We lost our baby to CDH last year. And since then we have spoked to many organizations/charities yet none have been as heartfelt as BOH. When Elizabeth says she is there for you she means it. The warmth felt through our conversation is indescribable. Her support is
Mission: Breath of Hope exists to combat the congenital diaphragmatic hernia birth defect. We are committed to supporting parents, children, family members and friends facing the diagnosis of a congenital diaphragmatic hernia birth defect. We carry out this mission through promoting public awareness, supporting the medical community and encouraging research efforts to one day successfully treat all those diagnosed with a congenital diaphragmatic hernia.
Results: Since 2008, we have either directly donated, help direct or encouraged, supported or assisted others to donate over $150,000 to Medical Research to benefit congenital diaphragmatic hernia research. Since 2008, we have had 34 States issue Proclamations or Resolutions and the US Senate to issue a Resolution for March 31st to be Congenital Diaphragmatic Hernia Awareness Day. We have distributed our medically reviewed materials, our expectant parent packages to hundreds of families and hospitals throughout the US and outside the US.
Target demographics: Families, anyone who may have a family in the future, grandparents, aunts, uncles - anyone who could have a relative with CDH.
Direct beneficiaries per year: Thousands have benefited from the programs and initiatives of Breath of Hope.
Geographic areas served: United States
Programs: Congenital Diaphragmatic Hernia Awareness Day Program
Expectant/New Parent Packages Program
New Parent Program
Parents of Angels Program
CDH Summit Program
Fund Raising Program
CDH Awareness Day Program
We lost our baby to CDH last year. And since then we have spoked to many organizations/charities yet none have been as heartfelt as BOH. When Elizabeth says she is there for you she means it. The warmth felt through our conversation is indescribable. Her support is unmatched. We had approached other nonprofits with ideas to help educate the public and each said no. But at BOH their belief is the more noisy wheels out in the world the better. They want as many people as possible to help spread the word of CDH.
Each organization has there own agenda. But at BOH they really do care about each family. We not only received a care package but Elizabeth actually sent us a hand painted care box for our son. No other organization went to this limit. The community of BOH members also seem to be just as kind. We have established some great relationships with families through this community. Thank you Elizabeth and all the hard workers of BOH you have done so much for us.
My son was born with CDH.
I heard about Breath of Hope from the social worker at UCSF. Breath of Hope has many families going through the same thing, and it's nice to know that you aren't alone. It's also great to be able to give advice to new parents who are just coming into this whirl wind of an experience and give them hope and encouragement.
This organization also influenced me to go out and get Congenital Diaphragmatic Hernia Awareness day a proclaimed day of awareness in the city I live in.