranio Care Bears enough for the support they provided in the most fearful time in our lives. Thank you, thank you, thank you!
A great organization that has helped my family and 9 week old son who had to have surgery. So thankful
Cranio Care Bears offered us a tremendous amount of support at a time when we felt very much alone. Having a child diagnosed with a relatively rare condition is very isolating and it was so nice to have a group pull us in and offer support. The care package they sent for our daughter was a bright spot at a challenging time - it was so nice to have that extra support!
This group is amazing. We found out that our one month old son needed surgery in less than a months notice for something we had never heard of. This group helped educate us, connect us to a community of others who have been through the same thing and to top it all off, sent us the most thoughtful surgery care package that has me crying tears of joy that there are strangers out there willing to help support those in need without any asks back. I am so grateful and they have inspired me to pay it forward. XO
This group helped up get through the most difficult time in our child's life. they went above and beyond what I thought with their website and support package we felt more prepared for our difficult journey. I emailed question about recovery after the fact and was responded to within the day! I love cranio care bears!!
With something so stressful going on with my baby it was extremely comforting to have this care package arrive in time to make me feel prepared, comforted and not alone. These packages are put together by people who have been in my situation, they understand. I can't thank them enough!
A beautiful group who send love, help and care to so many.nothing is worse than laying your baby. Into the arms of a surgeon. They sent my grandson a care package free of charge all the way to Australia, filled with toys clothes, prayers and thing for mum too . I was so impressed I reimbursed them the money for postage and have donated in other ways too. They have a book that I have purchased to help my grandson and his big brother can understand craniosynostosid. They are always available with advice.n
When my daughter was diagnosed with craniosynostosis, I researched everything I could on it. I finally found craniocarebears! Through them I was able to see other people's stories and talk with them about their experiences! The creators of this organization kept in contact via email (without automated replies!) which meant so much more getting to know them on a personal level. Their care package meant so much to my daughter and me. The items were everything we would need at the hospital along with items to make my daughter smile in a not so happy time. Everything about this organization is wonderful and they will always hold a special place in our hearts! They are such great people with big hearts!
Cranio Care Bears is an awesome organization. When my son was diagnosed with cranisynostosis they mailed me a care pack with some many useful things. I felt like I had a great support system thatnks to them.
My daughter was diagnosed with sagittal craniosynostosis at 3 months old. i came across this charity while trying to find some info which is very scarce.As us cranio moms know it is very hard to find information and support and this organization is doing just that, offering valid information to the anxious parents and showing that someone out there genuinely cares and is here to offer support and so much more. I personally know nobody that has gone through what i am with my child so real support is hard to find. These two woman are truly amazing. I am very appreciative!
When our son was diagnosed with sagittal craniosynostosis the day after he was born we were completely overwhelmed and distraught. We found Cranio Care Bears online and that was the beginning of feeling like we were not on this journey alone. Their website had success stories that made us feel supported and loved. Our son received his Cranio Care Bears package 10 days before his surgery and it brought us all to tears with the amount of generosity and caring that went into the package. It had clothes, blankets, toys, snacks for us, chap stick, and many more items. Most amazingly it included hand written ribbons that formed a beautiful prayer chain that we could place on our sons bed as well as advice on what to pack. They really go above and beyond and the love they spread is amazing.
Our son was diagnosed with Craniosynostosis, but we were pretty sure that was what was going on before the diagonisis through our own research. We found Cranio Care Bears and what a great organization it is! The support they give to families during such a stressful and scary time is invaluable. They make it so easy to donate back and when you do it, you know exactly how you are helping others who are in the same boat as you!