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Congenital Heart Defects Families Association

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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Health, Heart & Circulatory System Diseases & Disorders, Heart & Circulatory System Diseases & Disorders Research

Mission: The Congenital Heart Defects Families Association is a Midwest not-for-profit 501(c)(3) corporation working to bring comfort and support to area families affected by congenital heart defects. Support groups, distribution of educational literature, meals cards, care packages and comfort items for children undergoing cardiac procedures are the Association’’s main focus. Additionally, the Association functions to raise money and awareness to promote congenital heart defects research through a variety of projects. One hundred percent volunteer run, the CHD Families Association strives to maximize investment in its work, not its overhead.We are the only support system in the midwest area for children with heart defects and their families. 

Geographic areas served: Kansas, Missouri and surrounding areas

Community Stories

2 Stories from Volunteers, Donors & Supporters



Rating: 5

I moved to KC from Chicago when my daughter (now nine) was one year old. She had just had a VSD repair. I felt so alone and like I didn't have anyone who was going through what we were. Later, I found out about CHD. I joined and my daughter and I have taken food to the hospital and walked the heart walk together. She does not like to draw attn. to her condition, so I follow the website. I am so happy for all the parents that have this great resource when they need it most. Every time I look at the website I cry... it takes me right back to the moment of her surgery. Valerie does an incredible job with this website. Any parent, or loved one with a child who has been through this will appreciate this great organization.



Rating: 5

Finding out that your child had a heart defect can be very isolating and scary. Being able to connect with other parents who have been there as well as the care packages when your child is having surgery is such a comfort. We live in central Kansas and that type of support isn't available here, but with the KC Groups help, we now have the benefit of support in our area as well as support in the KC When we are there.