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CHERUBS - The Association of Congenital Diaphragmatic Hernia Research

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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases Research, Health, Pediatrics Research

Mission: Our only mission at CHERUBS is to help families affected by CDH by searching for the cause, prevention and best treatments of Congenital Diaphragmatic through research and awareness while supporting the CDH community. We focus on the whole CDH community, not personal motives or missions. We believe in supporting all CDH families, no matter the medical choices that they make for their children. Our mission is to provide accurate and timely information so that parents can make the best educated decisions for their babies. Our goal is to create and provide as many services as possible so that no CDH family feels alone. We have accomplished that for over 4400 CDH families.

Results: CHERUBS 2012 Milestones and Accomplishments: * $20,000 in CDH Research Grants awarded * New Executive Board of Directors * New Parent Advisory Board * New Medical Advisory Board * New Vice-President, Ashley Barry * New Secretary, Lauren Campbell * New Treasurer, Kelly Green-Krist * Senate Bill S.3396 Introduced * Parade of Cherubs on April 19th in Washington DC to Capitol Hill * Members met with the offices of over 25 Senators * April 19th CDH Day of Awareness * Parades of Cherubs on April 19th in Chicago, Seattle, Portland, Denver, St. Louis, Peoria * UK Light up The Night on April 19th * First ever Virtual CDH Awareness Parade on April 19th * 2012 CDH Conference in San Francisco * New CHERUBS Web Site * New Facebook Forums Application created * $10,000 CDH Research Grant awarded to CHOP on December 30th (by votes) * Another $10,000 CDH Research Grant awarded to DHREAMS on December 30th * First ever Facebook Grant Contest held by a CDH charity * Over 300 care packages sent to families through our CDH HOPE Totebag project * CDH families represented at the American Pediatric Surgical Association conference * Our 2012 National Children's Memorial Day tribute honored the memories over 1000 cherubs * Texas Get-Together * Ohio Picnic * UK Get-Together in Scotland * Chicago CDH Carnival * Pennsylvania / NJ / Delaware Picnic * Denver Picnic * Indiana Get-Together * Washington Zoo Trip * Oregon members met with Senators * Oregon members represent CDH families at the opening of Randall Children's Hospital * Over 900 raffle tickets sold for the 50/50 CDH Research Raffle raising $9000 for Research * Over 10,000 Facebook Fans reached * Over 10,000 signatures reached on CDH Research Bill petition * Over 18,000 people reached in one post on Facebook * 2012 Silver Lining Newsletter Published * 2012 CDH Awareness Video * Day of 2012 CDH Awareness Video * Participated in televised Raleigh Christmas Parade * CHERUBS members in Claremont, NC Christmas Parade * CHERUBS members in Snoqualmie Days Parade * It's a Knock-Out UK Fundraiser * Masquerading Angels Ball * UK Formal Ball * CDH Awareness Calendar featuring over 1300 CDH patients * Save the Cherubs CDH Awareness Calendar * First CDH Awareness Calendar in the United Kingdom * Won Shane Co. charity contest * Won the JuJuBelle Facebook contest * Our CDH Awareness Ribbon included in St. Louis Cardinals Game to raise money for St. Louis hospital * Washington Mud Run Fundraiser * Enter Stage Left Fundraiser * UK Fishing Competition Fundraiser * Rockin' for Aidan Fundraiser * CHERUBS joins Google+, Chirpify, Pinterest, Instagram * CDH Fundraising Kits created * Cooking With Cherubs cookbook project begun * Participated in the San Francisco, Boston and Baltimore Marathons

Target demographics: families of babies born with Congenital Diaphragmatic Hernia

Geographic areas served: International

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Community Stories

87 Stories from Volunteers, Donors & Supporters

14

Board Member

Rating: 5

I am the mom to an 8 year old CDH survivor. I have been a member of CHERUBS since she was born, started serving on committees approximately 5 years ago, and have been a member of the board for almost 3 years. I served as the Treasurer for CHERUBS for about 2 years, and then moved to the role of Vice-President about a year ago. Through volunteering in these roles, I have had an inside view of CHERUBS for many years and am aware of all facets of the charity- the volunteers, the members of all 3 boards, and the finances. I am proud to say that CHERUBS is run by a team of wonderfully dedicated volunteers led by the charity's sole employee, the President of CHERUBS, Dawn Williamson. It takes a lot of hours, and people from many areas of the world, and with many talents to serve the CDH community. All of the volunteers that I have come in contact with from State Representatives, to Hospital Angels, to those who work on the various committees, to the Parent Advisory Board, and the Executive Board serve dutifully with professionalism and respect to see that families get the help they need while working to raise awareness of CDH and money to further research that is so desperately needed. From my role as Treasurer, and with continued knowledge of the finances of the charity as an executive board member, I can assure you that every donated dollar is used to the best of its ability to help the cause. Meticulous care is taken to see that donations are spent only in the manner with which the donor specifies (research, family assistance, awareness, etc.), and that money is never wasted. I am proud to count myself as a member of the CHERUBS team.

Heidi30

Client Served

Rating: 5

Tanina was born during an ice storm in 1995. With 22 years now behind us, there are still so many questions to be asked and answered about CDH. CHERUBS was the first to help parents, those children and their doctors find answers. Giving support to both grieving and survivor parents, holding conferences at low costs and just being there when no one else could be.....thank you for your honest, warm approach, your never ending work, your kindness, your friendship. You amaze me and I am forever grateful.

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2

Client Served

Rating: 5

My daughter, Tanina, was born in 1995 with CDH. She was given a 5% chance of life with multiple issues. At this time, I turned to books or research. I could find nothing on CDH. Nothing is scary.... not knowing what you are dealing with is worse than the CDH itself. Finally, Jay Wilson, Tanina's surgeon, mentioned that a group was starting up to better understand and advocate for families who have dealt with this birth defect. I became a life long member of CHERUBS. They have worked with thousands of families and worked with conferences and medical staff...all in the name of find out what CDH is. While we still may not have an answer, wwe have a core base of people dedicated to finding an answer, helping those afflicted and giving hope to all. Tanina graduated from St. Paul's School in Concord, NH. She is a softball pitcher and plays a concert flute as well as sings as the head of her section in the choir. She will attend Lafayette College this fall as a neuroscience major. Well done, my child. Thank you for your support, CHERUBS!

1 Rhonda47

Client Served

Rating: 5

December 29, 1992 my son Preston was born with CDH. Jan 1993 I met a couple in the waiting room with their son, Shane, also a CDH newborn. We shared many triumphs and disappointments together. We also shared the inability to research or find any answers of our own. Just a paragraph or two in a very large book written in a way very hard to understand. When my son Preston passed, I had no answers or understanding or support from others. Because of Dawn and her heart for others to be informed, supported and not be alone, Cherubs came to be. I have been there since the birth of this charity. I have seen the heart behind its growth and love. The ups and downs, the fighting for each and every cdh family. Cherubs is what true charities are and should be about. Dawn Ireland has displayed the most incredible dedication I have ever seen in anyone. Cherubs, our sons lives, will live on past our own. Helping others to live their's.

1 Jamie R.

Client Served

Rating: 5

I found CHERUBS shortly after my son passed away from CDH. The love, compassion, understanding, and honest desire to help is apparent from the get go.

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2

Volunteer

Rating: 5

After losing my son to CDH, CHERUBS had been there in every way possible to love, support and educate me.

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1

Client Served

Rating: 5

My daughter was diagnosed with a left-sided hernia while I was still pregnant with her. I had 15 weeks to research and find out everything I needed to know. CHERUBS had the most easy to understand information and support group. 7 years later and I am still in awe of this group of people and their commitment to CHERUBS!

1 Stephanie100

Client Served

Rating: 5

This charity has helped me understand more of what I go through and let me feel like part of a family that will support you through anything. I was born with cdh 28 years ago and never knew what was wrong with me or how to take care of my health.

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2

Volunteer

Rating: 5

When I found out about CHERUBS a year ago I thought it was so amazing that people are helping families know what they are about to go through and give support! This meant a lot since my family didn't have anyone when I was born with it 24 years ago. Everyone at the CHERUBS is amazing and helpful and reall knows what you are going through so you know you are not alone.

1

Client Served

Rating: 5

My son was born in 2004 with a left sided CDH! Cherubs was the only place we could find any information regarding our situation! The support during that time and even for years after helped us through the toughest time of our lives.

1 Brenda121

Client Served

Rating: 5

I first heard about Cherubs when my son was diagnosed in utero with CDH 14 years ago. I was so glad to learn that I wasn't alone on this journey. I have received wonderful support and made friendships through this group.

Shereen K.

Client Served

Rating: 5

My CDH survivor Micaela is 19 years old now. We didn't find Cherubs until about 5 years ago. Back then, we weren't given the information from the hospital about it. I felt alone in the CDH journey. It would have made all the difference in the world to have the support we receive now from Cherubs back then as a young family. We will forever be dedicated to lending a hand in any way we can to help the new families beginning their journeys with the CDH monster.

Client Served

Rating: 5

Wonderful nonprofit charity. They were extremely helpful in supporting affected family and creating awareness!!

Debbie197

Client Served

Rating: 5

Our LCDH survivor is 2 now. Cherubs helped so much. Finding support and information in a time of fear was such a blessing.

1

Client Served

Rating: 5

Cherubs has been an amazing support for us since getting our son's diagnosis of CDH!❤

1

Client Served

Rating: 5

My son was born with CDH and this charity welcomed us and made us feel like we had answers, support and someone we could go to just to listen in a very tough time. They sent us a care kit with a handmade hat and adjusted baby's first book to explain the time he had in the nicu. It's thoughtful things like that that make this charity above all others!

Katerina M.

Client Served

Rating: 5

Without Cherubs this journey would be so much harder. I learned most of it I know today about CDH because of Cherubs.

Lindsey33

Client Served

Rating: 5

They have been so caring and supportive since our daughter was born with undiagnosed CDH. They sent a totebag with goodies for us and EK while she was in the hospital. The most in depth information I was able to find while after our daughter was born!

Client Served

Rating: 5

I'm a Nannie to a 2 yr old survivor who is still fighting!! Without CHERUBS we would have been LOST!! Love love love the SUPPORT they GIVE TO EACH FAMILY!! CDH is a VERY LONELEY DIAGNOSIS until you get contacted and supported by CHERUBS!! They are the BEST!!

Client Served

Rating: 5

The tote bag project is amazing for expectant mothers. Such a relief to have a community to connect with while going through pregnancy and life with a CDH child. We also received a financial grant that really helped with the cost of making a daily 200 mile commute to see our child.

Client Served

Rating: 5

Cherubs is a wonderful organization. We are forever grateful for them always being there to answer our questions.

Client Served

Rating: 5

I love CHERUBS and would be lost with out them! It's nice to connect with families that understand what you are going through and who can share their experience. I had never heard of CDH until the day my son was born and the NICU doctor told me he was born with this birth defect. I love that they are taking ACTION raising awareness and funds for more research. CHERUBS has made the scariest times of our life much easier with the volunteers support and love! We will be forever grateful!

Hope C.

Client Served

Rating: 5

Our son was diagnosed with CDH in 2001. Our high risk pregnancy specialist told us to go to the CHERUBS website for "anything CDH related. They will have the most up to date and accurate information." CHERUBS was our guiding light from day 1 and still are. We have connected with families on a personal level because of CHERUBS. We have participated in research studies and felt endless support from the charity. Our lives were forever changed for the better because of CHERUBS and it continues! What a blessing! We have a 13 year old survivor of CDH and we are so grateful for all the love, support and guidance we have had through our CDH journey.

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2

Client Served

Rating: 5

It will be 12 years ago this coming October that we got the devastating diagnosis of CDH in our unborn child. At our first visit with the high risk pregnancy specialist, he gave us all the information about CDH. We were so completely overwhelmed. At the end if our appointment with him, he said, "when you get home, Google 'CHERUBS', as in angels, cherubs". It was a life changing moment for us when we found CHEUBS. We are so grateful for the up to date information we always get from them and for the outpouring of support we have always felt. We knew we were never alone in the struggles we faced with a survivor of this horrible birth defect. Last year we got to meet Dawn and it was honestly one of the most amazing experiences of our lives. CHERUBS cares about their members and everyone that CDH touches. Our lives are truly blessed by being directed to CHERUBS. I have life long friends that I only know because of CHERUBS. I am so very grateful for this charity and all of the people in it that have so deeply effected our lives. Thank you CHERUBS!

Client Served

Rating: 5

Phenomenal organization. Compassionate, educational, supportive, dependable communication. Thank heavens they have been available for us.