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2010 Top-Rated Nonprofit

Advocacy for Patients with Chronic Illness, Inc.

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Nonprofit Overview

Causes: Civil Rights, Disabilities, Disabled Persons Rights, Health, Human Services

Mission: Advocacy for Patients provides FREE information, advice and advocacy services to patients with chronic illnesses nationwide in areas including health and disability insurance, Social Security disability, employment discrimination, family and medical leave, educational equity, and resource location.

Geographic areas served: National

Programs: The center provides free information and advocacy services to over 1500 patients with chronic illnesses nationwide in the areas of health and disability insurance, social security disability, employment discrimination, family and medical leave, educational equity, housing and resource location. A website is maintained with educational materials at www. Thejenniferjaffcenter. Org and a blog with daily updates is also maintained through the center's website. The center also publishes an article that summarizes the results of a survey that the organzation conducts on living with chronic illnesses (see schedule o). The center has commented on federal health reform regulations, participated in meetings with federal agencies, engaged in health reform implementation and taken an active fole in commenting on state health reform implementation.

Community Stories

2 Stories from Volunteers, Donors & Supporters

Professional with expertise in this field

Rating: 5

As a medical social worker at a large institution working with pediatric chronic illness, I regularly refer patients and families here for guidance and advocacy support on issues ranging from educational equity access to necessary medications for well-being, employment discrimination issues, and entitlement and legal rights. I have seen, first hand, the way that the organizations dedication, investment wisdom and compassion have directly led to successful outcomes that allow children to have access to their educational curriculums, obtain life-saving treatments that insurances initially deny, and permit parents to not have to choose between threats of losing a job and being with their child during scary hospitalizations. I have seen families lies be enhanced, health be improved and most critically, perhaps, hope be restored, all because of the tireless work and expertise offered by this organization. As a professional collaborator, the services are prompt, relevant and exhaustive. I have seen the extraordinary impact the organization and Ms. Jaff have on public policy awareness and education the community about evolving laws impacting patients’ rights, and the reach she has in various illness-focused professional organizations to be a consultant to health care providers on the front lines, so that their own care delivery can be enhanced with the right strategies for patient advocacy. The organization and it’s commitment to equality helps teach me how to be a better clinician. It gives a 5-year-old with a lifelong chronic illness, a chance to be a 5 year old.

Professional with expertise in this field

Rating: 5

Advocacy for Patients with Chronic Illness is a unique and much needed Non-Profit Organization. Jennifer Jaff is an attorney who provides pro-bono work for any patient who needs it. She never turns anyone away. If she cannot find the answers, she will find someone who can. Advocacy for Patients with Chronic Illness has helped several people I know personally with a variety of situations such as IEP co-ordination for children, disability application assistance, and negotiating on patient's behalf with insurance company claims appeals. Advocacy for Patients with Chronic Illness is also an advocate for Health Care Reform and great resource navigating and understanding how the new Health Care Laws affect individuals.