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American Bladder Cancer Society Inc

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Nonprofit Overview

Causes: Cancer, Health

Mission: The American Bladder Cancer Society's function is to raise awareness of bladder cancer among the general public and the medical community, to advocate through all means available the advance of research into a cure, treatment, early diagnosis and quality of life issues of survivors, to support bladder cancer survivors by providing community as well as by encouraging the concept of informed medical consumerism.

Geographic areas served: United States

Programs: Raise awareness of bladder cancer among the general public and the medical community. The organization's website/social networking site is available "24/7" as a source of support for survivors, caregivers, and anyone interested in learning more about this often overlooked disease. During 2014, over 110,000 visits were made to our website/social networking site; a daily average of over 330. Our forum allows users to post on a variety of topics and others can provide responses. The forum contains over 43,600 user posts from a community of over 5,000 users.

Community Stories

19 Stories from Volunteers, Donors & Supporters

3

General Member of the Public

Rating: 5

“You’re the living embodiment of John Wesley's words:
‘Do all the good you can, by all the means you can, in all the ways you can…’
You certainly have done good for me, and I am so thankful.”

Thank you, for your support this past year with my Bladder Cancer battle, you have helped me to be strong on this long tedious road!

AnneH

3

General Member of the Public

Rating: 5

If receiving a Bladder Cancer diagnosis, people jump to the internet only to find random, confusing, and frightening information, but no individual help. The "been there/done that" caregivers and survivors at ABLCS welcome you into a friendly environment as a person, providing excellent information, input, and support. Lurkers to the forum often spot others with similar situations, and sensible questions. Many join in to participate. Each one contributes a valuable piece of information that could help others better understand and deal with Bladder Cancer. It's an unfortunate, long term commitment when one joins the "B-C Club". Finding the ABLCS forum provided the communication not found elsewhere. Thanks.

2

General Member of the Public

Rating: 4

My hospital and my Doctor were not helpful in aiding me to adjust to the bag. Dealing with the issues about the bag were driving me nuts. Several others here were also out of surgery and were Huge help with my problems. Realizing the stress that can come from surgery, I now try to be informative for new folks. It's also important to point out to others that cancer IS NOT terminal.

3

General Member of the Public

Rating: 5

This site has kept me from loosing my mind through my seven or eight years of going through surgeries and checkups. they would talk to me and support me in hard times and celibrate the good times. I don't know what I would have done without my friends at ABLCS.

2

General Member of the Public

Rating: 5

This is the only website that has made me feel so loved and supported, instead of just a place to vent and get info. Best forums and blogs ever! Sail on, ABCLS!

1 Laura166

General Member of the Public

Rating: 5

This is such a wonderful place to learn all about this cancer, my husband was diagnosed in Dec. 2012, had a radical cystectomy May 2013 , We had no knowledge of this cancer except that it was fast acting in my husband, with this site and information and stories from others I felt much more informed, our regular MD had no information on this as he had never had a patient with this type of cancer before. Our new Doctor at UofC informed us of this site, and what a help it has been.

General Member of the Public

Rating: 5

Found out my Dad has bladder cancer. This site has been wonderful. Thank You.

1

General Member of the Public

Rating: 5

In May of 2010, my husband and I were given the shock of our lives. We were told my husband had Bladder Cancer. Not much of a warning to prepare for such a blow in life. Some blood in the urine and then pow, hit in the face with a cancer diagnosis. Despite us both being health care professionals, the diagnosis hit us both extremely hard. We knew we were going to have to learn a lot in a relatively short period of time, if we were going to help increase his odds of survival. Aside the quick bits and pieces of information we were given during a doctors appointment, where else could we go? We had some of the basics down, but we wanted to talk to real people who faced the same situations. We needed updated abstracts and data about Bladder Cancer. We were still in shock. We desperately needed guidance. Shortly after taking to intense research on the Internet, I was fortunate to find a link to the American Bladder Cancer Forum. ABLCS. We no sooner logged on to the ABLCS site when we were greeted by many wonderful and knowledgeable people who were willing to help us. The compassion and knowledge from the members at ABLCS was overwhelming in a positive way. They all knew the words to say; first encouraging us to take a deep breath. Oh yes, something as simple as breathing, a situation people often forget to do when given a serious diagnosis such as cancer. One at a time, the ABLCS members began delivering us the answers about what steps we needed to take in an effort to help save my husbands life. One of ABLCS long standing members named Patricia, was like a walking encyclopedia with regard to her knowledge about Bladder Cancer. She was our Guardian Angel. She not only helped us through the steps, but knew the top docs and hospitals in the country who would be best to help us. Never once did she make us feel like we were taking up her time. When one faces such a diagnosis as cancer, it feels like you are caught in the middle of a tornado and you have no idea where it will toss you when it is done spinning. I am here to tell you that ABLCS is there to catch you when you are tossed to the ground. The organization provides, at no charge to its members, updated bladder cancer information and articles, facts about bladder cancer, and on going daily testimony from survivors and caregivers. The information is there for members to retrieve 24 hours a day, 7 days per week. On Sunday evenings there is a LIVE chat line for members. We would not have known what to have done with my husbands Bladder Cancer diagnosis if it were not for ABLCS. It is a non profit organization that empowers each of the members with education. ABLCS is constantly pioneering the way to locate updated information about treatments and cures for Bladder Cancer. The goal, to educate those of us diagnosed with an overpowering disease. No member is ever denied help from ABLCS. It is an organization dedicated to serving Bladder Cancer patients from everywhere in the world. For that, we are grateful.

5

General Member of the Public

Rating: 5

ABLCS I came across this site by chance when I was initially diagnosed with BC & what a help it has been to me & many many others. When you are feeling at your most vunerable & totally confused as to which questions to ask, which way to go, this site has wonderful kind knowlegable people who have experinced the same & much more. It was a godsend to me & I continue to keep in touch for information & support. Thank you ABLCS !!

7

General Member of the Public

Rating: 5

I found out I had bladder cancer late in 2008. I had the tumor removed and started my BCG treatments. After my 4th treatment, I had a severe reaction and it affected my joints and eyes. I tried to talk with the doctors but they were unaware of what to do. I came across The American Bladder Cancer Society website and can't begin to tell you the help I received. Many expressed that they too have had these kind of symptons and they all helped me everyday until I was on the road to recovery. I don't know what I would do without their help - I go to the website almost daily. I constantly find out new information on bladder cancer, plus learn the experience of all of the people who are going through it. This site has been my constant, and when you are facing cancer that is very important. Thank you for your time. Bobbi Berg

6

General Member of the Public

Rating: 5

This is a great group of people. They've really helped me and others. I've asked questions and had very helpful answers and I've also been to their website forum and just reading the posts and the advice have given me hope for my father. They have helped eliviate fear of what was the unknown and helped us in asking the right questions of his doctor. They have been an invaluable source of support and information for us. ABCS has probably saved many lives in encouraging second opinions and directing people to qualified cancer centers/doctors in areas all over the US.

10

General Member of the Public

Rating: 5

I was officially diagnosed with bladder cancer in January 2010 although the first Dr. suspected it in Oct of 2009. I found this site at the first mention of the possibility of bladder cancer. It has many wonderful helpful people who as others have said are more than willing to give advice based on their own personal experience. No one ever hears about bladder cancer until it effects them or a member of their family. I consider the other members of this site to be family as well. I just wish there was much more research done on bladder cancer. At least on an even playing field as many of forms of cancer when it comes to funding for research and support.

10

General Member of the Public

Rating: 5

My husband was diagnosed with Ta, Grade 3 w/CIS in July, 2005. We have learned alot about bladder cancer from the American Bladder Cancer Society and its members who are extremely knowledgeable and helpful.

8

General Member of the Public

Rating: 5

ABCS is a wonderful place. I went there when I found out i had bladder cancer. Yes, bladder cancer. I know it's not prestegous as having breast cancer, but it still is cancer, and can kill you. It is a safe harbor for those with BC can come to, get questions answered, and get support for this aweful disease. Like I said, it is not breat cancer, it is the forgoten cancer. More awareness needs to be brought to this cancer

9

General Member of the Public

Rating: 5

This web site has been great. From the expertise provided by many members to the comfort and support from those dealing with bladder cancer. I participate as much as I can in relating my experiences with the treatment received and history of my case. This was the first site I came upon when diagnosed. I don't know what I would do without it.

5

General Member of the Public

Rating: 5

I would be lost in world of decisions to be made and no direction with out ABCS. The website has given me hope and the education that I can beat BC. The tools and support I have received and still receiving has changed my outlook on my condition. I am checking the website through out the day for information and encouragement. I would be lost with ABCS

5

General Member of the Public

Rating: 4

I was diagnosed with bladder cancer this past March. After the initial shock began to wear off, I frantically began to surf the web looking for information. The more I looked, the more confused and frustrated I became. The problem was that when I found information, there was no means of asking questions (abstracts don't talk back). I did find a few sites that provided a means to post questions, but when I examined the "latest" post indicaters, I found that most were several months and even years old. Some were just vehicles for individuals to maintain a diary and no means to exchange information. Then I found the site for the American Bladder Cancer Society. I found that the site was up to date ("latest posts" were defined in hours and minutes rather than months or years), arranged in an easy to use manner, and easy to use. The greatest asset of the ABLCS site is the exchange of information. You are quickly surrounded by peope coping with the same disease and the lifestyle issues that it entails. The folks on the various threads are truly amazing. Questions are responded to quickly and always with words of hope and encouragement. For people like me that require more than "I heard somewhere that ...." the people that respond will back up what they are telling you with links to support the information. When it comes to questions of the "what should I be looking for" or "what should I be doing at this point", you can expect to get reliable information and. if needed, a push to help you to get moving in the right direction. For anyone that has been diagnosed with bladder cancer or the loved ones of someone diagnosed with bladder cancer, I highly recommend the American Bladder Cancer Society website and I suggest frequent review and participation in the conversations. I can attest that it has been a major factor in my personal ability to cope and find my direction at a very critical time in my life.

9

General Member of the Public

Rating: 5

This is an amazing web site with many people sharing information. Wonderful resource being able to steer and share this site with many that my Doctor has treated. Lots of concern and fear have been mitigated by being able to use ABLC!

9

General Member of the Public

Rating: 5

When I found out I had Bladder Cancer last year (2009) I found this site while doing research. It's was a tremendous help in educating me on what to expect and later, after my surgery, that what I was experiencing was quite normal. Over the past year I have followed the blogs and discussions. They go out of their way to guide you in the right direction.