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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Centers to Support the Independence of Specific Populations, Health, Health Support

Mission: We support individuals whose facial differences are present at birth, such as cleft lip and palate, Apert, Crouzon, Treacher Collins and Moebius syndromes, vascular malformations, as well as other conditions. We also serve those who have acquired facial differences as a result of illness, disease or trauma, such as stroke, cancer, accident and fire.

Geographic areas served: United States and Internationally

Programs: cleftAdvocate Family-to-Family Connection Pathfinder Outreach Network (serving all conditions) Goldenhar Syndrome Support Network Crouzon Support Network Treacher Collins Syndrome Support Network North American Craniofacial Family Conference

Community Stories

11 Stories from Volunteers, Donors & Supporters

1 Robin53

Volunteer

Rating: 5

My family has always found comfort from the many people at Amerface. We have also been a part of helping others throughout the years and now my son is picking up and helping others.

Previous Stories

Volunteer

Rating: 5

Ameriface has been with my family since my son was a year old. They have been with us for good and the bad. I have also been able to help others due to this organization. I have become friends with many of the families and we have been able to watch our kids grow and become happy healthy teens.

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Volunteer

Rating: 3

Looking for an organization or community event that my daughter and her friends can help in with other children their age who have disabilities. IF anyone knows of any please let me know. Thanks. jerm5497@gmial.com

2 Cathy22

Client Served

Rating: 5

I've been a client, parent advocate and volunteer for 12.5 years, since the beginning when Cleft Advocate first formed. Debbie had just begun forming the organization, and I've been served as a parent of a child with a craniofacial difference and I've been a volunteer.

I would do it again in a heartbeat if I had to. This organization has done so much over the years. Hope it keeps on ticking for the next 12 yrs and more more to come.

Previous Stories

Volunteer

Rating: 5

Have been part of this group since 2002 when our son was born. Wouldn't trade it for the world. AmeriFace and it's programs are an absolute great resource for families and individuals with craniofacial differences. Always glad to participate when I'm able.

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1 Milli D.

Volunteer

Rating: 5

I ended up volunteering with AmeriFace because I fell in love with the people. I can't imagine going though my son's childhood without their support. cleftAdvocate was brand spanking new when I first stumbled on them, and they were a lifeline, a source of comfort, and a place of sanity. I honestly don't know what I would have done without them and am so glad I found them when my son was only a few months old. 12 years later, I love them just as much and I can't imagine my life without them.

Ann_88

Volunteer

Rating: 5

I found CleftAdvocate shortly after my daughter was born 11 years ago with a cleft palate. I didn't know what to do or where to turn to for help. They were truly a beacon of light shining through the darkness of my despair when we just couldn't figure out how to feed our baby. The information and support I received from CleftAdvocate were life changing for me, my daughter and our whole family. I can't thank them enough and only hope that my story can help someone else as much as CleftAdvocate helped me.

Volunteer

Rating: 5

When we found out about our son's cleft during ultrasound this was the first place we were able to get information. I really appreciate everything this foundation has done and is continuing to do today.

Carolyn35

Volunteer

Rating: 5

I discovered cA/Ameriface when my daughter was 12 yrs old and had to have a bone graph due to her cleft lip & palate. Debbie Oliver and other cA members helped me get through one of the worst times of my life. It was great hear from other families who had already gone through the surgery and could talk me through it. Whenever I had a question, it was was answered. And I have made some awesome lifetime friends, some I've met in person and others I've met online. But I cherish all of their knowledge and friendship. I give cA/Ameriface a 5 star + rating

Volunteer

Rating: 5

I joined cleftAdvocate back when it first started because my youngest daughter (who's now 12) was born with a unilateral cleft lip and aveolar ridge. The support, information and life long friendships I've made because of them is priceless. I've learned so much from them, their volunteers and the information they provide that I've become a volunteer, too. Helping someone who's just starting to navigate the healthcare system is so rewarding.