I became involved with the Brendan B. McGinnisCongenital CMV Foundation because I too, have a son who is disabled due to the virus. I have participated for 4 years in the annual Walk-n-Rollathon in the Atlanta area and organized it this past year. My son is 29 years old and there was very little information available at the time of his diagnosis and for many years. The community outreach and educating the public is so important. Tracy is doing a wonderful service for the community by working to make the public aware of CMV and to raise donations to support research for a vaccine.
The Brenden B McGinnis COngenital CMV Foundation has been crucial in getting information out to the public, both the general public and professionals too about exactly WHAT this condition is and what it means to both the kids who have CCMV and their families. They have both also promoted, and helped fight for necessary research to develop a vaccine against cCMV. Both Tracy McGinnis and Chris Cady have children disabled by this virus so they know first had what the families who are affected by this virus are going through. They have offered both emotional and educational support to myself as my daughter who is now 7 was born with cCMV. Until finding this foundation, i felt alone in our fight unsure if the direction we were heading in was "normal" or if there was things going on with my child that i was unaware of, or what I should be looking for. My pediatrician has never knowingly treated a cCMV child, so we were both kind of "winging it". Now, with the support and network of this foundation, i know things that other parents have experienced with their children, what other doctors are saying and doing, and I feel that my child is on the right track towards the best future she can possibly have. My thanks to both Tracy Mcginnis and Chris Cady to take such an experience in their lives and share the inforation, experiences, and friendship with others so we dont all feel so alone in our battle to win the fight against congenital CMV infection.
MY YOUNGEST BABY BOY WAS DIAGNOSED AT THE AGE OF 4 MONTHS WITH MICROCEPHALY DUE TO CMV , HE IS NOW 13 YRS =) Brendan B. McGinnis Congenital CMV FOUNDATION IS ABSOLUTELY AWESOME AND SO HELPFUL ! THANK YOU
I know about the Brandan B. McGinnis cCMV foundation because my son Owynn was born with and died from cCMV. My son was 14 months old when he died. While he was alive and even now I work with this wonderful charity.