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2010 Top-Rated Nonprofit

Advocacy for Patients with Chronic Illness, Inc.

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Nonprofit Overview

Causes: Civil Rights, Disabilities, Disabled Persons Rights, Health, Human Services

Mission: Advocacy for Patients provides FREE information, advice and advocacy services to patients with chronic illnesses nationwide in areas including health and disability insurance, Social Security disability, employment discrimination, family and medical leave, educational equity, and resource location.

Geographic areas served: National

Programs: The center provides free information and advocacy services to over 1500 patients with chronic illnesses nationwide in the areas of health and disability insurance, social security disability, employment discrimination, family and medical leave, educational equity, housing and resource location. A website is maintained with educational materials at www. Thejenniferjaffcenter. Org and a blog with daily updates is also maintained through the center's website. The center also publishes an article that summarizes the results of a survey that the organzation conducts on living with chronic illnesses (see schedule o). The center has commented on federal health reform regulations, participated in meetings with federal agencies, engaged in health reform implementation and taken an active fole in commenting on state health reform implementation.

Community Stories

3 Stories from Volunteers, Donors & Supporters

1 Givingmommy

General Member of the Public

Rating: 5

They have were an indispensable resource for my brother and we will be forever grateful. He is chronically ill and the support he received before his passing was amazing.

1 Carmen234

General Member of the Public

Rating: 5

This organization headed by Ms. Jennifer Jaff, is an outstanding source of information that is very helpful to all with chronic ilnesses, especially those with IBD. I bought the Know Your Rights Handbook and found it to be very helpful. It is comforting to know that there is a person, a group, really looking out for those with IBD. My son has Crohn's disease and I know that I can count on them to help me when I run into trouble getting help with whatever he might need. I am a member of CCFA and they are awesome, but Ms. Jaff takes it to a more personal level when helping you. Thanks to Ms. Jaff and her staff for being such a great source of help and support. Stay well.

Carmen Fiorelli, Madison, WI

General Member of the Public

Rating: 5

I was diagnosed with Crohn's disease in 2001 at the age of 38. After a constant battle, several surgeries, 18 blood transfusions, and more medications than I can remember. I’ve experienced events that will haunt me forever. My disease has taken my life hostage, twisted it, making each day a constant battle just to survive; every day is a new challenge. I’ve lost everything from my job, my home, my medical insurance, life as I knew it and everything that meant anything. Suffering from severe complications and side effects while fighting for my rights to Social Security Insurance and Disability Insurance… this is what my life has become. Finding help and answers has been very difficult. Advocacy for Patients with Chronic Illness, Inc. has help me and others like me suffering from these same experiences to make sense of our legal rights. They advocate and give us a voice when our voices are no longer being heard.