I was recently diagnosed with Meniere's disease and nocturnal tinnitus is one of my symptoms. While initially discouraged and seeking another diagnosis that would let me hope that it would be a temporary condition, I am starting to use coping skills I learnt through the ATA. I find them very helpful and always ready to answer to my questions. I just wish they had a local chapter in the Northeastern US.
Let me start by saying that I have been suffering from Tinnitus for quite some time. When my audiologist told me that there was an organization who's sole purpose was to provide information and help for this affliction, I didn't waste any time in logging on to their website. From the first email a few years ago, the staff at ATA have been very helpful in answering questions and providing information on services and products that help in coping with tinnitus.
Something that sets this organization apart from most others is their uncanny ability to keep things personal. By that I mean that the ATA has always maintained a level of professionalism that one would expect from a non-profit organization, but they have always made me feel like they were a small, local group of professionals. They have been responsible for helping me in many ways, from info on relaxation techniques to help me get through the rough days, to obtaining my sound pillow which provides needed "white noise" to help me sleep better at night. They have fielded many phone calls and emails from me, helping me to find specialists in my area, give me info on current research projects, and linking me up with a support group that recently started up in my area (who knows how long I would have gone before discovering it on my own).
They are upfront about letting you know that, while there is not yet a cure, their ultimate goal is to find one.
The annual Tinnitus walk has been a great way for me to get the word out to others, and also do my small part in helping to raise funds for research.
My experience with the ATA has been a positive one.
I was diagnosed with Subjective Tinnitus in November of 2009. For the first three months, I felt completely isolated with my condition until I joined the ATA. I don’t regret one moment of that decision. Their support site has allowed me to not feel alone in my struggle to cope with the noise in my head. Whether it’s been one month or 25 years, living with Tinnitus is never easy. It challenges us in ways that others cannot imagine. “It’s maddening”, as one friend quoted. Talking with others on the ATA support site has given me hope for the future. I’m most impressed with the people who work for the ATA. They consistently have a presence on the support site with updates on meetings and the latest news on research and tinnitus treatments. The staff has also been most accommodating to me with prompt responses related to any questions or concerns. It’s comforting to know that this organization is fighting for us every day. I’m proud to be a member of the American Tinnitus Association.