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CHERUBS - The Association of Congenital Diaphragmatic Hernia Research

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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases Research, Health, Pediatrics Research

Mission: Our only mission at CHERUBS is to help families affected by CDH by searching for the cause, prevention and best treatments of Congenital Diaphragmatic through research and awareness while supporting the CDH community. We focus on the whole CDH community, not personal motives or missions. We believe in supporting all CDH families, no matter the medical choices that they make for their children. Our mission is to provide accurate and timely information so that parents can make the best educated decisions for their babies. Our goal is to create and provide as many services as possible so that no CDH family feels alone. We have accomplished that for over 4400 CDH families.

Results: CHERUBS 2012 Milestones and Accomplishments: * $20,000 in CDH Research Grants awarded * New Executive Board of Directors * New Parent Advisory Board * New Medical Advisory Board * New Vice-President, Ashley Barry * New Secretary, Lauren Campbell * New Treasurer, Kelly Green-Krist * Senate Bill S.3396 Introduced * Parade of Cherubs on April 19th in Washington DC to Capitol Hill * Members met with the offices of over 25 Senators * April 19th CDH Day of Awareness * Parades of Cherubs on April 19th in Chicago, Seattle, Portland, Denver, St. Louis, Peoria * UK Light up The Night on April 19th * First ever Virtual CDH Awareness Parade on April 19th * 2012 CDH Conference in San Francisco * New CHERUBS Web Site * New Facebook Forums Application created * $10,000 CDH Research Grant awarded to CHOP on December 30th (by votes) * Another $10,000 CDH Research Grant awarded to DHREAMS on December 30th * First ever Facebook Grant Contest held by a CDH charity * Over 300 care packages sent to families through our CDH HOPE Totebag project * CDH families represented at the American Pediatric Surgical Association conference * Our 2012 National Children's Memorial Day tribute honored the memories over 1000 cherubs * Texas Get-Together * Ohio Picnic * UK Get-Together in Scotland * Chicago CDH Carnival * Pennsylvania / NJ / Delaware Picnic * Denver Picnic * Indiana Get-Together * Washington Zoo Trip * Oregon members met with Senators * Oregon members represent CDH families at the opening of Randall Children's Hospital * Over 900 raffle tickets sold for the 50/50 CDH Research Raffle raising $9000 for Research * Over 10,000 Facebook Fans reached * Over 10,000 signatures reached on CDH Research Bill petition * Over 18,000 people reached in one post on Facebook * 2012 Silver Lining Newsletter Published * 2012 CDH Awareness Video * Day of 2012 CDH Awareness Video * Participated in televised Raleigh Christmas Parade * CHERUBS members in Claremont, NC Christmas Parade * CHERUBS members in Snoqualmie Days Parade * It's a Knock-Out UK Fundraiser * Masquerading Angels Ball * UK Formal Ball * CDH Awareness Calendar featuring over 1300 CDH patients * Save the Cherubs CDH Awareness Calendar * First CDH Awareness Calendar in the United Kingdom * Won Shane Co. charity contest * Won the JuJuBelle Facebook contest * Our CDH Awareness Ribbon included in St. Louis Cardinals Game to raise money for St. Louis hospital * Washington Mud Run Fundraiser * Enter Stage Left Fundraiser * UK Fishing Competition Fundraiser * Rockin' for Aidan Fundraiser * CHERUBS joins Google+, Chirpify, Pinterest, Instagram * CDH Fundraising Kits created * Cooking With Cherubs cookbook project begun * Participated in the San Francisco, Boston and Baltimore Marathons

Target demographics: families of babies born with Congenital Diaphragmatic Hernia

Geographic areas served: International

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Community Stories

73 Stories from Volunteers, Donors & Supporters

14

Board Member

Rating: 5

I am the mom to an 8 year old CDH survivor. I have been a member of CHERUBS since she was born, started serving on committees approximately 5 years ago, and have been a member of the board for almost 3 years. I served as the Treasurer for CHERUBS for about 2 years, and then moved to the role of Vice-President about a year ago. Through volunteering in these roles, I have had an inside view of CHERUBS for many years and am aware of all facets of the charity- the volunteers, the members of all 3 boards, and the finances. I am proud to say that CHERUBS is run by a team of wonderfully dedicated volunteers led by the charity's sole employee, the President of CHERUBS, Dawn Williamson. It takes a lot of hours, and people from many areas of the world, and with many talents to serve the CDH community. All of the volunteers that I have come in contact with from State Representatives, to Hospital Angels, to those who work on the various committees, to the Parent Advisory Board, and the Executive Board serve dutifully with professionalism and respect to see that families get the help they need while working to raise awareness of CDH and money to further research that is so desperately needed. From my role as Treasurer, and with continued knowledge of the finances of the charity as an executive board member, I can assure you that every donated dollar is used to the best of its ability to help the cause. Meticulous care is taken to see that donations are spent only in the manner with which the donor specifies (research, family assistance, awareness, etc.), and that money is never wasted. I am proud to count myself as a member of the CHERUBS team.

AmandaP

Volunteer

Rating: 5

Cherubs has been a great support for my family since I joined 6 years ago. We had support through 3 surgeries my Cherub had and lots of ups and downs. We have been fortunate enough to meet 15 other CDH families because of Cherubs!!! I now volunteer because Cherubs is such an important organization to me.

Previous Stories

Volunteer

Rating: 5

Cherubs helps families all around the world. CDH is a birth defect that is so unknown families have to search for information. Cherubs provides a safe, knowledgeable and caring environment for families to share their experiences and support each other. Cherubs does so much with so little funding. Every year my CDH'er does a walk to raise funds to donate to Cherubs for CDH research. I am proud to be a volunteer for Cherubs!

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2

Volunteer

Rating: 5

I'm 23 1/2 year old severe left CDH survivor, also got PH ( Pulmonary Hypertension) from CDH. I found Cherubs around my 23rd bday, since then I've learned more and helping many family's that mention PH with there little CDH baby if they survived or soon after passed from the two. Become as roll model oldest patient with combo of CDH and PH which is not common at all. 1 out of 4 in family, 3 healthy siblings. There needs to be more awareness and word about Congenital Diaphragmatic Hernia around the world research to find a cure!!!

1

Volunteer

Rating: 5

When Dawn's (Cherubs' CEO and founder) baby Shane was born with CDH over 20 years, there was no outside support and very little information available to her about this critical condition. She promised herself that she would do everything in her power to never allow any other CDH parent to be alone and without support. Unfortunately Shane passed away at age 6. Shane was and is Dawn's only child. Dawn has devoted her life to help CDH babies by offering support, information, monetary support (limited because of funding) and most of all doing everything in her power to raise funds and awareness for a cure/prevention of CDH through research. Most of these years Dawn operated on a shoestring budget and without pay. Because of her hard work and compassion, Cherubs has grown to several thousand members. Dawn is totally hands on ... tirelessly working in the trenches, lobbying congress for CDH research funding. I have been a member/volunteer for over 20 years, so I have seen Dawn's dedication and Cherubs' growth firsthand. Dawn has some very devoted volunteers that have done an amazing job. To name a few-- Josh, Tracy, Felicia, Ashley and Nicolle among many others.

Previous Stories
1

Volunteer

Rating: 5

Thank you Cherubs for all the support you have given to 1,000's of CDH families. The President, Dawn's, cherub Shane passed away a long time ago. Dawn has carried on his legacy in hopes to help research find a way to prevent this terrible birth defect from happening to others.

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1 Lizz L.

Volunteer

Rating: 5

As a CDH survivor, I went the first 36 years of my life thinking I was an anomaly. Then I found CHERUBS. Now, eight years later I have met other survivors and grieving families who have become like family to me. Some of my best friends now are ones I met through CHERUBS. Now, at a volunteer, I have the chance to give back and give hope.

Previous Stories
2

Volunteer

Rating: 5

As an adult CDH survivor, I had never in my life known anyone else who had heard of the condition, much less had experienced it. As far as I knew, I stood alone. When I found CHERUBS, I immediately became connected to thousands of families who had been through the nightmare of CDH and gave me insight into what my own parents went through.
As a parent myself, I have had to face the possibility that my own children may also be victims of CDH. Thankfully, they were all born perfectly healthy. This also enables me to give hope to other survivors that they will be able to become parents themselves and lead "normal" lives.
Through CHERUBS I have made some of the best friends a person could ask for and I cherish that.

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1 Jamie R.

Client Served

Rating: 5

I found CHERUBS shortly after my son passed away from CDH. The love, compassion, understanding, and honest desire to help is apparent from the get go.

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2

Volunteer

Rating: 5

After losing my son to CDH, CHERUBS had been there in every way possible to love, support and educate me.

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Volunteer

Rating: 5

I am a CDH mom and I volunteer for CHERUBS. I am proud of the work being done at CHERUBS and the transparency of the charity. I know that I am helping people through their journey because others helped me through ours. Thank you CHERUBS for being such a great charity.

Sara Y.

Volunteer

Rating: 5

We love the cherubs!! They have help my family out in so many ways when I found out my daughter would be born with CDH

1 Sara140

Volunteer

Rating: 5

Love them and the work they do fro CDH families! I have been blessed to see a local family helped with the CDH journey of their angel, who was here for 12 days.

1 Bethany P.

Volunteer

Rating: 5

I have a RCDH survivor who is 3 years old. Cherubs has been a awesome support for myself and my family so glad I have them!!

1

Volunteer

Rating: 5

This charity supported my family and I through the loss of my son. It is filled with amazing supportive people. They have given us opportunities to raise awareness about a horrible birth defect that many do not know about as well as allow us to participate and be a part of the family.

Allie6

Volunteer

Rating: 5

Cherubs has given me the opportunity to fulfill a promise to my daughter that I made to her as she was dying in my arms; the promise to continue to fight for her as I knew she couldn't fight anymore. They have paved the way to join a movement of strong brave courageous parents and children that live the unimaginable. I am deeply grateful for this organization and everything they do.

1 Cici1gm

Volunteer

Rating: 5

My daughter is a 28 year old survivor and I wish we had ha CHERUBS when she was born. We were alone in our journey. When she had to have surgery several years ago for a vowel obstruction related to her CDH diagnosis, we found CHERUBS. This is not just a charity. This is a family where there is so much information, compassion, love and prayers for all. My daughter and I now volunteer for CHERUBS. I am just so thankful they are there so no family will ever walk this journey alone again.

Previous Stories
1

Volunteer

Rating: 5

There was no CHERUBS when mydaughterwas born in 1986. We found CHERUBS a few years ago when I was researching adults with CDH. This is when I found CHERUBS. We have learned more since finding other families through CHERUBS than adult family practice doctors ever knew. Thank you all!!!! Love our CHERUBS!!!

Review from Guidestar

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Volunteer

Rating: 5

My son Aaron was born 15 years ago with CDH. Cherubs has been there for us from the beginning. Through our repairs and recovery in recent years and still there through our hard times as well as our praises! We would be lost without them.

Janice15

Volunteer

Rating: 5

I have a 24 year old survivour my daughter Angel I have been involved with CHERUBS from the beginning and this charity does all it can for kids and families that deal with CDH it is a long hard road that is made easier knowing that there are other families that you can connect with

Previous Stories

Volunteer

Rating: 5

Being the mother of a 22 year-old daughter who was born with CDH I only wish that CHERUBS would have been there when she was born. After talking to Dawn after she had Shane and joining and volunteering with this great support group I wouldnt take anything for the experience realizing that we are not alone in this fight with this horrible defect and even at this stage learning more has helped me become a better mother not only to my daughter but to her older brother as well. I would and do recomined this support group to other.

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1 Sarah200

Volunteer

Rating: 5

Wish I'd found CHERUBS when my son was here! Great people doing an amazing job simply because it needs done and they love doing it! Everyone has one goal; helping CDH families. Wait; make that two goals. We also want to put CDH on the map, like breast cancer and autism. We want the recognition, the awareness, and the research!

Review from Guidestar

2 AliciaG

Volunteer

Rating: 5

I volunteer for CHERUBS as a Hospital Angel. I am very proud to give back to them as I am eternally grateful for all they have done for me & my family in the last 3-1/2 years!

CHERUBS is more than just a group to me, they are truly like a second family. After my son Jayden died I was so devastated I locked myself away and was on the verge of wanting to end everything, but just when I was at my worst, my mom showed me CHERUBS. Once I saw what they were about and got to know some of the AMAZING people who not only TRULY knew my pain and wanted to help me in my time of need and beyond, I found that because of the support and LOVE of these selfless, caring, open, and understanding people I had truly found a renewed sense of purpose and reason to live!

Now because of finding this WONDERFUL community I now have a passion and drive for life and have met some of the most amazing, wonderful, and close friends I have EVER had that I NEVER would have met would it not have been for CHERUBS! I also now have a new mission and goal in my life to help other families like us and let them know they are not alone, and we will be there for them in ANY way they may want/need just like all the amazing families before me did for my family in this wonderful group.

My biggest hope and goal for this charity is to raise enough money and awareness to put to more research to help us someday find the answers, and in return find an end so no more babies die or suffer... pure and simple.

Thank you for listening and THANK YOU TO CHERUBS FOR ALWAYS BEING THERE AND HELPING TO SAVE MY LIFE WHEN IT COUNTED MOST .

4 Zoe B.

Volunteer

Rating: 5

In 2010 our Daughter, (Angel Cherub) Libby, was diagnosed with CDH at the 20 week scan. We came home and Googled CDH and thankfully found CHERUBS! Over the past 3 years we have received the most amazing support from people that we now regard as Family. We will be forever grateful for all the hard work that CHERUBS members do. We have made some great friends! I have recently decided to Volunteer in the hope to help other families and am really looking forward to working with so many kind and inspirational people xx

3 JadeHunt

Volunteer

Rating: 5

Since finding CHERUBS aafter the passing of my son, Liam Anthony Hunt, I have been blessed to connect with a network of incredible people! Members of CHERUBS have reached out to me and my family in a number of ways and have inspired us to find positive ways to give back and reach out to others affected by CDH. This will be my second year as the Vermont State Representative and I hope to continue in this role for many years to come to not only honor the memory of my gorgeous Angel CHERUB, Liam, but to help to many families that are affected by this devastating defect in my home state and nationwide. It is my honor and priviledge to be apart of such an incredible organization!

2 Megan50

Volunteer

Rating: 5

With my CDHer being my first child. I had never heard of CDH until she was officially diagnosed with it. It was great to find a charity that had so much support and love. They treat you like family and after being a part of the charity for the past 9 years they have become family. What a wonderful thing to be a part of!

2

Volunteer

Rating: 5

CHERUBS has been a blessing to both me and thousands of other families. If CHERUBS had been around when I was born, my parents would have been able to relate to others going through the same situation as well as get answers to questions that the Dr's could not answer. The amount of support that each volunteer and member gives is overwhelming. I am honored to be a state rep and honored to pay it forward to each new member. CHERUBS also has the most kind hearted CEO. Dawn gives and gives. The love she has for her son carries over to the members of CHERUBS.