I am so grateful for CleftAdvocate and for Debbie Oliver. This organization truly cares for the families that are facing the challenges of having children with cleft lips and palates. I was an emotional roller coaster when my baby was born; many times, I asked myself what did I do wrong? Did my emotions have anything to do with my baby being born that way? Did I take any medications that I shouldn’t have? Is this in my family’s genes? All of these questions were questions that I was able to get answers to by attending a conference here in Las Vegas for children born with a cleft lip and palate through CleftAdvocate. My daughter was born a month before they had a conference here in Las Vegas so this was great blessing. Hannah was born with a unilateral incomplete cleft lip and cleft soft palate and the information and help we received as a family was unbelievable. We were able to learn how to feed my baby and what to expect from every surgery she was going to have. My beautiful Hannah is 3 years old now and she is such a blessing to all of us. So grateful to this great organization that truly cares and helps families go through this journey by providing resources, information and letting us know that we were not alone raising a child with a facial difference. Thank you!
The people of this organization are like family. Years ago we were able to go to their annual conference it felt so good to be around so many people that understood as a parent and as a patient. I made lifelong friends its so great to have a place where my child would feel accepted and not alone. Its nice to have a place where I don't feel alone either. The founder and her family of this organization are exceptional! !!
I really enjoy CleftAdvocate. I have a son who is 2, born with both cleft lip & palate. I enjoy reading through all the comments people leave & seeing how everyone's individual stories compare to ours. I've learned a lot, & been able to get ideas as to why to bring to surgeries so we are prepared. (we fly from Alaska to Portland for surgeries.)
I love the Cleftadvocate and all the help I've recieved from members as well as Debbie Oliver. Anytime I have a question or concern I know I have somewhere to turn. The informative & immediate responses back regarding my son's surgeries, health insurance coverage, speech, and bottle weining have been so helpful. I can't say enough great things about the organization and what it means to me and my family.
I can't put into words what Ameriface has done for my family over the past ten years. As the mother of a child with a unilateral cleft lip and palate I didn't know where to turn when he was born in 2002. This organization and Debbie Oliver quickly came to my rescue. Within the first week of my son's birth I had connections to other mothers and specialists in the field of clefts. We were able to get feeding support and bottles donated to us through this organization. Today we still utilize Ameriface for support with ongoing surgical care, orthodontics, speech, etc. We have made many great friends along the way. I am so grateful for Ameriface.
When my grandson was born with a (surprise) bilateral cleft lip and palate we were very fortunate to find CA on the web. We were really beyond fortunate. Words can't describe the help, support, knowledge and advice we received. From our experience we have been able to pay it forward to someone else, many times along the way.