I've worked with AZMN for over 10 years, serving on their Board of Directors, as a Scientific Advisor, and now, mostly as a volunteer. I've been steadfast because of Barbara and Jack's dedication and positive impact AZMN on those attending the organization's various functions, especially the cancer caregivers' seminars. I'm proud to be a long-term partner and believe AZMN should be recognized for their contribution to the community. Programs are typically free, so participants can attend many programs without worrying about cost. I hope AZMN continues to receive funding and outside support, which they so deserve.
I have been a volunteer at the Cancer Caregiver Educational Programs offered quarterly and I would like to share what these programs have meant to the participants and how they have explained how cancer changes their lives.
I learned I was stronger than I ever thought I could be.
Caregivers are the in-sung heroes; cancer component magnifies it.
I was trying to do everything for myself.
I needed this program. I traveled 2 hours from Prescott to be here. I can't continue to go to my husband's support groups.
I didn't want to ask for help; especially for a family member.
I prefer to be treated as a normal person - not always being asked about my cancer; prefer to talk about baseball.
It's been difficult to try to figure out how to help my friends with cancer.
Husband is doing well after a transplant; this forced me to live in the present moment.
These programs are offered at no charge to the public. The purpose of the programs are to provide cancer caregivers practical knowledge, skills and strategies necessary to effectively care for themselves as the care for a "cancer patient". Our patients' program evaluations tell us that the following are the most beneficial: able to share our experiences with everyone who is here today.
Finding resources and emotional support.
Learning from others and their stories.
The tips for caring for myself so I can better take care of my family.
I had no idea this information was available. I'm glad the program was focused on the caregiver.
Hearing from others in similar situations/not feeling alone during this journey.
Listening to everyone on how they deal with their feelings and the patients feelings.
There are a series of educational modules that can be presented as half day programs, lunch hour programs, 2 hours programs. The modules vary from Cancer in the Workplace, Navigating the System, Communication, Holiday Stress and many more.
Fund raisers and grants are used to help support the free programs. Collaboration with partners is also important to gain state wide impact. A caregiver module has been presented yearly at the Living with Myeloma Conference with an attendance of 300+.
A Women Leaders task force has been developed to assist with fund raisers, advocacy and awareness. These women are leaders in our state and have an interest in the cancer caregiver educational programs.
Golf events; 5 k race/walk events, have promoted caregiver education, awareness and advocacy. Newsletters are sent on a regular basis to continue program awareness.
Partnerships with key organizations strengthen the message about the importance of caregiving for cancer patients on a state wide level and national level: AARP, INSYS, Arizona Caregiver Coalition, Medicare RX, Multiple Myeloma Research Foundation, AzBIO and many more.
The CEO and Founder has been on several TV and radio spots sharing information about the cancer caregiver education programs. She has also been the speaker at several events sponsored by the community or other cancer organizations.
Working with Arizona Myeloma Network gives you an opportunity to work along side the CEO and Founder, which is a rare experience these days in which there are usually layers of management. You can also experience the passion which the Founder radiates on every single program. Donations no matter how small, mean a big deal to this organization and you will be thanked for your contribution. It is a pleasure to be associated with Arizona Myeloma Network.
I have volunteered and attended the Multiple Myeloma conference for many years and each year I learn about new advances in this field. Barbara and Jack are dedicated in helping and educating patients with Multiple Myeloma throughout the year .
I have known Jack and Barbara over 8 years. They work endlessly to help patients find doctors and provide top notch conferences so patients will know the latest treatments for Multiple Myeloma. They are the best
I have been associated with Arizona Myeloma Network for over 8 years. The organization cares about helping patients and educating them on resources available to them. Barbara and Jack work endlessly in providing the best programs and events possible. They are the best.
I met founders Jack and Barbara at a support group for multiple myeloma patients. I was inspired by the mission of Arizona Myeloma Network. Their leadership is always positive and extends not only in the major cities of AZ, but to the Native A,epicanthic reservations as well. I chose to volunteer so that other patients and caregivers like myself can attend conferences for free and bring hope in the battle against myeloma. The positive leadership permeates throughout the organization, and I plan to continue in the work of AZMN.
I volunteered for one of the Caregiver Conferences last year ---- afterward; I was so energized by the commitment and enthusiasm of this phenomenal group !!! I am so greatful to be a part of such a caring team. The Arizona Myeloma Network provides education for the community ( patients and caregivers) - as well as educational support for the Navajo Nation - This organization inspires me to do more for my community on a daily basis. Thank you !!!!
Arizona Myloma Network does wonderful work educating both carers and those with the disease. Increasing awareness of the disease promotes early diagnosis and prompt treatment. The support system and outreach programs all help to spread the word about the disease and provide a better quality of life for the patients.
Arizona Myeloma Network is a caring and compassionate advocate for the caregiver and patient of all cancers but myeloma in particular. I have been working with the charity for about 5 months and am so impressed with the enthusiasm and passion that this grass roots non-profit exhibits! I feel a great sense of accomplishment and deep gratitude when I volunteer knowing that lives in my neighborhood are touched by AzMN everyday.
I was asked by ARIZONA MYELOMA NETWORK to videotape their conference in Window Rock, AZ for the first time. Having spent 21 years in video productions I have filmed dozens of seminars and conferences for various corporate clients and non profit orgs and I can say that this group of people is highly motivated, very professional, and the conference they put on was information packed. While working I personally learned a great deal about Myeloma.
Their motivation to bring this topic and conference to the Navajo Nation is right on the mark and comes from the heart to help people understand and deal with this affliction. A great group of people to be associated with.
I first became aware of Arizona Myeloma Network through their nomination for the Hon Kachina Volunteer Award. It was of special interest to me since my father battled multiple myeloma for 10 years and I saw first hand how that illness is often overlooked by many of the larger cancer charities. I was also impressed by how they actively reached out to the caregivers of MM patients by providing conferences and support groups to help them address their needs and concerns. AZMN has done an excellent job of bringing educational conferences to Arizona with top researchers and professional in the MM field. They have also reached out to the Native American tribes in the Southwest teaching their members about cancer awareness and prevention through sponsored conferences in northern Arizona.
My mom became active with AZMN after my dad was diagnosed. I have attended events as a participant in the past, and heard my mom recount her experiences as a volunteer. Dad passed about 2 months ago. I am so grateful for the friendship and support he and my mom had through AZMN. I decided to give my time, and have received so much in return.
Arizona Myeloma Network was brought to my attention in January of 2008 when my husband was diagnosed with multiple myeloma, a blood cancer with which we were totally unfamiliar. We didn’t know where to turn locally for up to date information. Barbara and Jack Kavangh have been a blessing to us on so many levels. They have provided us with the resources that we required to make informed decisions about my husband’s care. We were so impressed with the organization that we soon became volunteers with AzMN. Their annual Living with Myeloma Conference brings to the Phoenix area top physicians and researchers who share the newest information available. Sadly, my husband passed away from the disease in April, 2011. I am so proud of the work that AzMN has done for us personally and in our community that I continue to give my time and efforts so that AzMN is able to make resources and advocacy available to others who will be walking the same path.
I have seen the drive of the founders of Arizona Myeloma Network. Through the trials and tribulations that Jack and Barbara went thru many years ago battling Jack's multiple Myeloma. They saw how difficult it is to find the correct information, doctors, treatment and what new discoveries are being made to cure this cancer. They realized that new patients need help to quickly locate these resorces. AzMn is now achieving that goal by providing conferences each year to bring patient and a world class staff fo Doctors and Researchs together.
I've been volunteering with AZMN for almost a year now and have been continually impressed with the service they provide their beneficiaries and the passion they do it with. I'm looking forward to many more years of volunteering and seeing this great organization grow.