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Nonprofit Overview

Causes: Health

Mission: American Partnership For Eosinophilic Disorders (APFED) is a non-profit organization dedicated to the patients and their families coping with eosinophilic gastrointestinal disorders. APFED strives to expand education, create awareness, and support research while promoting advocacy among its members.

Results: Over this past decade, APFED has made a huge impact in all areas of its mission: education, awareness, support, and research. - Educated patients, families, healthcare providers, and the public about eosinophilic disorders and how to manage them. - Initiated groundbreaking advocacy efforts on the state and federal levels to help families secure insurance coverage for medical foods, and encouraged our governments to direct more funds to eosinophilic research. - Played a critical role in encouraging the development of comprehensive guidelines for the diagnosis and treatment of eosinophilic esophagitis. - Led the effort to develop ICD-9 codes for eosinophilic gastrointestinal disorders, which are crucial for insurance coverage of therapy and for ongoing research. - Authored the bill for National Eosinophil Awareness Week (third week of May) and worked with the community to get it passed. - Participated in the NIH working group that was assembled to define unmet research needs for eosinophilic disorders, and we were instrumental in publishing a report on these findings, charting the course for scientific breakthroughs. - Thanks to the generosity of our supporters, APFED’s Hope on the Horizon Research Fund has granted nearly $1 million in support studies that are leading us to a better understanding of eosinophilic disorders, less-invasive diagnostics, and improved therapies. We have teamed up this year with the Allergy, Asthma & Immunology Education and Research Organization, Inc. (a supporting organization to the American Academy of Allergy, Asthma & Immunology, Inc.) to offer a APFED/ARTrust™ Pilot Grant Award. This collaborative award will allow investigators from a variety of disciplines to initiate new projects relevant to eosinophilic disorders, focusing on the development of ideas which are likely to lead to future external funding.

Target demographics: fund research for Eosinophilic Disorders

Geographic areas served: Global

Programs: HOPE Research Grants Trainee Grants Education Programs Advocacy Programs

Community Stories

5 Stories from Volunteers, Donors & Supporters

Professional with expertise in this field

Rating: 5

APFED is an outstanding resource for both patients and physcians!

Professional with expertise in this field

Rating: 5

I am a clinical dietitian for an allergist in Charlotte, NC. The APFED website has served as a phenomenal resource for my patients before and after their initial visits. I have been over the moon pleased with the simplicity of the presentation of such a complex disease. I also have to thank APFED for their assistance in promoting community awareness. With their help, I started a local support group.

Professional with expertise in this field

Rating: 5

My patients have repeatedly praised the help and guidance they receive from Apfed.

Previous Stories
2

Professional with expertise in this field

Rating: 5

During my lifetime, I have worked with, supported and benefited from numerous non-profit organizations. Few, if any, have taken patient advocacy and disease awareness to the level APFED has done. APFED has addressed the needs of patients, clinicians and researchers. They work on a local, national and even international level to advance the understanding of eosinophilic disorders. This past summer I attended the annual conference and was able to feel the direct impact the organization has on so many patients lives.

16

Professional with expertise in this field

Rating: 5

APFED provides outstanding educational, advocacy and research support to a growing community of families and patients with eosinophilic diseases. Their generous support and tireless efforts have resulted in the approval of diagnostic codes for the eosinophilic gastrointestinal diseases, publication of diagnostic guidelines, national awareness days, research grants and annual patient education symposia. These efforts have broad reach and scope that touch hundreds of families across the world. While the infrastructure may be small, the passion and dedication of APFED is enormous!