This is a great group of people. They've really helped me and others. I've asked questions and had very helpful answers and I've also been to their website forum and just reading the posts and the advice have given me hope for my father. They have helped eliviate fear of what was the unknown and helped us in asking the right questions of his doctor. They have been an invaluable source of support and information for us. ABCS has probably saved many lives in encouraging second opinions and directing people to qualified cancer centers/doctors in areas all over the US.
I was officially diagnosed with bladder cancer in January 2010 although the first Dr. suspected it in Oct of 2009. I found this site at the first mention of the possibility of bladder cancer. It has many wonderful helpful people who as others have said are more than willing to give advice based on their own personal experience. No one ever hears about bladder cancer until it effects them or a member of their family. I consider the other members of this site to be family as well. I just wish there was much more research done on bladder cancer. At least on an even playing field as many of forms of cancer when it comes to funding for research and support.
My husband was diagnosed with Ta, Grade 3 w/CIS in July, 2005. We have learned alot about bladder cancer from the American Bladder Cancer Society and its members who are extremely knowledgeable and helpful.
ABCS is a wonderful place. I went there when I found out i had bladder cancer. Yes, bladder cancer. I know it's not prestegous as having breast cancer, but it still is cancer, and can kill you. It is a safe harbor for those with BC can come to, get questions answered, and get support for this aweful disease. Like I said, it is not breat cancer, it is the forgoten cancer. More awareness needs to be brought to this cancer
This web site has been great. From the expertise provided by many members to the comfort and support from those dealing with bladder cancer. I participate as much as I can in relating my experiences with the treatment received and history of my case. This was the first site I came upon when diagnosed. I don't know what I would do without it.
I would be lost in world of decisions to be made and no direction with out ABCS. The website has given me hope and the education that I can beat BC. The tools and support I have received and still receiving has changed my outlook on my condition. I am checking the website through out the day for information and encouragement. I would be lost with ABCS
I was diagnosed with bladder cancer this past March. After the initial shock began to wear off, I frantically began to surf the web looking for information. The more I looked, the more confused and frustrated I became. The problem was that when I found information, there was no means of asking questions (abstracts don't talk back). I did find a few sites that provided a means to post questions, but when I examined the "latest" post indicaters, I found that most were several months and even years old. Some were just vehicles for individuals to maintain a diary and no means to exchange information. Then I found the site for the American Bladder Cancer Society. I found that the site was up to date ("latest posts" were defined in hours and minutes rather than months or years), arranged in an easy to use manner, and easy to use. The greatest asset of the ABLCS site is the exchange of information. You are quickly surrounded by peope coping with the same disease and the lifestyle issues that it entails. The folks on the various threads are truly amazing. Questions are responded to quickly and always with words of hope and encouragement. For people like me that require more than "I heard somewhere that ...." the people that respond will back up what they are telling you with links to support the information. When it comes to questions of the "what should I be looking for" or "what should I be doing at this point", you can expect to get reliable information and. if needed, a push to help you to get moving in the right direction. For anyone that has been diagnosed with bladder cancer or the loved ones of someone diagnosed with bladder cancer, I highly recommend the American Bladder Cancer Society website and I suggest frequent review and participation in the conversations. I can attest that it has been a major factor in my personal ability to cope and find my direction at a very critical time in my life.
This is an amazing web site with many people sharing information. Wonderful resource being able to steer and share this site with many that my Doctor has treated. Lots of concern and fear have been mitigated by being able to use ABLC!
When I found out I had Bladder Cancer last year (2009) I found this site while doing research. It's was a tremendous help in educating me on what to expect and later, after my surgery, that what I was experiencing was quite normal. Over the past year I have followed the blogs and discussions. They go out of their way to guide you in the right direction.