I am the mom to an 8 year old CDH survivor. I have been a member of CHERUBS since she was born, started serving on committees approximately 5 years ago, and have been a member of the board for almost 3 years. I served as the Treasurer for CHERUBS for about 2 years, and then moved to the role of Vice-President about a year ago. Through volunteering in these roles, I have had an inside view of CHERUBS for many years and am aware of all facets of the charity- the volunteers, the members of all 3 boards, and the finances. I am proud to say that CHERUBS is run by a team of wonderfully dedicated volunteers led by the charity's sole employee, the President of CHERUBS, Dawn Williamson. It takes a lot of hours, and people from many areas of the world, and with many talents to serve the CDH community. All of the volunteers that I have come in contact with from State Representatives, to Hospital Angels, to those who work on the various committees, to the Parent Advisory Board, and the Executive Board serve dutifully with professionalism and respect to see that families get the help they need while working to raise awareness of CDH and money to further research that is so desperately needed. From my role as Treasurer, and with continued knowledge of the finances of the charity as an executive board member, I can assure you that every donated dollar is used to the best of its ability to help the cause. Meticulous care is taken to see that donations are spent only in the manner with which the donor specifies (research, family assistance, awareness, etc.), and that money is never wasted. I am proud to count myself as a member of the CHERUBS team.
Cherubs has been a great support for my family since I joined 6 years ago. We had support through 3 surgeries my Cherub had and lots of ups and downs. We have been fortunate enough to meet 15 other CDH families because of Cherubs!!! I now volunteer because Cherubs is such an important organization to me.
Cherubs helps families all around the world. CDH is a birth defect that is so unknown families have to search for information. Cherubs provides a safe, knowledgeable and caring environment for families to share their experiences and support each other. Cherubs does so much with so little funding. Every year my CDH'er does a walk to raise funds to donate to Cherubs for CDH research. I am proud to be a volunteer for Cherubs!
I'm 23 1/2 year old severe left CDH survivor, also got PH ( Pulmonary Hypertension) from CDH. I found Cherubs around my 23rd bday, since then I've learned more and helping many family's that mention PH with there little CDH baby if they survived or soon after passed from the two. Become as roll model oldest patient with combo of CDH and PH which is not common at all. 1 out of 4 in family, 3 healthy siblings. There needs to be more awareness and word about Congenital Diaphragmatic Hernia around the world research to find a cure!!!
When Dawn's (Cherubs' CEO and founder) baby Shane was born with CDH over 20 years, there was no outside support and very little information available to her about this critical condition. She promised herself that she would do everything in her power to never allow any other CDH parent to be alone and without support. Unfortunately Shane passed away at age 6. Shane was and is Dawn's only child. Dawn has devoted her life to help CDH babies by offering support, information, monetary support (limited because of funding) and most of all doing everything in her power to raise funds and awareness for a cure/prevention of CDH through research. Most of these years Dawn operated on a shoestring budget and without pay. Because of her hard work and compassion, Cherubs has grown to several thousand members. Dawn is totally hands on ... tirelessly working in the trenches, lobbying congress for CDH research funding. I have been a member/volunteer for over 20 years, so I have seen Dawn's dedication and Cherubs' growth firsthand. Dawn has some very devoted volunteers that have done an amazing job. To name a few-- Josh, Tracy, Felicia, Ashley and Nicolle among many others.
Thank you Cherubs for all the support you have given to 1,000's of CDH families. The President, Dawn's, cherub Shane passed away a long time ago. Dawn has carried on his legacy in hopes to help research find a way to prevent this terrible birth defect from happening to others.
As a CDH survivor, I went the first 36 years of my life thinking I was an anomaly. Then I found CHERUBS. Now, eight years later I have met other survivors and grieving families who have become like family to me. Some of my best friends now are ones I met through CHERUBS. Now, at a volunteer, I have the chance to give back and give hope.
As an adult CDH survivor, I had never in my life known anyone else who had heard of the condition, much less had experienced it. As far as I knew, I stood alone. When I found CHERUBS, I immediately became connected to thousands of families who had been through the nightmare of CDH and gave me insight into what my own parents went through.
As a parent myself, I have had to face the possibility that my own children may also be victims of CDH. Thankfully, they were all born perfectly healthy. This also enables me to give hope to other survivors that they will be able to become parents themselves and lead "normal" lives.
Through CHERUBS I have made some of the best friends a person could ask for and I cherish that.
I am a CDH mom and I volunteer for CHERUBS. I am proud of the work being done at CHERUBS and the transparency of the charity. I know that I am helping people through their journey because others helped me through ours. Thank you CHERUBS for being such a great charity.
We love the cherubs!! They have help my family out in so many ways when I found out my daughter would be born with CDH
Love them and the work they do fro CDH families! I have been blessed to see a local family helped with the CDH journey of their angel, who was here for 12 days.
I have a RCDH survivor who is 3 years old. Cherubs has been a awesome support for myself and my family so glad I have them!!
This charity supported my family and I through the loss of my son. It is filled with amazing supportive people. They have given us opportunities to raise awareness about a horrible birth defect that many do not know about as well as allow us to participate and be a part of the family.