Mission: Reaching Out, Providing Help and Giving Hope.
Cornelia de Lange Syndrome is a little-known genetic birth defect that causes children to develop slowly, both mentally and physically. With the help of hundreds of volunteers, the Foundation is able to provide personal support to every family who requests it.
Target demographics: individuals with CdLS and related diagnoses
Direct beneficiaries per year: 5,300 individuals with CdLS and their family members
Geographic areas served: United States
Programs: Publications, family service support phone lines, national family conferences, Foundation sponsored family gatherings across the country
The dedication and hard work of CDLS Foundation's staff is inspiring. To witness first hand, the love and support that this team shows to each of these families is motivation enough to give to this great cause. I've witnessed first hand how a foundation member works around the clock and throughout weekends and vacations to ensure that they are personally doing their best to help all those affected. There is no greater way to explain how much they care.