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2012 Top-Rated Nonprofit

Brain Tumor Foundation for Children, Inc.

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Nonprofit Overview

Causes: Brain Disorders, Cancer, Health

Mission: The mission of the Brain Tumor Foundation for Children is to provide financial assistance, social support, and information for families of children with brain and spinal cord tumors; fund research projects that improve treatment options and search for a cure; and raise public awareness of the disease and advocate on behalf of children who are affected.

Results: In the 2012 fiscal year (7/1/11 – 6/30/12), we provided $360,000 in emergency financial assistance for 300 families in the southeast through our Butterfly Fund. Since being established in 2000, this one program has provided over $1.8 million in assistance for hundreds of families – helping with items that include rent and utilities, car payments and repairs, gasoline, treatment-related travel expenses, and much more. We will continue to “Help Families Cope,” as long as needed through this and other programs that are described on our website.

Target demographics: Families of children aged birth through 21 years in the southeast who have brain and spinal cord tumors.

Geographic areas served: Southeast

Programs: The Brain Tumor Foundation for Children provides a financial assistance program (Butterfly Fund) for the families of children treated for the disease at certain hospitals in eight southeastern states (GA, FL, LA, MS, AL, KY, SC, TN); it provides information and education for families; it provides hands-on support to families (mostly in the state of Georgia); it supports research for a cure.

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This organization's nonprofit status may have been revoked or it may have merged with another organization or ceased operations.

Community Stories

24 Stories from Volunteers, Donors & Supporters

Client Served

Rating: 5

The Brain Tumor Foundation for Children offered assistance to my family while my son was being treated for a brain stem tumor. During this time, I had taken a leave of absence from my job to care for my son and with BTFC's help we were able to focus our attention where it should be on caring for our son. We are very grateful because they donated gas and grocery gift cards which helped relieve some of the financial stress on my husband and me.

Client Served

Rating: 5

Going through the devastation of having a child with a brain tumor is hard enough.... This organizations brings relief to the family to deal with financial struggles, family coping and bring happiness to the children and family affected. I don't know how I would've been able to get through this without their support and the support of my hospital's brain tumor team!


Client Served

Rating: 5

My son was diagnosed with a golf-ball sized brain tumor on October 31, 2008, when he was just 3 years old. It was the most shocking and devastating event that anyone can ever experience in their lifetime. My mind immediately went blank. I could not think of how I was going to take care of my other children, my husband, or my job. Would I ever be able to return to work? Would I lose my job? What was going to happen to my house? How was I going to pay my bills? The hoildays were coming soon, would my other children spend Thanksgiving in the hospital or get Christmas presents? Those were just a few of the million and one questions that raced through my mind within the first few hours of my son's diagnosis. Fortunately The Brain Tumor Foundation for Children (BTFC) was there to help! Within just DAYS of his diagnosis they were there. Throughout the 4 straight MONTHS that we remained in the hospital they provided meal cards (cafeteria food can be very expensive and really adds up), gift cards, and even Christmas gifts for ALL of my children! BTFC even PAID MY MORTGAGE and CAR NOTE because I had to resign from my job. They are an absolutely AMAZING organization that not only provides financial support, but the emotional support that was so desperately needed!!! My son has been to several hospitals in several different cities and I must say that BTFC has been the absolute best! They are a true blessing from God and I am so grateful for all that they have done, and continue to do. Even though we are 4 years into our fight with cancer the BTFC is still as active and helpful as they were from day 1. Thank you BTFC - you are a gift from God!

1 Shanda K.

Client Served

Rating: 5

You don't ever expect to hear the words "YOUR DAUGHTER HAS A MASS ON HER BRAIN." But I heard those exact words on October 31, 2007. Our daughter, Calla, was just 21 months old. Devastated doesn't even begin to describe how I felt. Not to mention scared outta my wits! Our family was introduced to the Brain Tumor Foundation for Children. I didn't want to "belong" to such an organization. Because that meant that, to qualify, my baby girl had a brain tumor. Yikes. Fast-forward five years later: we cannot imagine our journey without the Brain Tumor Foundation for Children. They were "there" for us. Need a shoulder to cry on? Need a listening and caring ear? Need cookies, delivered with a smile, to your inpatient hospital room? Need financial assistance for your car payment? Need just a simple hug? These BTFC peeps have got ya covered! We've had the privilege (?) of working with quite a few non-profit organizations in our daughter's medical-drama-filled life. The Brain Tumor Foundation for Children continues to be our FAVORITE charity. Not only because they do good things....but because they genuinely care. (Oh and pssst-by-the-way, Calla is now cancer-free, thank You, God!)