Despite all kinds of regular checkups by all kinds of doctors ovarian cancer stage three hit me at age 74 with my first indication of a problem a modest pain in my lower abdomen. Within three weeks of diagnosis I had to have major surgery and then chemotherapy. I was weak, scared, overwhelmed and clueless. I finally remembered that there was this amazing resource within a five minute drive of my house and called the Center. I was fortunate enough to be able to arrange a consultation with Susan Silberstein within a matter of several weeks.
She suggested a number of things to consider and how to manage the effects of the chemotherapy and I had two more follow up consultations in that first year. Susan was so knowledgeable, so kind, so practical, and so honest that I knew I gcould trust her and that gave me hope. It has taken time to implement all of her dietary suggestions, which I know are critical, but I do better all the time and I am so grateful for the resources the Center offers. The printed materials are invaluable and reasonably priced. I recommend the Center whenever I learn of someone facing cancer who I think would be willing to be open to r the kind of help the Center offers.
Dr Shane saved my life. When I started with her we talked weekly and then as I got better we moved to monthly talks. The advice I received was easy to put into use. Dr Shane would always check how I was doing. If I was off track she would give me a stern reminder of why I was doing this. My last MRI report was fantastic. (As usual I framed it)
In June, I started to share what I knew with my sister who has also been diagnosed with cancer.
Life is good. Enjoy every minute
My mother was diagnosed with an extremely agressive and rare form of brain cancer in 2006. Luckily she was well-versed in Susan's approach as she had been a volunteer at Beat Cancer for many years. My mom flipped roles from support person to client and began her work with Susan and her staff. I believe that without the Susan's knowledge, advice and insight my mom would not be here today. My mother's diagnosis was beyond grim. Chemo, double brain surgery, removal of part of her frontal lobe, a rebuilding of the brain's dura, etc.. This type of cancer had never been successfully treated without surgery.
My mother juiced, meditated, exercised, juiced some more, took supplements, the same ones that her oncologists said were anti-oxidants and therefore would lessen the effects of chemotherapy. Ha!
After the third chemotherapy treatment it was time to meet with the sino-nasal surgeon, the neurosurgeon, the anesthesiologists, etc. There was only a small window of time after chemo to perform the surgery because the cancer bounces back so quickly. This was the last meeting before my mom's 18 hour surgery which would take place within a few days time.
There were a dozen people in the room ready to plan the surgery. My mom's MRI was displayed on the screen. The nurse read the report. It was short. "There is no evidence of cancer." Silence. "I'm sorry. She has SNUC. Please double check that we have the correct image and report."
It was true. The cancer was gone. A mass in her sinus cavity, the size of a plum, was gone.
No surgeries needed. No frontal lobe removal. No rebuilding of the dura. No cutting through her skull and taking bone from her hip. None of it.
Susan's work should be awarded, applauded, funded and spread far and wide.
Life-changing? You bet.
I love how Susan and team are available to help people navigate through the cancer journey to health! Great resource!
I was diagnosed with DCIS almost two years ago. As you might imagine--it was shocking. I never smoked, didn't drink, didn't live an immoral life. I began my cycle early at age 11 and entered menopause at age 50. I had no children, previously had Ovarian Cysts, Fibrocystic Breast, and twice had Endometriosis , so I knew my risks were high for getting Cancer. When I was diagnosed, I immediately changed my diet and went nearly 95% vegetarian, gave up sweets and started fresh juicing. At some point I hit a low and was depressed and felt out of control since my family was leaning toward Conventional treatments. Finally, in browsing the internet for help after meeting with oncologists, surgeons, etc., Randi (from Beat Cancer.org) came into my life. She was encouraging, uplifting and inspirational. She helped me with diet, exercise, supplements, emotions and confidence. I truly appreciated all her help and knowledge, she was warm and inviting. I've since referred others to this site and hope they will find similar support and delight. I looked forward to my weekly calls with Randi, and she often suggested that I take time for me, and let my other family members (who were adults) care for themselves--I needed this because I have always been a care-giver.
Thanks so very much for being available and offering your services freely (donations accepted). Much of what I learned, I've shared with others. Please keep up the good work. Cut, Burn and Poison is so detrimental to the mind, body and spirit. Cancer involves the entire person and must be treated "Whole-listically".
I was diagnosed with breast cancer at the age of 38. I was anxious to learn how to get my body and mind back into balance. The ND that counseled me was instrumental in turning my life around. She provided the encouragement and education I needed to make healthy lifestyle choices.
I hope his review is not too late to be included for 2012 Great NonProfits consideration. My father was diagnosed with advanced pancreatic cancer in 2008. The average lifespan is 5.5 months, and he was not a healthy man due to serious heart disease and diabetes, as well. We have a very close family and we were desperate to fight this disease, and were introduced to CACE by a friend. We had an initial consultation call with a patient support counselor and discussed the situation and what we might be able to do if we were willing to try to make changes immediately. She was an incredible wealth of knowledge on the subject of fighting cancer with nutrition, and made us aware of how diet and nutrition can have an amazingly strong effect on the ability of your immune system to fight both the cancer itself and also stand up to the terrible side effects of chemo and radiation along the way. Not only did she educate us thoroughly, and guide us with extensive recommendations, but she gave us hope, which is of vital significance to a cancer patient when they are fighting this disease. She really became our nutrition coach and a key member of our "team" in the fight. Most importantly, my dad trusted her and stayed strong, and had literally no side effects despite a non-stop series of chemo treatments for two years. We had many consultations, at least one every month via regular update calls for us to discuss my dad's status. She answered countless questions on all aspects of my dad's diet, his symptoms, and discussed any new ideas we may have come across related to the chemo, and the diet. My dad, and our family, came to depend on these calls as the months went by, and looked forward to them as a critical part of the treatment program. My dad lived for more than 2 years with this disease until his body finally gave out in 2011, and our CACE counselor was fully engaged with us every step of the way. I can not tell you how grateful we were for the guidance and support we received. I can not imagine that there is a better source of guidance and support from any organization in this country than what we received from CACE. I can not possibly recommend this organization and our specific counselor any more highly, and would encourage anyone who needs help fighting cancer to contact them.
CACE has changed, and possibly saved, my life. Last February I received a diagnosis of lymphoma from Mayo Clinic. To POSITIVELY confirm this diagnosis they wanted to biopsy an area of my brain that could have left me blind or paralyzed. I did not agree to this and asked if there was ANYTHING else I could do for myself. They said no.....that I would just have to continue having MRIs to check on my "abnormality". What an overwhelming and helpless feeling! Who is there to talk to? From a friend, I found beatcancer.org through CACE and began having weekly hour-long talks with Randi Shayne. Can you believe they do this??!! I felt genuine concern from her and her knowledge of cancer, the body, nutrition, coping, as well as any other topic was amazing. She filled me with information and offered advice without judgement. I completely changed my eating habits, exercise routine, and way of looking at things. What a gift to have an organization that makes it possible to talk to someone like her! This month, after my 6th MRI, they decided that I most likely DO NOT have lymphoma. I TOTALLY BELIEVE that my new lifestyle was instrumental in this. What if I had that biopsy and became handicapped? I tell everyone who is facing the scary world of cancer to contact beatcancer.org. There is truly no other organization like it.
As a woman with breast cancer healing herself naturally I was very fortunate to discover beatcancer.org when I first got diagnosed and didn't know where to turn. Dr. Randi Shyane was devoted to speaking with me every week giving me valuable information, advice and encouragement. It's been over a year now and I feel fabulous. She continues to give me free consultations and I really look forward to speaking with her with each appointment. I feel like she's not only a consultant and doctor but also a friend. This organization is the only resource I know of that gives so freely their precious time and guides those of us who are scared and living with cancer with compassion, knowledge and love.
While we were only a client for a few calls, CACE was very supportive and informative in helping us make a decision on my husbands possible cancer diagnosis. Thankfully it wasn't Cancer but the resources they provided by phone and literature have helped us and many others that I have recommended. What a wonderful organization! Karen