Mission: The mission of the Brain Tumor Foundation for Children is to provide financial assistance, social support, and information for families of children with brain and spinal cord tumors; fund research projects that improve treatment options and search for a cure; and raise public awareness of the disease and advocate on behalf of children who are affected.
Results: In the 2012 fiscal year (7/1/11 – 6/30/12), we provided $360,000 in emergency financial assistance for 300 families in the southeast through our Butterfly Fund. Since being established in 2000, this one program has provided over $1.8 million in assistance for hundreds of families – helping with items that include rent and utilities, car payments and repairs, gasoline, treatment-related travel expenses, and much more. We will continue to “Help Families Cope,” as long as needed through this and other programs that are described on our website.
Target demographics: Families of children aged birth through 21 years in the southeast who have brain and spinal cord tumors.
Geographic areas served: Southeast
Programs: The Brain Tumor Foundation for Children provides a financial assistance program (Butterfly Fund) for the families of children treated for the disease at certain hospitals in eight southeastern states (GA, FL, LA, MS, AL, KY, SC, TN); it provides information and education for families; it provides hands-on support to families (mostly in the state of Georgia); it supports research for a cure.
Donor & Volunteer Advisory
This organization's nonprofit status may have been revoked or it may have merged with another
organization or ceased operations.
My son William died from a brain tumor at the age of 1. After his death, my husband, a close friend of the family and I reached out to BTFC to see if they wanted to start a walk/run in William's memory to raise money for a cure and to help others. BTFC said YES and we worked closely with them for several years to manage the race and help grow it. While we were involved in the race it was part of our healing process. It was great to do something positive with such a painful event and the folks at BTFC were wonderful to love us and help us through it. We have since moved to Florida and are not involved in the race - however, BTFC is still doing the race each year and it gets better and better every year. I praise God for the folks at BTFC and for all that they do. They are a gift to so many people...