We lost our baby to CDH last year. And since then we have spoked to many organizations/charities yet none have been as heartfelt as BOH. When Elizabeth says she is there for you she means it. The warmth felt through our conversation is indescribable. Her support is unmatched. We had approached other nonprofits with ideas to help educate the public and each said no. But at BOH their belief is the more noisy wheels out in the world the better. They want as many people as possible to help spread the word of CDH. Each organization has there own agenda. But at BOH they really do care about each family. We not only received a care package but Elizabeth actually sent us a hand painted care box for our son. No other organization went to this limit. The community of BOH members also seem to be just as kind. We have established some great relationships with families through this community. Thank you Elizabeth and all the hard workers of BOH you have done so much for us. The Frias'
Through the work of Team Abel we provide support to families who have or are going to have Babies diagnosed with CDH. We have a lemonaide stand at local Farmer's Markets, and around the globe to raise money so we can help with research and needs of families. Amber is the hardest working mother of 4 with a baby who has CDH, and it is becasue of her that I wanted to be on our board, it is inspiring!
Our daughter was diagnosed with CDH and later died of CDH. We started Breath of Hope to be a network of families to help support families at the most devastating period of their lives. We wanted to give hope - where there is none. Even if your child does not live, there is hope that one day another family may not have to loose their own child. Breath of Hope was set up to be a public nonprofit organization run by volunteers who could do so in honor or memory of their children. It is a non-stock corporation - which means it is owned by no one person. Our Board of directors votes on all issues and approves the budgets, programs and financial issues. We serve anyone who contacts our organization. If you wish to have services you must contact our organization through our website not through the social media networks we are currently using.
Review from Guidestar
I am the parent of a child born with CDH. I've seen this organization grow from just a few parents sharing experiences through a Yahoo group to the wonderful supportive organization it is now. Breath of Hope, Inc. has done a tremendous job of raising awareness of this little known birth defect. BOH is tremendously supportive of families facing this diagnosis and gives them a place to come for information and support. BOH has raised money that has been specifically earmarked for CDH research.